- Date posted
- 1y ago
That talk therapy does not work, and if they think someone is experiencing OCD referring them to a specialist and sending links to resources to help them is the best thing they can do to help
- Date posted
- 1y ago
@Bee. Yes, my āmain therapistā ignored my thoughts/obsessions and just acted like I should just accept the thoughts.
- User type
- OCD Conqueror
- Date posted
- 1y ago
My therapist noticed I was having OCD symptoms and immediately tried to find someone qualified to help. It's the best thing she could've done.
- Date posted
- 1y ago
@Bee. Talk therapy was one of the worst things that my previous therapist did for me regarding my relationship ocd. It made me so panicky because I felt like I had to break up.
- Date posted
- 1y ago
@Bee. By talk therapy you mean psychoanalytical type of talk therapy ?
- Date posted
- 1y ago
I wish they knew how bothersome it is and how intricate. OCD is so persistent and it connects and leaches on to every action, thought, sentence, feeling, breath, touch, color, direction. It doesn't just leave. It's something so deep rooted and meshed into your perception of reality that you honestly don't know whats real anymore. I am so anxious that I can realistically function no more than 8-10 a day. We want to unravel it, like loosening up a knot and chip away layer by layer like, like opening up an onion.
- User type
- OCD Conqueror
- Date posted
- 1y ago
@ChangeisKing This comment is so true , everything is tide into our theme . Itās like at moments no escape . If we breath the wrong way , the thought may become reall , if we sit the wrong way . If we look at something for to long , if we donāt look at something at all , if we eat the wrong food , if we donāt eat at all or eat to much , if we think we came in contact with something they may make the thought become real . If we take our medication , if we donāt take it ā¦ itās like a battle of losses some days ā¦
- Date posted
- 1y ago
@Kayla37 ^ Itās all overthinking. I believe people with OCD are the smartest thinkers on Earth. But then it turned on us.
- Date posted
- 1y ago
@Kayla37 A lot of the time I call it a good day when the fear I'm stuck on is less agonizing and my anxiety is not literally making me not want to get out of bed or stand or sit or walk. I swear I'm going to get a six pack because of how constricted my stomach is every second. The what if thinking is unbearable sometimes. It's so hard to live life when there's another life your living in your head
- User type
- OCD Conqueror
- Date posted
- 1y ago
@SomaticSunš¤ļø Lol right , we were blessed with so much thinking that we now have ocd . The ultimate āthinkerā who tryās to outthinks us daily ! Lol š
- User type
- OCD Conqueror
- Date posted
- 1y ago
@ChangeisKing Yes ! I definitely agree ocd is like living two lives ! Iāve realized some days I literally will ignore OCD to the point where when I finally sit down & realized I had a good day & then OCD will unload all at once nick picking my every move that day . Itās truly exhausting, but here I am just swimming along lol š
- Date posted
- 1y ago
@Kayla37 Right? š
- Date posted
- 1y ago
That it isnāt a bully just an illness like any other illness so donāt be afraid of it or give it power!! š
- Date posted
- 1y ago
@Lavender Fields!! Then How do we stop it some of us got worse then better not in a way as to harm people or oneās self but why do we keep taking it out on others for what happen to us and sad part is itās been many years like 45 years how can this Hang on so long is it that much Problem s built up in side that we canāt let go??? I need this ERC more than ever but canāt afford it Covid has killed me I ran my self so far in to det no one will or wants to Help and me thinking I can do it all and fix everyone else in the process I need to have God Come Back and Fix everything Amenā¦ā¦..
- Date posted
- 1y ago
@BettlesBailey I ment ERP sorry for the confusion
- Date posted
- 1y ago
@BettlesBailey Make it your friend & donāt see it as a threat. You can accept/acknowledge the thoughts but not agree with them & let them go by not engaging or fighting with them. It takes practice & it a difficult but with time it can be done. Also, my meds are very helpful & a close relationship with God has helped to live a better more fulfilled life. šā¤ļø
- Date posted
- 1y ago
@Lavender Fields!! Meds can you drive truck on them???
