I feel like The doctors I see for medications don’t understand the severity of my ocd and wat comes wit it like sever anxiety and anxiety and panick attacks not eating and being up all nite always tired the raceing thoughts and the amount of stress I feel like I deal wit and being naseous and physically Ill from my anxiety I also have sever social anxiety my ocd gets worse in public I get scared to leave the house the extreme fear of uncertainty of everything if I leave the house terrifies me and if I have to go anywere I panick and worry over it for days prior literally scared playing out every scenario in my head even if it’s just to do laundry and go grocery shopping I would rather have dirty clothes and starve than leave my house I just struggle wit so much more than just ocd but ocd is a huge issue for me but for years I’ve struggled wit agoraphobia and social anxiety anxiety attacks and panick attacks that have slowly gotten worse over the years to now I don’t wear bras cause I feel like I can’t inhale I can’t explain the way my anxiety makes me feel that amount of stress and worry I feel bout doing small things I just constantly panick but doctors don’t seem to understand me when I’m tlk to them is there a way to explain the severity of my anxiety and to ask for xanex something to help the raceing thoughts so I can go to bed I don’t have issues going to bed I can’t get my brain to shut off to stay in bed and get rest I’ve taken kilonopins in the past and they helped wit everything I feel like I can’t ask for them out of fear of being called a drug addict and given options to try other drugs when clearly I need them just as much as I no I need antidepressants I no I need anxiety medications is there anyone who can help me better explain to the doctors wat ocd and the stuff that comes wit it and the severity of it all a little better to show them I feel like I’m in constant distress and all day and nite haveing sever anxiety and panick attacks were my throat closed up and I can’t breath we’re it takes me days to tlk myself into leaveing the house I no I have to work on things myself but I’m not eating and I’m the past I lost 13 pounds in 1 months missed my period and staid awake for 3 days didn’t eat for 3 days I was so stressed my brain wouldn’t stop so I could relax and rest and fucking eat I was miserable please is there something I’m not doing please someone help me is there advocates that can help me explain to these doctors I need help more help than 1 pill they act like is gonna solve all my issues.

Anonymous

Date posted: 3y

I can relate. I also am agoraphobic and was having severe panic attacks daily, sleep disturbance, was fearful of eating fresh foods and felt on edge all the time. I was diagnosed with c-ptsd. Could there be something co-occurring with your ocd? Regarding the meds, I would suggest being transparent and tell them what has and hasn’t worked in the past. Also, if you don’t feel confident that your doctor is helpful, change doctors. I was hesitant to try medication and when I did I didn’t feel it helped, so I have been trying to find relief more naturally. My medical doctor told me I wasn’t doing anything to help myself because I’m not taking meds. So, you can’t be afraid of what they think, it’s simply their opinion. On the other hand my therapist has been supportive. I changed physicians and found someone more compassionate, willing to work with me regarding my care plan and explain things. Don’t be afraid to change. I thought I could share some of the nonpharmacudical things that have helped me. Perhaps you could find some relief while getting the medications worked out. The biggest hurdle for me was getting my sleep regulated. I use the appolo neuro wearable and it uses sound vibrations to soothe your nervous system. It has helped my sleep tremendously. It’s also helped me with nausea. I’m participating in EMDR (eye movement desensitization reprocessing) therapy with a trama therapist and she has helped me build coping and self care routines to cope with the energy when I’m having anxiety attacks. The EMDR helps process and bring down the energy associated with the triggers. I started a Freespira treatment which helps me learn to control my breathing in a way that helps me prevent or reduce panic symptoms. I also find it puts me in a state that I can sleep easier. In fact, I’m still trying to figure out how not to nod off during the breathing exercises. I removed processed sugars and caffeine from my diet. This gives your adreanals a break. I also started exercising for 30 min a day. This has all taken time. I’ve added one habit at a time. I’m still working on my agoraphobia but, I’ve started to go to my medical appointments. I also went into a store for the first time in 2 years this week. My sleep has regulated, my anxiety when I’m in my home is much more under control. I also notice I’m recovering more quickly from panic attacks when I’m out. I’m hoping I’m at a place that the ERP (exposure and response prevention) therapy will help me move forward with the agoraphobia. It can get better. I know I have a ways to go, but slowly but surely I know the quality of my life is improving. Sending you hope today!

l419

Date posted: 3y

Thank you for sharing these! I will also look into these therapies and see if I can implement them.

Rainbow sky!!

Date posted: 3y

This was very helpful I’m trying to do wat I can I feel 15 years of only being prescribed an antidepressant like it was a cure all is rediculous either way the doctors get paid and then ocd is so hard for ppl to understand it’s extremely hard to deal wit and is much more than just ocd it comes wit anxiety and anxiety attacks panick attacks it’s an anxiety disorder I’ve trusted doctors though I thought they all cared but I now realize most of them don’t I can’t even explain wat I’ve been there wit doctors and hospitals it’s caused me so much trauma but I’m greatful for the advice and will look into some things you’ve have suggested.

l419

Date posted: 3y

Maybe you can try seeing a new psychiatrist. You don’t have to explain with so much detail, just state things plainly: “I cannot leave the house for days.” “Ive been feeling terribly and having panic attacks every day” If you go striclty to a psychiatrist not a therapist they usually prescribe you a few different things at once. Just be careful not to mix medicines.. it can be fatal.. You can even tell the psych that youve tried x medication and you didnt notice any difference for the last few months. Maybe dont ask for klonopin by name, just say “is there anything you can prescribe me so i can just calm down enough to leave the house and go to therapy? Is there anything that could help me sleep at a normal time at night? I really dont want to live my life like this”

Rainbow sky!!

