- Date posted
- 47w
Medical Appointments
Since i started explaining to my medical providers about my OCD, I have had 2 thank me for bringing it up because they feel like it helps them treat me better.
Since i started explaining to my medical providers about my OCD, I have had 2 thank me for bringing it up because they feel like it helps them treat me better.
Do you have health ocd as well? I’ve been dealing with it for about a year and the first doctor I went to didn’t really help. I started therapy and was able to make progress but recently have been going through a bit of a relapse. I switched providers and have an appointment this Thursday but I’m a little nervous about how to bring it up. Do you have any advice/tips?
@hopefulsunny yes, my health ocd is strong. I have just started out by saying that I want them to know about my ocd and that sometimes conversations that they just share can be distressing to me and I would like it if they ask first. Like if they prescribe a drug, don’t tell me the side effects unless I ask (I can read the directions later) or it could start a loop and the rest of the appt is lost. Of course sometimes someone says something they don’t remotely know will be hard for me, but I have skills and I can usually get past it in the moment. One person even asked questions that showed they really were thinking about my situation and planning a way to help. So nice. Best of luck. I would like to know how it goes.
@gixmo Thank you! Are you currently in therapy or on medication? I’ve been in therapy since November of last year and was making progress but am now struggling and have to go back to basics. I’m thinking of starting medication because of how strong the feelings are this time around.
@hopefulsunny I am in therapy now and practicing my ERPs. It has been a stressful year and we thought about meds, but I am waiting to see if I level out as the stress goes down before trying that. With health concern OCD I am not always thrilled about medication. There’s the irony. But I have had good results with sitting in uncertainty lately. I would still consider meds if I spike or struggle more. I talked with some good consultants. Good luck !
@gixmo Sorry to bother you again. I just saw my new doctor and he was very nice. He was super understanding and while I explained what I was going through there was still a lot I didn’t share. There’s so many sensations that I didn’t bring up because the majority of them only started happening after I got this theme. And they tend to subside when I hyperfocus on another part of my body. I also spoke pretty generally about my health anxiety not my specific health fear. I don’t know what it is but every time I go to the doctor or when I have to say my thoughts and concerns out loud I suddenly feel crazy and choose not to say anything. If you have any advice, I’d really appreciate it!
@hopefulsunny Glad you brought it up! It always feels hard for me since i decided to bring it up to medical folks because some (for whatever reason) don’t get how much it comes into play. And after years of avoiding even making appts then never bringing it up, I still feel closer to being in charge of what I need for a successful appt. If they can’t help me when I tell them my needs, I look for another provider. You deserve to get theBEST most helpful treatment. Keep advocating. And practice - I write down what I am going to say and read it to myself before I go.
Mine don't seem to care. They don't understand it at all.
@Anonymous I have had those. One sent me into a huge down slide and I switched immediately. I reminded one other person too because they are in such a rush and it slowed everything down and I got better answers. It is hard to add in to the rest of it.
My struggles with OCD began in childhood, but it wasn’t until after giving birth to my first child at 30 that I finally received a diagnosis. For years, I suffered in silence with intense anxiety, insomnia, and intrusive thoughts, but because my compulsions were mostly mental—constant rumination, reassurance-seeking, and avoidance—I didn’t realize I had OCD. I experienced Pure O, where my mind would latch onto terrifying thoughts, convincing me something was deeply wrong with me. After my son was born, I was consumed by intrusive fears of harming him, even though I loved him more than anything. Seven weeks into postpartum, I hit a breaking point and ended up in the emergency room, where I was finally diagnosed. For the first time, everything made sense. I didn’t discover exposure and response prevention (ERP) until years later when my son developed Germ OCD during COVID. I went through the program myself first, and it completely changed my life. ERP helped me sit with my intrusive thoughts instead of reacting to them, breaking the cycle that had controlled me for so long. Life isn’t perfect, but it’s so much better than before. I can finally be present instead of trapped in my head. Now, I’m working on trusting myself more and handling challenges without fear of “losing control.” As I prepare to help my daughter start therapy, I feel empowered knowing I’m giving my children the support I never had. If you know you have OCD but haven’t started therapy yet, what’s holding you back?
I finally found the courage to seek a psychiatrist last week, when I got there I was nervous for obvious reasons and felt a bit guilty. I met the doctor and don’t get me wrong he was very nice and knowledgeable in the bigger scope of mental health. Asked me questions of depression, anxiety, if I see things others don’t etc.. However, while we went through the assessment I did not receive a formal “diagnosis” and seemed as though he came to the determination what I have is general anxiety disorder. I don’t disagree, I know I have anxiety! However, when it came to the point where we were wrapping it up I had a “BUT WAIT” moment. I explained I was a part of an OCD community where I had previously been doing therapy to manage OCD. He asked “well why OCD?” I replied, “I have constant thoughts very repetitive thoughts that follow a theme and they are extremely persistent.” It was then I knew I couldn’t let down the walls and go into depth, as I knew he wouldn’t understand. To validate what I already knew, I said “I have constant fears and worries about my children, myself, and religion. I think about these things all day long. In order to free myself from the feeling I have to say a specific phrase or word in my head.” He said “well yea that’s normal to have worries and fears about your family, your religion” and so forth. The feeling of disappointment is an under statement, this is more than just “anxiety” this is something that I struggle with daily and to have a professional discredit my daily fight was off putting. Not his fault, it demonstrates the lack of knowledge for OCD and treatment many of us have to face. Sorry for the rant, sometimes we just have to advocate for ourselves.. 🌸
I was super recently diagnosed with OCD and nervous to share my diagnosis with my family. I’m a somewhat messy person and don’t have germophobic tendencies, so since I don’t have the stereotypical OCD presentation I was terrified that nobody would believe me. I ended up talking to my mom and making a silly TikTok post about it, which my grandma saw. Not only did they believe and support me–I learned that my grandma has it too! Funny to look back on, but really cool to see that the worst outcome doesn’t always happen. (:
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