Has anyone had any friends or people in their life who seem to doubt that you have OCD or insinuate that maybe you were not properly diagnosed? Or who have kind of compared something you do to something they do making it sound like maybe it's just normal and not OCD? My friend did this in a conversation, I don't think it was really intentional but it felt awful and I started to doubt myself but I also am feeling like it's okay, I know myself and don't need to let OCD now tell me that I don't know myself. But I just felt awful about it and wanted to share. Curious how others deal with any possibly similar feelings.

When I hear the others might think that they could also have ocd when I tell them I could have it or they want to say they have it after I’ve got diagnosed with, without knowing how I feel it is like why do I always have to have something and then they say they also might have it are they supporting, joking or what?

I was diagnosed with OCD around the age of 6, subtype- contamination primarily. It calmed down as I got older and I assumed it had gone away, but also didn’t realize it can show up in other ways, and it still had been effecting me which I know now. I’m not 31 and I’ve been in therapy for a year and it’s helped a lot, although I sometimes get thoughts that what if some of the stuff I’m dealing with isn’t ocd and I’m exaggerating. I feel like thoughts will feel sticky and I’ll do certain compulsions but then the thought eventually vanishes if I do it a few times which makes me think maybe it’s not OCD since other people/friends I know would probably do the exact same thing. Not sure if I’m making sense, but I guess my question is if that thought comes up with anyone else? Just being unsure if something you’re doing actually is ocd or not.

If you are anything like me (and most of you are, because let’s face it, we are all on this chat), you have OCD. Real OCD, not the organisation, matching colours everyone thinks it is. Real OCD. I’ve always known I was different, known that my brain does some waking things and deep down, I’ve always known I’ve had OCD. But there is just something that changes when you finally get the diagnosis. It makes more sense, you have an explanation for your behaviours. So naturally I told my friends. When they ask why I had to stop and step four times on a tile I said ‘oh, I have OCD’. I finally had a word, a tangible concept that I could explain to people. But nobody warned me about the massive misconceptions about OCD. Instead of support or acceptance, my friends seemed to question the diagnosis saying ‘that’s not ocd, don’t you just like things organised?’. And no matter how much I explain it they don’t seem to get it. And that’s the part that feels so cruel. I go through hell in my head and it can all be reduced to a phrase of ‘oh, aren’t you organised’. So please be careful out there you guys, and if someone try’s to downplay your experience, know that you are valid and that what you are going through is probably something that they could never handle. It’s a lesson that took me time to learn, but it’s important because our experience matters. Our real experience.