- Date posted
- 1y ago
I wish all therapists knew what OCD is and looks like beyond the stereotypes, what mental compulsions are, the dangers of improper treatment, and that co-occurring conditions can make OCD look different than typical. I went through at least 15 therapists and none of them recognized it.
- Date posted
- 1y ago
@rachelpevsner Same. The dangers of encouraging mental compulsions and facing them until they donāt bother you. They are compulsions. They are to be ignored, not messed with.
- Date posted
- 1y ago
I agree. So many years down the drain ...and they should really have referred me out
- Date posted
- 1y ago
The skies are the limit as to where the rabbit holes, of trying to figure it out, will take a person. Trigger thoughts, feelings & sensations need trigger responses. This requires relentless efforts & commitment on the part of both patients and therapists.
- Date posted
- 1y ago
@Dee C Agreed! I just donāt know where I should put my efforts, in either allowing it, or working on ignoring it (which can be done, but requires mental muscle šŖ.) Many times, it goes on autopilot and I panic.
- User type
- OCD Conqueror
- Date posted
- 1y ago
Reassurance doesnāt work
- User type
- OCD Conqueror
- Date posted
- 1y ago
This is not about my very skilled NOCD therapist, but prior to my NOCD therapy I wasted several years and a lot of money telling my previous therapist all my worries. She didnāt tell me what to do, but the very act of telling her, saying my fear out loud, functioned as a compulsion, which was why my OCD didnāt get better. My skilled NOCD therapist caught this confessing compulsion, and my improvement was exponential ā¤ļø
- Date posted
- 1y ago
@VGH Wow I think I have this same issue of confessing. Since being in a relationship I've been mostly facing ROCD and always confessing to my boyfriend my obsessive negative thoughts about him and our relationship which obviously puts a very big strain... but whenever a thought comes I just don't know how to escape it and trying to ignore it feels impossible and trying to face it is just scary. The only thing that helps is talking to him about it but then it hurts our relationship because he takes it personally and then im left feeling guilty after I get relief from the compulsion and the cycle starts again š„
- Date posted
- 1y ago
@VGH I to did this with my talk therapist before I got a NOCD therapist. I felt like each session was just a reassurance session and when I left I felt like a weight had been lifted and then a week or two later all the weight was back.
- Date posted
- 1y ago
Compulsive counting with somatic OCD, like counting each breath. I just need the right advice. Iāve been told to actively disengage from it, but Iāve also been told to purposely do it. Purposely doing it only brings distress, and it goes on and on until I finally pass out from exhaustion. Trying not to do it takes some work, but sometimes it runs on autopilot. Is it a compulsion? And whatās the ERP for this? Thank you for listening
- User type
- OCD Conqueror
- Date posted
- 1y ago
@SomaticSunš¤ļø Hey, your comment resonated with me as in the past I was in a similar conundrum. A rule of thumb that works for me: whatās the function of the behavior? If itās to feel better, relieve uncertainty, relieve an āurgeā that I feel I must do, I assume itās a compulsion and I donāt do it, then I practice being willing to feel uncomfortable with the feelings that Iāve left something āimportantā undone. If, as part of an ERP exercise, Iām exposing myself to a behavior to ramp up anxiety to practice non-engagement, then I set a time limit where anxiety goes up, then stop counting and move on with things I value (taking that uncomfortable feeling with me).
