Hello, dear. Today I am just not myself. I just wish to sleep.
I had big plans how I would go out and try at least 5000 steps today, I was supposed to unpack some boxes my husband brought from the old appointment, and take care of my cats, spend time with them and cook lunch for me. It's already 4:15pm here and I am just so tired and haven't even started doing most of the chores. Well my pets are not chores, but still it's not enough just to feed them.
OK. Let you be the first person I tell that about myself. I have already once told Matthew L about my weird obsession that I only let my husband, the owners of the place and handymen in my home and no one else. I don't have visitors. I fear they'll bring bad energy and bad luck. Doesn't matter how much I like them. I can visit anyone at their homes, no problem. It just doesn't work for me the other way round. I would let you in because you know what I am dealing with, but other ocd less people, no no no. Every time I come home from the outside, I go into this small room in my apartment, that has become like my den for me. I take of my clothes, go take a shower and only then I can go into my kitchen, bedroom,... When I come home, I can spend hours in the small room without taking the shower first. It is the room where I correspond with outside world from, write mails, send SMS, make phone calls,...
I can take a nap. Watch videos, read, eat,...
But before I go back to the other part of my life, I need to take a shower. And today I just don't feel like doing it yet. I have come to this room early this morning. I kept waking up and going to the restroom all night, so I just let the cats alone so they could sleep and I went into my den.
I haven't told you yet. Yesterday I have met a new clinical therapist. By a miracle. Kind of by mistake. I was on their waiting list since August 2022. But it got so bad for me, that I just went to a psychiatrist and asked for help in September 2022.. I was appointed my first clinical psychologist by them. The one who admitted she has no idea about treating ocd. I respect her for that.
But since the clinical psychology office obviously doesn't communicate with the psychiatrist department, I was called to come and see the clinical psychologist I was waiting for since August last year and completely forgot about it.
I told them about my psychiatrist and psychologist, not how nuts they are, but just that I've been seeing them and still they asked me to come.
I got ready immediately and an hour and a half later I was in their office.
The new therapist is young, she knows well both my psychiatrist and the first clinical psychologist. So I am a bit afraid that is not a good sign.
She did, however show a lot of interest in me and did listen carefully. She was positive, compassionate and optimistic. She told me that she specializes in Erp, which makes her the only one here I guess. I felt like I won the lottery for a second there.
Then she gave me this simple piece of paper on which I need to journal my ocd episodes and insisted that I write down, word by word into detail, the thought that comes to my mind when ocd attacks. I said there are no words, no thoughts, just the strong feeling of disgust that is so overwhelming that I don't need the word messages to tell me what it wants from me.
She says, that she needs the words, sentences because otherwise we can't work on changing those messages into positive.
Well, I am expected to change non-existing words into positive, but I won't work on feelings. I know she wants to change my feelings through changing the thoughts, but I don't have the thoughts like she wants me to have.
So I have been a bit doubtful about her specializing in ERP.
I had a feeling she was going to start yelling at me if I told her again that my ocd functions in a different way. I know what the message is through the feelings and emotions when ocd strikes, but no specific thought in the form of words and sentences occurs. I think what she is forcing me to do is actually going to worsen my ocd. I will invent new problems that at the moment do not exist.
I am so confused. She's younger than 30. All she knows is what she has learnt from books and some practical work. She has never met anyone with my type of ocd, but she insists she knows it better than me.
I told her that in 37 years of me and my sweet, dear and faithful ocd I have read a lot about it, how to get rid of it,.... She told me she knows I have read some about ocd is but she was going to teach me what ocd actually is..😳👀🤔
Erin, are you religious and super polite and never curse? I have said a "bad word" probably less than 20 times in my whole life, most of the times telling off my ocd, but I do apologize for what I am going to say now about all of my therapists : " What the f_ _ k, are they all fu_ _ ing nuts?!"
The more I am in touch with them the more confused I get and the more hopeless it all feels.
I swear if I ever get rid of ocd, or at least manage to control it so that I can function normally, I will somehow do all the needed trainings and education for becoming an ocd therapist so that people here will stand a chance of getting real help for ocd and not being manipulated and mistreated by psychos with education and no experience in real world.
I respect doctors and education in general. I respect knowledge. But sometimes it's just not enough. If a therapist has all the knowledge from theory and thinks they are God, but has no experience in real world and even less empathy, compassion and willingness to adjust and help, they can do more harm than help.
