Medical Appointments

Hi everyone! I’m feeling better today. I had a really bad flare yesterday, my husband really helped me calm down and fall asleep. However, if you have health OCD I feel like you probably shouldn’t read this post unless you are in a good head space. I do not have health OCD. So, I’ve been dealing with a lot of symptoms and health issues that have led me to alot of doctors visits, I have several different doctors that specialize in specific things and now go to an internal medicine doctor. My doctor thinks I have an autoimmune disease, so I’m running alot of tests for several different autoimmune conditions. My OCD has been dormant for a while. I would still deal with it sometimes, but it was way easier to manage. I’m not medicated for OCD. However, I do use arthritis cream and was prescribed muscle relaxers, I have not yet taken the muscle relaxers. So I had a really bad OCD flare last night, specifically Relationship OCD. My husband has just seen parole and I’m super excited for him to come home, but my OCD was trying to convince me otherwise. I also have a new nephew that was born on the 22nd. So I am out of state and was watching my niece for my sister in law. A lot of exciting things happening at once. I’m assuming that triggered my OCD. But I’ve been swelling in my face and dealing with a little bit of body pain as well. Autoimmune diseases come in flares like OCD. I have done some research on autoimmune diseases so I can know what I need to do in order to keep it under control if that’s what I do get diagnosed with. I learned that some autoimmune diseases are linked to OCD, or can even cause OCD because of inflammation in the brain. & It gave me a glimmer of hope honestly. Could my OCD have started because of an autoimmune disease? Could I get better by treating it? My OCD didn’t kick start until I was about 19. I am now 23. I did have symptoms of OCD at 17 though, I went through a period of time where I was compulsively praying and in a cycle of intense anxiety. So I probably had it since I was 17, but I don’t know. My symptoms of autoimmune disease didn’t start until about a year ago, but it could’ve been longer. I couldn’t get rid of a UTI I had for MONTHS & didn’t know why. I had to see a urologist, I was 21 when I kept getting UTI’s. I had to get a procedure done, I had pus build up in my urethra that was almost completely blocking off my urethra. I do not know how the infection got that severe.. especially because I took antibiotic after antibiotic. I felt like I’d get better for a few days, then boom…UTI symptoms once again. So.. that could’ve been the start of autoimmune symptoms. With an autoimmune disease, your immune system is pretty trash. You don’t fight off infections or illness as easy as others. I remember how I’d get sick after everyone else in the house would get sick, but I’d get it so much worse and have the illness for much longer than everyone else. Surprisingly enough, I never got COVID. My whole family had it & I didn’t get it. Unless I did and just didn’t have symptoms. Anyways, I never thought I would say this.. but I hope I do have an autoimmune disease that caused OCD so that I can treat the autoimmune disease and keep my OCD dormant for as long as possible. I forgot what it was like to deal with OCD.. it was so bad lastnight, I remember feeling that type of anxiety and it’s the worst.. 💔 If you took the time to read, thank you! I seem like a charity case lol.. I never thought by 23 years old I’d be like this.

I finally found the courage to seek a psychiatrist last week, when I got there I was nervous for obvious reasons and felt a bit guilty. I met the doctor and don’t get me wrong he was very nice and knowledgeable in the bigger scope of mental health. Asked me questions of depression, anxiety, if I see things others don’t etc.. However, while we went through the assessment I did not receive a formal “diagnosis” and seemed as though he came to the determination what I have is general anxiety disorder. I don’t disagree, I know I have anxiety! However, when it came to the point where we were wrapping it up I had a “BUT WAIT” moment. I explained I was a part of an OCD community where I had previously been doing therapy to manage OCD. He asked “well why OCD?” I replied, “I have constant thoughts very repetitive thoughts that follow a theme and they are extremely persistent.” It was then I knew I couldn’t let down the walls and go into depth, as I knew he wouldn’t understand. To validate what I already knew, I said “I have constant fears and worries about my children, myself, and religion. I think about these things all day long. In order to free myself from the feeling I have to say a specific phrase or word in my head.” He said “well yea that’s normal to have worries and fears about your family, your religion” and so forth. The feeling of disappointment is an under statement, this is more than just “anxiety” this is something that I struggle with daily and to have a professional discredit my daily fight was off putting. Not his fault, it demonstrates the lack of knowledge for OCD and treatment many of us have to face. Sorry for the rant, sometimes we just have to advocate for ourselves.. 🌸

I was super recently diagnosed with OCD and nervous to share my diagnosis with my family. I’m a somewhat messy person and don’t have germophobic tendencies, so since I don’t have the stereotypical OCD presentation I was terrified that nobody would believe me. I ended up talking to my mom and making a silly TikTok post about it, which my grandma saw. Not only did they believe and support me–I learned that my grandma has it too! Funny to look back on, but really cool to see that the worst outcome doesn’t always happen. (: