The worst part about OCD is the "invisible suffering" that goes on for those who have it. Often times it seems as I am just going through the motions at work or in my social life but, as many of you can probably relate to, there is that dark cloud over our heads at all points throughout the day. Even on "good days" I still feel like I go through a tremendous amount of mental pain but it's only considered "good" because it was less severe than an all out episode. I don't wish this God awful disease on anyone.

I dont know what to do anymore. I think Ive had the 'pure O' version of OCD for more than ten years. I feel like so much of my life has been wasted from this disease. For the longest time I just tried to ignore the intrusive thoughts, and push them off as anxiety, and basically dissociated for years of my life. Feels like Ive just been on autopilot and a shell of myself for nearly 15 years. Its actually hard to even imagine of all the experiences, emotions, connections with others, and personal growth that Ive missed out on- if I do, I think it would be too much to handle. I think Ive even forgot and dont even know at this point what it is to live a normal life and experience positive emotions. Now that I sought treatment for it specifically, it feels like it's gotten worse. Like by acknowledging that part of myself, suddenly added focus just makes it more real and in the forefront now. I wonder if I am actually going insane. Will not go into details for reassurance but the thoughts just rip my soul out. Its so difficult as well because I will get random 'clarity moments' throughout the day where I feel like Ive solved something, then get completely derailed by another OCD thought stream and forget everything. It feels like Im just on a merry-go-round of hell, not going anywhere thinking I am at times.

If you are anything like me (and most of you are, because let’s face it, we are all on this chat), you have OCD. Real OCD, not the organisation, matching colours everyone thinks it is. Real OCD. I’ve always known I was different, known that my brain does some waking things and deep down, I’ve always known I’ve had OCD. But there is just something that changes when you finally get the diagnosis. It makes more sense, you have an explanation for your behaviours. So naturally I told my friends. When they ask why I had to stop and step four times on a tile I said ‘oh, I have OCD’. I finally had a word, a tangible concept that I could explain to people. But nobody warned me about the massive misconceptions about OCD. Instead of support or acceptance, my friends seemed to question the diagnosis saying ‘that’s not ocd, don’t you just like things organised?’. And no matter how much I explain it they don’t seem to get it. And that’s the part that feels so cruel. I go through hell in my head and it can all be reduced to a phrase of ‘oh, aren’t you organised’. So please be careful out there you guys, and if someone try’s to downplay your experience, know that you are valid and that what you are going through is probably something that they could never handle. It’s a lesson that took me time to learn, but it’s important because our experience matters. Our real experience.

I think I have mild OCD. Maybe that's why I can't relate to many of the difficulties experienced by other posters. My OCD is more on the compulsion side performing certain rituals at key transitions or points during the day. I honestly cannot figure out what the underlying obsession is other than some kind of weird mental hoarding to acknowledge and cherish a moment but also to protect my family and even my pets. I get little or no anxiety (I used to when I was younger). Even mild OCD absolutely sucks and is debilitating to an extent.