- Date posted
- 3y
- Date posted
- 3y
I’m so sorry, I am in the complete same boat, I’ve found a private psychologist that specialises in erp and have about three months covered by Medicare (Australian thing) otherwise I couldn’t afford it at all, don’t know what I’m going to do after those three fucking months, I’m so sorry I don’t even know how to apologise for how fucked up this society is and how it is an illusion that anything works here, unless you are ritch off taking advantage of others, fuck capitalism I wish I had people who we could all just live in the middle of nowhere
- Date posted
- 3y
I’m on ssi for my ocd I get 500 something dollars a month and my Medicaid is suppose to help me pay for doctors visits and medications and the help I need for my disability but nowere will accept my insurance and these ppl think I can just go to a regular mental hospital and se regular doctors which I thought that’s wat I was suppose to do to get better but then learned regular doctors and hospitals don’t understand ocd I’ve seen doctors that have ocd listed on things they treat same wit hospitals and places treating anxiety disorders which is wat ocd is so I’ve always gone to places that list ocd and anxiety orders they all no the jist of ocd but don’t understand everything bout it and all the different kinds of ocd and wat comes wit ocd like anxiety anxiety attacks panick attacks agoraphobia guilt shame and staying up late being depressed and everything else they just have prescribed me an antidepressant and tlk therpay which I have now learned tlk therapy can make ocd worse and it’s just not a treatment for ocd but exposure and response therpay are and anxiety medications for an anxiety disorder sounds like they’d help alot to ocd is based off of fear and uncertainty like just constant panick give me a xanex so I can chill but I trusted them for 15 years every doctor and hospital was the same prescribed the same thing just 1 magic pill they think is a cure all the same tlk therpay 15 years and no change in my ocd cause none of them were ever treating me properly but they still got paid and here I am barely maid it threw school went to an alternative school never been able to work never finding help just always different from others liveing a different life than others and wat I portrayed pretending to be normal and being on ssi I atleast want to try to get help the proper care some anxiety meds so I can leave my house atleast I want to tlk to a doctor who understands my illness it’s just crazy that ocd help isn’t out there like other mental illnesses.
- Date posted
- 3y
I’m so sorry you have lost so many years, I hate this
- User type
- NOCD Alumni
- Date posted
- 3y
I’m so sorry for the years lost to this Illness. I am so happy you learned about ERP
- Date posted
- 3y
I'm so sad you have had this life. My son is 19 and I just feel lonely for him that he will always be alone. I worry about him every single day. He struggles with social anxiety, ocd with intrusive thoughts ( not disturbing thoughts thankfully a bad word repeating thought) and germ phobia. Wd have no family if something happens to us and I get so sad thinking about how I won't be around to help him.😢 Keep searching. Know your not alone. Maybe one day you can take your research and testimony and be able to help others who are struggling to. My heart goes out to you 😢🙏❤️
- Date posted
- 3y
Hey please make sure to ask your sons consent before commenting about him don’t know if you did just wanted to check :)
- Date posted
- 3y
I understand that I no some ppl get home care and like inpatient care in places like ppl who are more slower that can’t take care of themselves but live on there own I’d like to have that for myself to cause atleast I’d have care and help when I need it but you gotta have insurance cover it I don’t think ppl see ocd and everything that comes wit haveing ocd as dibilitating and like me I can do alot of things they just take me longer cause of rituals I no the way to do things normal but I have ocd and can’t I’m not stupid I can leave my house and be round ppl but I have agoraphobia and social anxiety and just can’t but still it’s hard liveing like that I won’t leave my house to go grocery shopping till I’m starveing if I had help from a nurse to come help that’d be amazing especially when my ocd at it’s worst like it’s been lately if I can get help get better I can do more for myself which would make me feel better and be less depressed it’s so aggravating wanting to do all these things but just not being able to like I just want to put on my clothes like a normal person I want to put on deodorant normal and not wash my hands all the time I want to do stuff that I use to do I want to go to the store and not have to check wat brand it is to see if my ocd doesn’t like it but there’s gotta be help out there for your son like I’m home care getting help for ocd is so hard though I hope ppl can see it as dibilitating as it is so we can get more help.
- Date posted
- 3y
Good idea but my son literally has no clue and if I asked him for his consent he would not even understand what I am talking about even after I thoroughly explain it to him. It's heartbreaking. He does not even have a phone he refused to ever have one. Every appointment we do have I encourage him if he wants me to not be included and he always wants me there. His is not a typical 19 year old. He has signed the HIPPA forms bit I don't think he even understands much about that even after thoroughly explained. I never mention his name and I never post anything or any pics of my kids ever. Thanks for pointing this out though ❤️🤗
Related posts
- Date posted
- 25w
I can't stop thinking about ending my life. I feel like I'm not even living, I'm just surviving. Everyone is capable of being a person and functioning and I'm just stuck here avoiding everything. My psychiatrist said my ocd is severe and it will all take time and I'll start erp and I'm already on medication but I just feel so depressed and like I won't be able to handle erp and it's already too late for me. I feel inhuman, it's debilitating. My major theme is just fear or contamination, I can't even make myself a meal I can't touch anything in the kitchen. I get stuck in the shower for 2 hours and when I don't shower because I'm depressed I feel like a walking germ. My hands are a mess, my school work is shit, I avoid and avoid and I'm just so tired of "living" like this. My psychiatrist said they don't have any therapists available right now like.... excuse me? What do you mean u don't have any 😭 I honestly don't even know why I'm typing this becuase nothing helps, nothing ever will. I'm so deep into this I can't get out, my room looks like shit, I can't live in this body anymore, I really can't. I let everyone down, I am and will be such a dissapointment. I don't have any dreams or goals or passions I just wasn't made to be here. I don't know how or who to ask for help like there's nothing anyone can do, I'm already on meds. I can't keep being like this, seeing everyone judge me for acting insane.
