The way I’d describe my experience with OCD.

These are some of my experiences with some theatrical flare to better depict how it feels. I decided to share this because when I saw this community I suddenly felt less alone in more human. Lovecraftian door Lurker: I don’t know the subtypes so I’ll just be talking about my relationship with OCD. OCD! that lonely woman in the ocean singing your praise's, sure she’ll love you forever! Of course she isn’t a siren planning on dragging you to the depths and tearing you to shreds. OCD! that haunting whisper in the wind calling you to fly! fly! OCD! that Lovecraftian abomination chanting at you from behind a locked door. Banging demanding you bow to it’s will. For me it latches on to my trauma and PTSD circling them like some demented teacup ride. A daily occurance for me is recalling the day I died when I was like 6 i remeber each detail of the day the kids i met the activtes we particapated in, the heat. The height of the slide before i plummeted to my death. This day consumes my life. “Thud thud!” I ask my parents about it often they tell me it never happened i tell them they weren’t there. Each time they lie and say I’ve never told them. My boyfriend whom I’ve been with for three years hears the story offten and often deals with me asking him if he’s seen me ask my parents. “Thud Thud” Each time he says yes and I asked how they responded “like you’ve never told them.” I constantly become afraid that my boyfreind will drown because he can’t swim. “Thud! Thud!” and because he can’t swim that the car will go off the road into some body of water and he will die. ”Thud! Thud!” I feel the water filling my lungs turning them into fire, the fear of reaching out my hands with no aid. “THUD! THUD! And he will die alone too and there’s nothing you can do to stop it! THUD THUD!” I scream that same fire fueling my rage my tears running down my face like gasoline igniting the thought spiral further burning deeper into my self hatred. I scream again banging my hands on my head. Wish and hoping it will shut up the thoughts.“why? Why?! WHY!” Sobbing until I’m nothing but a puddle. . . Ya know a few months ago I was depressed the thoughts became too much, so I wanted to get high. I thought it would make them stop “Thud! Thud!” So I took a gummy it was unpackage, from a friend of a friend so now the word dog, in reference to a person is a permit part of my vocabulary. And I have memories from being in a comma because it turned out to be DMT and my 6 hour trip end up feeling like 6 months of HELL. The ocd thoughts that i usually see, in a flash became so real that i just cried for hour terrified i was stabbing my eyes out dead and this was my purgatory for leaving the church. ”Thud! THUD!” I stopped using my favorite water bottle after that. Before the incident The bottle up against the wall with the straw to the side of the wall because the thought that would repeat in my head would be that because of my clumsiness I would trip and fall onto the straw and it would stab my eye out and kill me. I had this thought often I kept look up what to do if you accidently get something stab/stuck in your eye. “Thud! Thud!”

Hey folks, I know I shouldn’t post here and I know what I’m looking for when I do but I just feel so at a loss and OCD is playing the old trick of telling me I don’t have it which I guess is what it’s been doing for a while. My OCD started with a health obsession when I was 12 (I’m 22 now) but went away after a couple of months but didn’t present itself again until I was 17. I thought I had a degenerative disease and struggled with that day in and day out until I eventually accepted that I was going to die and made peace with it and then of course I kept living. OCD was pretty quiet for a few months after that. It would show itself when I had headaches and random aches and pains but it never hooked me as bad. Quite funny actually but I had a weird thing for a couple of months where every time I would go out for a drink I thought I’d wet myself so I’d stand in the bathroom for like 20-30 minutes at a time and that was multiple times across the night. Then in 2021, the theme shifted. I remember it distinctly, I was just lying in bed and a question appeared and that was it. My anxiety was really bad for about a year and then I met my girlfriend and we started dating. OCD went quiet until she moved to another city for university and I started to worry she was being unfaithful or didn’t love me anymore and things like that. With that obsession it kind of came to a head where I realised I either had to fully trust everything despite any doubt I felt or I’d lose her and so it just eventually started to pass. I’ve had a few occasions where I question my love for her and that really hurts because I’m pretty sure I’d be lost without her. That comes and goes though and it usually has to do with a general numbness that I feel after an OCD spike. The theme from 2021 (which I won’t say because I’m somehow worried that someone I know will see this and I will definitely wonder if people near me have seen this post despite it being pretty closed off.) never left but I was somehow able to put it to the back of my mind and get to a point where I was okay. I got a new job in 2024 at a point where I maybe was not ready. New place, new people and for the first 2 months or so it was fine. I even saw some potential triggers before they happened and did my best to ignore them. I got really drunk on a staff night out and when I woke up a lot of what ifs filled my head and I’ve been on my back since then. That brings us to now, my OCD has been pretty bad for about a year now but the weird part (and what I’m making this post about I guess) is that it feels different this time. I know that’s a super common phrase for people with OCD that therapists hear all the time and I have actually taken that piece of information as reassurance a few times over the years but it’s true. I feel so much more confused. I can’t even really explain it. It feels like my brain doesn’t engage or deny the obsession the same way as it used to and of course that makes me believe it’s real and I never actually had OCD. Instead, I’m left with thoughts that don’t give me that sharp feeling of anxiety that they used to and instead just leave me feeling super low and often angry just wishing it would go away. I think it’s probably because I’ve been at this for so long and had the same theme for years and so I’ve in a way habituated to the anxiety and that’s what rationally makes sense to me but like you all know, you can’t reason with this thing. It’s like it gives me just enough anxiety and depression to keep me on the hook and make it feel real but not enough send me into panic like it used to. I used to lie in bed, unable to get up and wishing that I was dead. I guess that now because I don’t feel that way, at least most of the time, my ocd is using that as a way to tell me I never really had it. Also I think I used to rely so heavily on reassurance but now know that I shouldn’t have it I try to avoid it. Without it though, it all feels real and I feel like eventually I will lose myself fully and that’s a fear that makes me feel unfathomably hopeless and makes me dread the future when I used to have dreams and hopes for myself that I looked forward to fulfilling. I don’t want to be big-headed, I just genuinely feel like I could’ve had a really great life and that’s gone now because of this thing. Anyway I just wanted to kind of use this post to get my head straight and map out something that I couldn’t quite explain effectively in therapy. I appreciate everyone who sees this but ask not to give me reassurance, I know we all empathise with each other but I’ve been at this long enough to know that it does none of us any good. I hope everyone is doing well, keep your head up. They tell me there’s a light at the end of this tunnel.

If you are anything like me (and most of you are, because let’s face it, we are all on this chat), you have OCD. Real OCD, not the organisation, matching colours everyone thinks it is. Real OCD. I’ve always known I was different, known that my brain does some waking things and deep down, I’ve always known I’ve had OCD. But there is just something that changes when you finally get the diagnosis. It makes more sense, you have an explanation for your behaviours. So naturally I told my friends. When they ask why I had to stop and step four times on a tile I said ‘oh, I have OCD’. I finally had a word, a tangible concept that I could explain to people. But nobody warned me about the massive misconceptions about OCD. Instead of support or acceptance, my friends seemed to question the diagnosis saying ‘that’s not ocd, don’t you just like things organised?’. And no matter how much I explain it they don’t seem to get it. And that’s the part that feels so cruel. I go through hell in my head and it can all be reduced to a phrase of ‘oh, aren’t you organised’. So please be careful out there you guys, and if someone try’s to downplay your experience, know that you are valid and that what you are going through is probably something that they could never handle. It’s a lesson that took me time to learn, but it’s important because our experience matters. Our real experience.