How many of you have are seeking professional help for OCD ? Are there people too who have not been diagnosed by psychiatrist of having OCD but presume himself/herself that he/she has OCD??

Ok, so first of all, I’m undiagnosed. However, I’ve been pretty certain for a while now that what I’ve been struggling with is OCD. My problem though is that it’s not easy to get diagnosed, and in some cases, it would require me to pay money. It frustrates me that I have to pay to deal with my mental health. Is it worth it for me to get diagnosed? I know I don’t need a diagnosis to start healing and working on these things, but I also don’t want to be “self diagnosing” the problem, because that makes me feel like a liar and an imposter. My other problem is that I fear my family doctor won’t properly diagnose me. I came to him about mental health related issues once before, and he read off a very generic list of mental health symptoms. when he got to what sounded like the ‘OCD’ section, we asked one or two very generic questions that had nothing to do with my themes, and since I couldn’t relate, I just answered no to them. He then told me I was fine, that I was just a “type A personality”, and that I was just being too hard on myself. I fear that my doctor might not be very knowledgeable or up to date on current information regarding OCD, and this might make it increasingly difficult for me to get diagnosed. Another problem is my symptoms seem to come and go. I often have an obsessive cycle that can last months at a time, and then it just goes away. Sometimes I won’t experience any symptoms for years. This makes me feel like I don’t actually have OCD or that it’s not ‘bad’ enough to be diagnosable.

I'll start by saying, I have not been clinically diagnosed, as I do not have the funds to see therapists or psychiatrists in my current situation. Once I'm in a better spot, I very much intend to. That to say; after months and months of having issues with anxiety, specifically health related, my partner was the one that mentioned OCD. I did have some somewhat OCD related behaviors in my youth, though those likely could be explained by potentially undiagnosed ASD (as my mother is on the spectrum as well as a sibling, both diagnosed.) But I never considered OCD taking form in a health sense. I posted earlier about how I've had 4 days of pretty minimal anxiety and intrusive thoughts, and it has led me to doubt the OCD label I've been working at treating? I don't want to be the person that identifies themselves with a disorder they don't have, which is why I hesitate to self diagnose with OCD or ASD or anything else. At the same time, I've read that a lot of even clinically diagnosed people with OCD doubt their diagnosis. It makes me wonder if I will always have this doubt, and if that means it is worth it or not to get tested? I know that if I do, they can actually do ERP (whereas I've been self taught and self guided so far) so that would be worth it...

Some background: I’m a woman in my 30s who’s been struggling to find the right diagnosis for years. Since 2022, I’ve had multiple psych hospital stays, and with each stay came a different diagnosis and different sets of medications: Bipolar II, CPTSD, MDD with psychotic features, “high functioning BPD,” and most recently, Schizoaffective Disorder (depressive type). Before all of that happened, I had been seeing a therapist for CPTSD and AuDHD traits for 2 years, but after they left the practice, I struggled to find someone I trusted again. Most of my breakdowns happened during my last relationship. Looking back, I was in survival mode with them, leaving who *I* am behind. I got to the point where I started doubting my own reality from the abuse. This eventually added up and landed me in my first episode of psychosis. That combined with my attempts is what got me my schizoaffective diagnosis. After finally leaving that relationship 1.5 years ago, I’ve slowly rebuilt my life: new town, new job, new friends. Many of my old symptoms (major ones) haven’t returned, which makes me believe I may have been misdiagnosed due to reliving past childhood trauma and stress responses from the abuse. Through all of this, I’ve felt like nothing ever truly fit. I journal, I reflect, I replay the recordings and I’ve even watched old vlogs –the puzzle pieces still don’t come together. It’s left me feeling like I’ll never really know what’s going on, and I’ve started to fear that my diagnoses will just keep stacking up without ever leading to effective treatment. Recently, I opened up to a friend about this. She mentioned that her neighbor went through something similar not exactly like me but she thought it would give me a starting point—multiple diagnoses that never felt right—until a new doctor finally identified it as OCD. That one diagnosis changed everything for her. It made me realize I really don’t know much about OCD beyond the stereotypes. I didn’t know OCD could involve intrusive thoughts, rumination, or mental compulsions. My friend encouraged me to look into it, especially as I start searching for a new therapist. Facebook and Google lead me here… So now I’m wondering: could OCD be a better explanation for what I’ve been experiencing all these years? Questions for the community: 1. What steps did you take to find out if OCD was what you were dealing with? 2. If you had a long history of misdiagnoses, how did you finally find a clinician who got it right? 3. How did you advocate for yourself when people dismissed your concerns? 4. Is there anything you wish you had done earlier in your OCD journey? Thank you so much if you made it this far. I’m really grateful for this space and just want to start finding answers and the right kind of help.