- Date posted
- 1y ago
@VGH Hi @VGH I see youāve battled this as well. It is awful. As a Somatic OCD sufferer, of course paying attention to breathing is a big one. Particularly when trying to sleep (for me). Over the years, Iāve realized I can successfully fall asleep even while focusing on breathing, so then it just went away. But when my mind automatically started counting each breath, it has now brought the breathing back into focus, by counting each time I inhale. That DOES keep me awake, because counting is something you actively do, the number gets higher and higher, yet it can also go on automatically in the background. I hate it so much. The only way to make this stop, is by forcefully not letting my mind do it, but that, in itself, feels like a difficult job. You know how they say donāt think of a pink elephant? Itās like donāt pay attention to the fact that youāre counting each breath. And believe it or not, I can do it. It just takes so much mental discipline, and sleep becomes this tug of war. I donāt even know if the counting part is a compulsion, or just an āadd-onā to the original breathing game, so it can make a comeback with counting each breath and that right there has brought the focus back to an OCD game that Iāve conquered- the breathing game. Now it has counting attached to it. Itās hard to postpone it, when all youāre trying to do is fall asleep. You see how tricky this one is? Thank you š
- User type
- OCD Conqueror
- Date posted
- 1y ago
@SomaticSunš¤ļø I understand ā¤ļø and sometimes all of the trying to decide how to handle it adds to keeping it front and center in my mind. When I was in therapy my therapist very skillfully caught my subtle compulsions of wanting to be sure I was handling each trigger correctly. She would often tell me āyou know what to doā. So I landed on telling myself I would do nothing and revisit it in a set amount of time. I started with 2 weeks. I decided I would not do any compulsions for two weeks. A funny thing happened, way before 2 weeks I had clarityš¤¦āāļø
- Date posted
- 1y ago
@VGH I see what you mean and I do that too.. trying to figure out which part is the obsession, which part is the compulsion, do I engage? Do I ignore? How can I relax when Iām trying NOT to do something? I think I do know what to do, like you said. And your therapist. Not do it. Even if it takes some effort. And when it wins, just go back to not doing it. Automatic mental compulsions are hard to beat, but that doesnāt mean they are unbeatable. Yes? Thank you so much. The advice to āpurposely do itā .. thatās what almost landed me in mental hospital. Actively allowing mental compulsions makes you feel like your mind has total control over you. Thanks again
- User type
- OCD Conqueror
- Date posted
- 1y ago
@SomaticSunš¤ļø Thanks to you tooā¤ļø, itās helpful to talk through it with someone else who has been through it.
- Date posted
- 1y ago
@VGH What is the point of mental compulsions, if they donāt even bring relief? They only bring me stress. Iāve never understood that. Like I get mad at my own mind for wanting to repetitively check or review something by counting, (somatic stuff) -thatās not a normal mind. It bothers me so much. I wish there was just a way to make it g-o-n-e.
- User type
- OCD Conqueror
- Date posted
- 1y ago
@SomaticSunš¤ļø I know, I guess our brains like patterns and repetitions. The thing is itās a lot more common than we realize, and it truly does get better over timeā¤ļø
- Date posted
- 1y ago
@SomaticSunš¤ļø @SomaticSunš¤ļø Hello. I agree with VGH. Trying to find the perfect way to react to the breathing compulsion can in itself become a compulsion. It sounds like a lot of work. Somatic stuff like that can be really hard as I understand itās like you donāt know what to do with your attention. Thereās a nice metaphor which is like about the black chess pieces vs the white āļø. At the moment it sounds like you are battling each other. But what if you could become more like the board? Observing the activity but not engaging with it? I wonder if you can make it OK for the automatic compulsions to be there at bed time? And have some compassion for yourself. Trying to force attention somewhere can do just the opposite like you said. The brain is so used to counting that itās going to throw it up at bed time because it knows you engage with it. But what if you could observe your mind, like itās a screen? Sometimes before bed I do a gentle meditation of āI am not the body, I am not the mindā. Etc. as long as it isnāt a compulsion lol. Meditation during the day could be useful. You can imagine the mind as an annoying person just yelling trying to get your attention. With OCD itās not about controlling what the mind or body does. Itās about becoming OK with any uncomfortable thought or feeling. Anything somatic though, itās good to get yourself out your head throughout the day too, so itās easier at night, e.g doing physical excersise, doing chores, getting in your body etc. but as someone else said, sitting with the discomfort is what ERP is all about. good luck!
- Date posted
- 1y ago
@spyro Thank you, very good info :)
- Date posted
- 1y ago
@spyro Ok this sounds like something that I should try amen before I make every one crazy mad at me ā¦.
- Date posted
- 1y ago
Sadly, in india, there aren't that many good ocd specialists, even more around where i live. I have hocd. I have visited a psychiatrist just once, and while her diagnosis was correct, she started talking about effeminate men and experimenting. I am not effeminate, and experimenting is probably the last thing one should do. Hearing that made me realize i have learnt more from online research myself.