Date posted: 3y

I appreciate the advice I usually get so nervous that I really don’t even ask wat I’m suppose to it’s hard to explain but I no that the way I feel and I just wish these past 15 years doctors didn’t just give me 1 antidepressant like it was a cure all that never get rite to me and now I feel all my issues have gone untreated and are worsening but either way those doctors got paid and didn’t help me.

l419

Date posted: 3y

@Rainbow sky!! I know what you mean, it takes a lot of courage to take the risk to trust a new doctor and be let down again.. go through the same BS and then back to square 1 with your time wasted. Maybe try a hospital as an outpatient and they have different psychiatrists there usually.. so if one doesnt fit what you need you can try someone else there without having to do a bunch of research

Aprilshowers...

Date posted: 20w

My OCD

Please if someone can reply! I really just need someone to talk to. I don’t even know how to control my OCD. It honestly feels like it’s controlling me. Everyday my mind focuses on every bodily sensation I have and it’s like a broken record player, I have horrible health anxiety and my OCD just makes it worst just thinking about it everyday. It feels like everyone who I explain it to looks at me like I’m stupid/crazy. I use to be much more tame with my OCD, I use to eat things without worry, now I can’t even touch things I use to eat without worrying that I’ll get an allergic reaction (despite eating them BEFORE,,,but my mind tells me otherwise) and omg worrying about heart attacks, pulmonary issues..and I couldn’t even enjoy my own child’s birth because my mind was on high alert thinking I would hemorrhage any second or develop pre-E (complications of postpartum) I was miserable for the first couple of months of my baby’s life and I didn’t know what to do. And now, I’m pregnant with my second (4wks) and all the OCD thoughts and anxiety is coming back at me and I have no one to talk to, I feel lonely. And even if I considered taking a pill, I’d worry about being allergic to it and refusing to take it. I ruin everything for everyone. I remember I ate out one night and I started to think “you’re gonna pass out! You’re gonna pass out! (Without ever passing out before) and I had to leave! I feel like I ruin the mood for everyone when I don’t even try to, and I hate it.

Medicine2021_

Date posted: 16w

Suicidal OCD and harm OCD

I’ve recently been struggling a lot with OCD. I have had OCD for a long time I just didn’t realize it until more recently. About seven months ago I developed panic attacks one day randomly at work. I thought I was having a heart attack and went to the hospital where they told me it was just a panic attack and I assumed I would snap out and be better within a few days. However it didn’t. Here’s where it gets scary, I was staying at my then boyfriends house while dealing with blurry vision, anxiety attacks everyday, and more (unsure of what was going on). But at some point I saw my bfs (pew pew 🔫) on his table and it sent me into an anxiety attack after sudden thoughts that I was going to hurt myself with it. I begged him to put it away when I’m not looking so I didn’t know where he put it. He did. These thoughts lasted for about four days but began to go away. (I thought that was it and I would be back to normal). Unfortunately though I ended up moving back in with my family when we couldn’t get my panic attacks under control in time for me to get back to work and pay bills. However, coming home brought up a lot of trauma from when I was kid. My anxiety got worse but I didn’t have those thoughts again. About two and half months ago though, I got sick and went to the hospital where they gave me steroid pills and a steroid shot but sent me into some kind of psychiatric event. Ever since then though, I have been suffering from harm OCD, I have had moments of intense anger that I usually have to completely walk away and go on my own because of how intense they are, and it feels like it’s getting worse. Today I felt fine until about and hour and half ago where I started to dwell on the fact that my suicidal thought was influenced by my OCD and at the moment my OCD is at the worst it’s been. This caused me to get suddenly really depressed and I started crying thinking about how I can’t handle this. I then saw a post talking about how suicide rates are high for people with this form of OCD and it made me question if I am mentally strong enough to pull through this. I fear that at times I’m getting worse. I have good days but I have a lot of bad days. Unfortunately this sent me into such a bad panic attack I went over to my nanas crying about how I can’t deal with this. I took a 0.25 mg Xanax which helped calm down the panic attack portion of it but my brain is still uncomfortably active. I guess I just need hope. I’m so saddened by this. It’s like my life took a total 360 in 10 months and got even worse since the steroid shot. Idk what to do about it. I can’t stop the spiral. I talk to two different therapist weekly and start more next week, making it 5 times a week. I feel no improvements…

avantika 🪻

Date posted: 14w

feeling misunderstood

Having ocd is so incredibly exhausting and depressing- my mom and dad argued with me for over an hour talking about how im a pain to be around, go in too many loops, and ruin everything and everyones mood… this conversation started with me saying im stressed out because of school and that i dont want to go because im exhausted- and idk if this is like ocd directly but it takes me like 2 hours to get ready in the morning because i need to look PERFECT and the same everyday literally 😭 and that process feels so exhausting every morning at 6am but i will NOT go to school without going through with it- i will literally be crying and shaking and wanting to go home the minute i get to school if even a single strand of my hair is not perfectly straightened or any blemishes or flaws are showing- and i cant even walk to school or anything bc im scared the humidity will mess with my hair and everything- and it just really affects my life? And yeah its freaking exhausting. And i have two more years of highschool and I dont know if im going to make it 😭i get super stressed over grades too because i need them to be extraordinary otherwise its a fail. Nothing below 95%. And thats also tiring! 😁 and my mom told me today “medication IS NOTTTT AND OPTION!!!” Like oh okay so im just cooked 😭 and therapy isnt really helping me at all- i feel like what im being told is so basic and generic and it doesn’t help me when im in a huge ocd episode- which is often… and what i hate most is like my mom says “don’t come to me with your problems after 6pm…” im sorry i cant schedule my feelings 😭 im so tired

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