- Date posted
- 2y
Covid and OCD (possible PANS/PANDAS)
(I’m sorry this is so long, bare with me) So I (30 years old) have dealt with constant infections and OCD, anxiety, and tic coughs/ gagging for as long as I can remember (preschool). More recently, I have had Covid twice.. Once in may of 2022, and in October of 2022. Since my 2nd time having it, I have been in an absolute spiral of infection (sinus, chest, and kidney), and worsening OCD, even though I am doing some constant heavy duty therapy, that has historically worked for me.. before getting Covid the first time I was making more progress than ever before and was finally starting to feel in control, after the first time it came to a halt, then after the second time, I began spiraling, where my ocd feels uncontrollable. It feels like I’m playing wack a mole. I conquer one thing and ten other pop up. I’m incredibly frustrated and feel as though I’m losing myself, my personality, my intelligence… I feel like sometimes I struggle with finding words, and my balance. I get dizzy and sometimes feel numb and am constantly trembling. I feel like I am deteriorating, even though I’m trying to do everything I can. It is sometimes insufferable and I am afraid. My therapist has recently suggested I see a neurologist/ specialist for a PANS/PANDAS evaluation. When I looked up the symptoms I cried tears of joy and fear. Almost all of my symptoms align with PANS/PANDAS, and would make soo much sense of my childhood illnesses, however reading things about “cognitive damage” are scaring me. I was wondering if anyone on here has similar experiences with COVID or PANS/ PANDAS, and if so, what has helped and what hasn’t? Has anyone who has had or heard of any experience like mine? Have you regained your control after this? I’m sorry if this is so nonsensical, like I said, multiple infections, and on some wicked antibiotics at the moment.