- Date posted
- 1y ago
Im sorry , this platform is really your best bet, honestly worked better for me than therapy anyway. You are doing the right thing
- Date posted
- 1y ago
That ERP isn't just about willpower. That some of us are struggling with other disorders as well. That logically we can understand something but still struggle to act on it, even if the willpower is there.
- Date posted
- 1y ago
Yeah especially when the other things going on, like I also have ADHD so it's extra challenging
- User type
- OCD Conqueror
- Date posted
- 1y ago
That it's essential to include and educate mainstay family members to enable them to intelligently support the patient's at home ERP process.
- Date posted
- 1y ago
@Christy J True !
- Date posted
- 1y ago
Even 'silly' obsessions are super serious concerns for ocd sufferers so please don't get exasperated as those small silly things can become the most important thing in an ocd patient's tunnel vision
- Date posted
- 1y ago
That ocd is hard and itās not something that therapists understand that we canāt just stop rituals and itās not that easy to jus5tādo the exercisesā
- Date posted
- 1y ago
That past inappropriate therapy has really affected me. I now have shame and mistrust issues about being in therapy that compound ideas around receiving help. Working through that is part of my struggle.
- User type
- OCD Conqueror
- Date posted
- 1y ago
@gixmo Iām sorry to hear that. I just want to encourage you to keep moving forward. Recovery is hard work, but we are truly working toward the life we deserve to live (even if it doesnāt feel like it)ā¤ļø. Take care!
- Date posted
- 1y ago
I wish more therapists understood the variety of ocd. All my obsessions I've never opened up with a therapist. I don't imagine ever being able to explain to a therapist about something like pocd
- User type
- OCD Conqueror
- Date posted
- 1y ago
That there's more than contamination OCD!
- Date posted
- 1y ago
That there is less awareness about OCD and that only certain therapies work for it.
- User type
- OCD Conqueror
- Date posted
- 1y ago
Thereās more to it than accepting uncertainty. In the past, I worked with a therapist for years and made a lot of progress, but his sole response to me was āYou need to accept that those thoughts may or may not be you.ā Over time, this destroyed a piece of me as it was never coupled with genuine care or acknowledgement of how hard it was for me. I felt like I lost myself at times because I became so obsessed with thinking it could be me that this became the new compulsion (reminding myself over and over this could be me and I need to accept it). My current therapist through NOCD has actually acknowledged my feelings and taken the time to tread lightly when Iām visibly struggling. That has meant the world. There is a way to do this effectively without it being reassurance.
- Date posted
- 1y ago
That just because you have OCD, not every problem or situation is OCD. There can be trauma involved, you could just be lonely or sad, etc.
- Date posted
- 1y ago
I have always wished that OCD specialists would talk more about harm OCD. I have suffered from it for decades. Itās horrible! Itās starting to be discussed more in podcasts and more but the OCD that involves hand washing and germs, etc. always seem to get the most attention. I would give ANYTHING to have one of those forms of OCD than the HARM version I have!
- Date posted
- 1y ago
I wish they new that 87% of people with ocd are misdiagnosed before receiving the correct diagnosis. Oh and that just because someone who looks female is expirencing severe anxiety and suicidal thoughts DOES NOT automatically mean they have borderline personality disorder.
- User type
- OCD Conqueror
- Date posted
- 1y ago
That you should end the therapy on a positive note. I emailed my therapist to apologise that I could not continue due to money issues and thanked her for everything. She hasnāt bothered emailing back and I canāt message her any more as itās ended the treatment. She hasnāt even sent me a message of encouragement and it has left me so disheartened if I want to carry on treatment in the futureā¦
- Date posted
- 1y ago
@tashk I agree, you should have had a message of positive closure. It is hard to trust after something like that. I hope you can explain it to another therapist & find what helps you. ā¤ļø
- User type
- OCD Conqueror
- Date posted
- 1y ago
@tashk I had the same experience and now with another NOCD therapist.