- Date posted
- 24w
Now that we’ve kicked off the new year, I find myself reflecting on where the OCD community is today—how things have changed for the better, as well as my hopes for the future. Ten years ago, it was almost impossible to access a licensed therapist with specialty training in OCD using health insurance. Most professionals simply didn’t understand what OCD actually looks like, so over 95% of OCD cases weren’t correctly diagnosed. As a result, insurance companies weren’t able to see how widespread OCD actually was—or how effective exposure and response prevention (ERP) therapy was at treating it. Instead, people with OCD had to pay about $350 or more per session, all out of pocket, for their best chance at getting their life back. I know this from personal experience. OCD turned my life completely upside-down, and I reached out desperately for help, only to be misdiagnosed and mistreated by professionals who didn’t understand OCD. When I finally learned about ERP therapy, the evidence-based treatment specifically designed for OCD, I learned that I’d have to wait for months to see the one OCD specialist in my area, and I couldn’t afford the cost. But I was fortunate. My mom found a way to help us pay, and I finally got the help I needed. Otherwise, I don’t think I’d be here today. In a few months, I started seeing improvement. As I continued to get better using the skills I learned while working with my OCD specialist, I learned I wasn’t the only one with this experience—in fact, millions of people across the country were going through the exact same things I was. That’s why we started NOCD. Since 2015, we’ve always had one mission: to restore hope for people with OCD through better awareness and treatment. The OCD community needed an option for evidence-based treatment that they could afford and access, no matter where they live—an option that also provided necessary support between sessions. And the entire healthcare industry needed to understand how OCD actually works. As I write this post, I’m more enthusiastic than ever about our mission. Just recently, we’ve partnered with Blue Cross Blue Shield of Illinois, Texas, New Mexico, Montana, and Oklahoma. To put this into perspective, 155 million Americans can now use their insurance to access NOCD Therapy. This year, I have high hopes for the OCD community. More and more people will be able to use their insurance to pay for NOCD Therapy, and we’re working hard to give everyone who has OCD the ability to access the treatment they deserve. In addition to providing ERP Therapy, our OCD-specialty therapists also support our Members in prioritizing their overall well-being. With a focus on developing important lifestyle habits, including diet, exercise, mindfulness, and healthy sleep hygiene, they help our members build a strong foundation for lasting mental health so people are more prepared to manage OCD long-term. For every person who gains access to a therapist specialized in OCD for the first time, 2025 could be a year that changes their lives. If you or a loved one is suffering from OCD, please comment below or schedule a free 15-minute call with our team to learn more about how to access evidence-based OCD treatment and ongoing support using your insurance benefits.
- Date posted
- 24w
back in october i made my first post about my specific type of ocd, how it mixes in with my day to day and how i “deal” with it. i talked about the starting point, how it gradually got worse, and then how it was going just a few months ago. i always think it’s insane how much can change in just the course of a small to a large amount of time. right now, i honestly feel like garbage. to be quite sincere i really want to give up, i’m barely holding on by a thread. and if i cut that thread, i really doubt anyone would care. i’ve never considered myself to be a suicidal person, and i still don’t consider myself that right now. it just gets to a point where it’s just, a lot to deal with. i don’t really enjoy things a lot nowadays. sure i have good days like everyone does, like today, when i was just enjoying my day without worries. but then it all comes crawling back twice as bad the following days. i take online college so i’m usually just stuck at home most of the time. but, when i do decide to actually go out and leave my house, my ocd just explodes because i have this whole routine i need to do or else i feel like i’ll contaminate wherever i end up going. i’m not going to go really deep into my compulsions because it’s hard enough to live with them, much more having to type them all out in detail. but when i go out my compulsions go from wiping down all my stuff i’m going to use after showering, to washing my clothes/cleaning the washer + dryer. i also have separate things (or two of the same thing) i use specifically in my house, and items i use when going out. such as shampoo/body wash, deodorant, lotion, hair curler, etc. as if that’s not draining enough, i also feel the need to fast a couple days prior to any plan i make because i’ve forced myself to believe i need to feel empty in order to be clean. i’m not sure if that’s my past eating disorder talking, or my ocd, but my brain can’t help but think any food in my house is utterly and completely contaminated. i’m so tired of this feeling, feeling like nothing will ever be clean again. feeling like my ocd is trapped in my childhood home. feeling that wave of diseases rushing through my veins the moment i step foot into what’s supposed to be “home”. and i’m so scared of therapy because what if i do get healed, and then everything comes rushing back the second i step into my room. i’m planning on moving somewhere far from my current house in this next coming year, so sometimes i feel like just waiting it out. but it’s insufferable when going to hangout with someone. i miss my friends, my family, and my partner. it’s crazy to me that i’m dealing with all this at the young age of 18 but, i’m sure lots of people have it way worse. i just want to find a way out, any possible way. but i keep pushing myself deeper and deeper that when i finally find a way, it will no longer exist.
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