What were you misdiagnosed with before OCD?

Can someone please tell me if there are any other similar diagnosis to OCD I am convinced that I was misdiagnosed or that I miss spoke to the extent that I have made the provider who did my psych evaluation misdiagnose me with OCD. I have intrusive thoughts of suicide constantly. I have intrusive thoughts that cause me intense distress and disgust. I am constantly ruminating for hours on different situations and even crying as I type this because I don’t know what’s wrong with me but I feel like I’m not aligned in a prescriptive way with what OCD is. I am extremely frustrated. I just want to know what is wrong with me And there are so many things that I see within the OCD community that align with my experiences, but I feel like from conversations I’m having maybe I’m just anxious or a flawed person and I’m not saying that for reassurance I really feel that way I don’t know what else to do. This is a recent diagnosis so anyone who has felt this way or has similar diagnosis to OCD it would be great to hear from you. Thanks.

Hi guys, This is my first post on here, as I’ve been scared to be vulnerable in this way. I’ve had a lifelong journey of mental health, diagnosed with a myriad of things, and misdiagnosed with others. When I got diagnosed with OCD, things started to click and treatment has been going well. There’s still a disconnect, things I do that are different than others and aren’t compulsion or obsession related. The reason I’m posting is to ask if anyone has been diagnosed with OCD/Autism and how you navigated that comorbidity. Thank you to anyone who shares

Some background: I’m a woman in my 30s who’s been struggling to find the right diagnosis for years. Since 2022, I’ve had multiple psych hospital stays, and with each stay came a different diagnosis and different sets of medications: Bipolar II, CPTSD, MDD with psychotic features, “high functioning BPD,” and most recently, Schizoaffective Disorder (depressive type). Before all of that happened, I had been seeing a therapist for CPTSD and AuDHD traits for 2 years, but after they left the practice, I struggled to find someone I trusted again. Most of my breakdowns happened during my last relationship. Looking back, I was in survival mode with them, leaving who *I* am behind. I got to the point where I started doubting my own reality from the abuse. This eventually added up and landed me in my first episode of psychosis. That combined with my attempts is what got me my schizoaffective diagnosis. After finally leaving that relationship 1.5 years ago, I’ve slowly rebuilt my life: new town, new job, new friends. Many of my old symptoms (major ones) haven’t returned, which makes me believe I may have been misdiagnosed due to reliving past childhood trauma and stress responses from the abuse. Through all of this, I’ve felt like nothing ever truly fit. I journal, I reflect, I replay the recordings and I’ve even watched old vlogs –the puzzle pieces still don’t come together. It’s left me feeling like I’ll never really know what’s going on, and I’ve started to fear that my diagnoses will just keep stacking up without ever leading to effective treatment. Recently, I opened up to a friend about this. She mentioned that her neighbor went through something similar not exactly like me but she thought it would give me a starting point—multiple diagnoses that never felt right—until a new doctor finally identified it as OCD. That one diagnosis changed everything for her. It made me realize I really don’t know much about OCD beyond the stereotypes. I didn’t know OCD could involve intrusive thoughts, rumination, or mental compulsions. My friend encouraged me to look into it, especially as I start searching for a new therapist. Facebook and Google lead me here… So now I’m wondering: could OCD be a better explanation for what I’ve been experiencing all these years? Questions for the community: 1. What steps did you take to find out if OCD was what you were dealing with? 2. If you had a long history of misdiagnoses, how did you finally find a clinician who got it right? 3. How did you advocate for yourself when people dismissed your concerns? 4. Is there anything you wish you had done earlier in your OCD journey? Thank you so much if you made it this far. I’m really grateful for this space and just want to start finding answers and the right kind of help.