I understood your husband. I feel the same about me. I know what ocd is, but I still blame myself for not being g successful in beating it. I do try hard to find help, but in vain, and instead of blaming the country where I live, I blame myself for being incompetent and cursed in a way that I always put all my faith in a doctor or therapist and waste months and months hoping they would come round and help knowing all the time they just don't care. I feel like I should fight harder. But there is no way to go anymore here.
I have a feeling if my husband just held me in his arms for a long time when the urge to react occurs it would gradually make ocd powerless. It goes against what they teach us, that reassurance is harmful, but for someone who developed ocd to be protected from the scarry world as a young child, younger than your son is, because they had no love and protection from anything by their parents and family, I thing love, affection and motivation could actually do more than ERP.
Erin, may I suggest that you take any chance possible to tell your son again and again how sorry you are and how much you love him and how helpless and desperate you feel because of the ocd. Tell him you can't stop the compulsions because you love him and dad do much, that even though you know nothing bad would happen if you didn't do the compulsions, you just can't bring yourself to risk that anything could hurt them or all of you. Tell him that you know that this is actually what is hurting all of you, but the fears of other bad things happening to them are so scary that you just can't risk them happening. Tell him if you faced up compulsions and something bad happened to him, you would blame yourself for the rest of your life for not protecting him and preventing it because you love him. Tell him that for the same reasons you are fighting and looking for help and taking meds. But it takes a long time and a lot of trial and error and a lot of family love and support to get it under control.
Tell him you know it scares him. Tell him you know he would give anything to be able to stop this for you and that you thank him for that. And tell him, when he gets scared or said, he should come to you and talk to you, so both of you will feel connected, understood and supported. It might work with your husband as well.
I apologize if I overstepped my boundaries. I just believe that communication is all we have left to make all involved feel better and from preventing families from falling apart.
Has your son left?
I know about the perfectionist freak ocd. I had problem like closing the doors in the right way until it felt right, or putting a glass just a bit to the left or right until it felt in the right spot, or wiping not 3 times but just one more, and after that 4th one just one more time because the 3rd one felt better than the 4th time and then still one more time because now it was an uneven number. It can literally make you go nuts. The feeling of despair, not knowing how long it will take this time until it feels right or keeping in mind all the other things you still have to do and each and every one of them needs to feel just right as well. Sometimes it would be easier just to die. I understand you as if I were you. I feel your pain and despair. And it breaks my heart for you as much as for me.
Well, when I moved here almost a year ago I was sent to hospital because of anemia. My iron levels were so low that just taking the pills was not enough. I was 2x 2 hours on infusion, getting iron directly in my blood.
Before that, I would do the same as you. I would eat only 1x a day. A meal that my husband needed to prepare after working all day and taking care of everything in our lives because I wasn't able even to go into our kitchen let alone cook. I would go to the bathroom only 1x or 2xa day. Sometimes in pain because of my full bladder. But the pain was easier to deal with than my rituals after coming from the toilet.
Two years of living like that and I am still alive. It's a miracle. Two years of living like that and I am still married. That is more than a miracle.
From January 2022 till July 2022 I lost 25kg, I think that would be around 55 pounds. From eating a small meal 1x a day.
Now I got it all back and I can't stop eating as an antidepressant. Food for me is not feul, it is an antidepressant now.
I would sign up for any trial research on using glutamates for ocd. I have the feeling I would do a lot better on them than Zoloft,....
Erin, how did you choose those 11 foods? Why were they ok and others not? I also can't eat certain foods because I feel although I love them, if I eat them, me and my husband will have an argument when I least expect it, out of the blue, or sth else will go wrong.
I hope you can feel how much I understand all you are going through. If I could do anything to make it all stop for you, I would. Even if it made my ocd worse. You have a child and a husband. As much as I wish for my husband and me to be happy, I wish it for you and your family the same as well.
Treat yourself well these days, pamper yourself, lazy around a bit, do a puzzle,🧩... Make yourself your number 1 priority.
I am always here, thinking of you and looking forward to your answers. And I am here if you need someone to lean on. Any time.
Love and hugs.
Thank you for making me feel human. I used to think I was the only person who is going through such turmoils. I wondered why of all people am I the only one like this. It's good to know someone out there knows what I am talking about. I am sorry that you are going through such things also, but it is good that we are not alone.
🫂😍🍀🌸😘❤️