- User type
- OCD Conqueror
- Date posted
- 1y ago
@tashk I understand how you feel, I was late to a few of my appointments I had just had a baby so sleeping had been very hard and sometimes would be hard to make it to my appointments on time, I scheduled only husband birthday and did not even realize I did and told my therapist and he threatened me with a fee and wasnāt understanding at all. The other time I had to reschedule my baby was sick, as if I couldāve predicted that would happen after I had already scheduled, and than soon after I got sickā¦.. so I say they need to be more understanding!!! This was why I left my therapist. Apparently I was at the end of treatment anyway and was doing great all of a sudden so it was time for me to leave him but I need another therapist who understands I also have anxiety, oh and a therapist who also doesnāt blurt out to me in the middle of talking āthis is not talk therapy this is NO OCD therapyā find me a decent therapist not like this on this app I will definitely be happy!
- User type
- OCD Conqueror
- Date posted
- 1y ago
@Itzjuzash This makes me really sad, as if having a baby isnāt a tough enough experience! I can imagine how little time you had to do the ERP and also it took me so long to engage with it as I was so frightened of my feelings so it was more like talk therapy for a while and thatās exactly what I needed! My husband told me to be careful as they would be money driven and I refused to believe it at the time. Sadly he was correct. Hope you find a more caring therapist xx
- User type
- OCD Conqueror
- Date posted
- 1y ago
@tashk Thank you Iām searching for a therapist that can give me talk therapy
- Date posted
- 1y ago
That its not the therapists job to fix the ocder, that the person has to find their own ways of facing their fears, and doing exposures is not something to be crossed off a to do list. I wish therapists would have more understanding that letting go is really hard sometimes
- User type
- OCD Conqueror
- Date posted
- 1y ago
That anxiety is involved for some people and they should help treat that to
- User type
- OCD Conqueror
- Date posted
- 1y ago
That the intrusive thoughts are opposite of person with OCD
- User type
- OCD Conqueror
- Date posted
- 1y ago
That structure and direct communication are needed, when dealing with something that defies logic and reason. I can talk in circles for an hour about my ocd but I need to be pulled back in
- Date posted
- 1y ago
I really wish more therapists knew that sometimes our OCD can carry into our ability to work, and I wish therapy were more accessible for that reason. My OCD is crippling and makes it nearly impossible to work a job, but I can't get help because I can't earn money to pay a specialist.
- Date posted
- 1y ago
Avoiding OCD thoughts or just trying to distract self from them does not help. I also wish every therapist was educated on the diversity within OCD (they donāt need to know how every form of OCD looks- just the way the thought patterns work and that there is much variety) and the fact that stereotypical talk therapy may not work.
- User type
- OCD Conqueror
- Date posted
- 1y ago
I wish non-erp therapists had the ability to identify ocd and the humility to not try to treat it. I spent four years in general talk therapy, undiagnosed then diagnosed and ātreatedā with general cbt, before getting help with NOCD. Two months of erp and I feel healthy for the first time in years in a way i never did through normal therapy. I regret the wasted time as it was unnecessary and if therapists respected that ocd is not an anxiety disorder but a beast of its own, less would suffer
- Date posted
- 1y ago
Don't listen to stats or anything external or otherwise saying you can't. You can get better and faster than recorded stats. You can prove it all wrong.
- Date posted
- 1y ago
I wish they were positive and tell us āyou got this, you can do it!ā, not the āmaybe you can, maybe you canāt.ā I feel like besides therapy, thereās POSITIVITY and ENCOURAGEMENT.
- Date posted
- 1y ago
How damaging validation is to OCD patients.
- Date posted
- 1y ago
That OCD can come in the form of needing to be under the covers all day in bed
- Date posted
- 1y ago
.
- Date posted
- 1y ago
That it's not easy to just ignore the thoughts.
- Date posted
- 1y ago
Iād like to know how therapists would treat sexual intrusive thoughts and sexual trauma.. cause I am going in circles between m trauma and ocd and itās exhausting and making one or the other worse
- Date posted
- 1y ago
How can I take a call after makeing a time slot for one how should I answer it
- User type
- OCD Conqueror
- Date posted
- 1y ago
How to combat the waves of anxiety/anxious thoughts after an exposure making you want to undo the exposure/progress I just made.
- Date posted
- 1y ago
That it makes me feel stuck or frozen like I canāt do anyting
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