Have you ever picked your skin or pulled your hair? You may have a BFRB

It’s been 4 years. 4 years since I spiralled into a world controlled by rituals of 4, it started as 2, then 3, then 4 - my safe number. The amount of times I wash my hands after touching something dirty and how many repeats it takes until I feel ‘clean’, the amount of taps I make when closing doors to make sure I don’t ‘die’, the amount of times I rinse cutlery and plates before eating off them, the amount of times I disinfect things. My OCD subtype is contamination and I know 2020 lockdowns and the pandemic caused it to spiral but what started as a small ritual quickly became bigger until I no longer remembered what my life was like without the obsessive thoughts of germs and contamination. Could that person be ill? What if I go outside to the shops and someone makes me sick? You can’t answer the door to get that package from the delivery driver because he might make you sick, oh you can’t put the shopping away without disinfecting it first - what if someone has coughed on it? ‘I’ve got to wear gloves to do that’ I can’t, I can’t, I can’t. For 4 years I’ve lived like this, the ‘I don’t want to touch that’ or ‘I can’t go to this place because I don’t want to get ill and die’ ‘can you go do that for me as I don’t think I can right now’ - I know my OCD is irrational, I know the likelihood of those things actually happening are slim to none and I know my OCD stems from a need of control in my life because for so many years I felt like everything in my life was out of my control. But no matter how much I know of how many books I read, how many mindful practices I do the panic I feel after being ‘exposed’ or before exposing myself to a trigger is horrible. I’ve avoided and avoided and avoided to the point where something small now seems and feels like an impossible mountain to climb. It often feels like there isn’t light at the end of the tunnel on the dark days, when I know there is, it’s just going to take some time. Despite this on the outside to those not in my circle my life is a whole picture perfect painting. I run my own business, have a nice car, a nice house, a happy relationship and the of best friends and I’m so grateful for all those things but the reality is much different - behind closed doors and hidden in the closest is the OCD monster. I’ve decided now, after 4 years it’s time to change. I’m breaking the cycle and starting anew. The irony that 4 is my safe number too and it’s been 4 years since things started to get dark. I’m ready to lose control and find myself again. Why am I writing this? Honestly, I really don’t know. I found this app recently and hope it can be a help for my ERP practices I’ve been practicing on my own and it’s actually the first time I’ve ever openly posted or spoken about my OCD to date. For years I have lived with a huge amount of shame and embarrassment, hiding my issues from everyone - even my closest friends have no idea how much it impacts my day to day. I’ve felt shame as I can’t control my own mind despite knowing the thoughts are irrational and the rituals only provide temporary relief but each day again and again the safety blanket of the rituals wraps me up and takes over. The only person who truly knows how much it affects me is my partner, who has been by my side through it all, he’s burnt out and has seen first hand the impact it has had on me, my life and my happiness. I’ve sheltered him as much as I can, but I’m sure those who are in relationships with OCD can relate to the burnout their partner feels day in day out. So that’s my story, I hope those going through similar can take comfort in this and know they aren’t alone in it all as my OCD has made me feel so incredibly lonely, isolated and empty for 4 years too long. It feels freeing to finally share my monster and I hope I can connect with others who are on a similar journey to me. The biggest thing I want to be able to do again? I want to be able to hug my loved ones without feeling triggered, I want to go outside and enjoy life without worry, I want to live again. This app has made me feel seen for the first time in a long time and reading your stories, your experiences and how you’re coping is comforting, encouraging and makes me feel less alone ❤️ thank you for reading x

Hi everyone, I’m Cayla. I’m a mom that’s lived with OCD since childhood, but my breaking point came more recently after having my son. I was consumed by terrifying thoughts—What if I hurt him? What if I did something awful without realizing it? I was so afraid of my own mind that I couldn’t be alone with him. The shame and exhaustion were unbearable, and I convinced myself I was broken. In 2024, I finally sought help. ERP therapy at NOCD was one of the hardest things I’ve ever done, but it saved my life. Even now, I have tough days, but I know I don’t have to be ruled by OCD. When my 12 year old daughter began showing signs of OCD, I felt overwhelmed with guilt. I never wanted her to go through what I had, but I knew what to do. I told her that I have OCD too and made sure she knew it wasn’t her fault—and that she wasn’t alone. One of the hardest parts of this journey was trusting someone else with my daughter’s OCD. I knew how vulnerable it feels to share intrusive thoughts, and I wanted her to feel safe. Her NOCD therapist was able to establish trust and genuine empathy from the start, and that relationship gave her the confidence to face ERP head-on. Seeing her build that trust made me certain she was in the right hands. ERP has helped both of us reclaim our lives, and it is beautiful to see my daughter managing her condition and making visible progress. Parenting with OCD while raising a child with OCD isn’t talked about enough, but I know so many parents are struggling with these same challenges. If you have questions about managing OCD while parenting, helping your child through ERP, or breaking cycles of guilt, drop them below—I’d love to share what I’ve learned. I’ll be answering all of the questions I receive in real-time today 4-5pm ET.

Looking back, my introverted nature and struggles to find belonging in high school may have set the stage for how OCD would later impact my relationships. I had my first relationship in high school, but OCD wasn’t a major factor then. It wasn’t until my longest relationship—six years from age 18 to 24—that OCD really took hold. The relationship itself wasn’t the issue; it was what happened after. When it ended, I became obsessed with confessing past mistakes, convinced I had to be completely transparent. Even when my partner was willing to work past them, I couldn’t let go of the intrusive thoughts, and that obsession landed me in the hospital. From there, my struggle with ROCD (Relationship OCD) fully emerged. For years, every time I tried to move forward in dating, doubts consumed me. I would start seeing someone and feel fine, but then the questions would creep in: Do I really like her? Do I find her attractive? Is she getting on my nerves? What if I’m with the wrong person? I’d break things off, thinking I was following my true feelings. But then I’d question: Was that really how I felt, or was it just OCD? I tried again and again, each time hoping I could “withstand it this time,” only to fall back into the same cycle. The back and forth hurt both me and the person I was with. By the time I realized it was ROCD, the damage had been done, and I still hadn’t built the tools to manage it. Now, at 28, I know I need to approach dating differently. I recently talked to someone from a dating app, and my OCD still showed up—questioning my every move, making me doubt my own decisions. I haven’t yet done ERP specifically for ROCD, but I know that’s my next step. Just like I’ve learned tools for managing my other OCD subtypes, I need a set of strategies for when intrusive doubts hit in relationships. My goal this year is to stop letting uncertainty control me—to learn how to sit with doubt instead of trying to “figure it out.” I want to break the cycle and be able to build something healthy without my OCD sabotaging it. I know I’m not alone in this, and I know healing is possible. I’m hopeful that working with a therapist will help me develop exposures and thought loops to practice. I don’t expect to eliminate doubt entirely—after all, doubt is a part of every relationship—but I want to reach a place where it doesn’t paralyze me. Where I can move forward without constantly questioning whether I should. And where I can be in a relationship without feeling like OCD is pulling the strings. I would appreciate hearing about your experiences with ROCD. Please share your thoughts or any questions in the comments below. I’d love to connect and offer my perspective. Thanks!