Struggling

Hey folks, I know I shouldn’t post here and I know what I’m looking for when I do but I just feel so at a loss and OCD is playing the old trick of telling me I don’t have it which I guess is what it’s been doing for a while. My OCD started with a health obsession when I was 12 (I’m 22 now) but went away after a couple of months but didn’t present itself again until I was 17. I thought I had a degenerative disease and struggled with that day in and day out until I eventually accepted that I was going to die and made peace with it and then of course I kept living. OCD was pretty quiet for a few months after that. It would show itself when I had headaches and random aches and pains but it never hooked me as bad. Quite funny actually but I had a weird thing for a couple of months where every time I would go out for a drink I thought I’d wet myself so I’d stand in the bathroom for like 20-30 minutes at a time and that was multiple times across the night. Then in 2021, the theme shifted. I remember it distinctly, I was just lying in bed and a question appeared and that was it. My anxiety was really bad for about a year and then I met my girlfriend and we started dating. OCD went quiet until she moved to another city for university and I started to worry she was being unfaithful or didn’t love me anymore and things like that. With that obsession it kind of came to a head where I realised I either had to fully trust everything despite any doubt I felt or I’d lose her and so it just eventually started to pass. I’ve had a few occasions where I question my love for her and that really hurts because I’m pretty sure I’d be lost without her. That comes and goes though and it usually has to do with a general numbness that I feel after an OCD spike. The theme from 2021 (which I won’t say because I’m somehow worried that someone I know will see this and I will definitely wonder if people near me have seen this post despite it being pretty closed off.) never left but I was somehow able to put it to the back of my mind and get to a point where I was okay. I got a new job in 2024 at a point where I maybe was not ready. New place, new people and for the first 2 months or so it was fine. I even saw some potential triggers before they happened and did my best to ignore them. I got really drunk on a staff night out and when I woke up a lot of what ifs filled my head and I’ve been on my back since then. That brings us to now, my OCD has been pretty bad for about a year now but the weird part (and what I’m making this post about I guess) is that it feels different this time. I know that’s a super common phrase for people with OCD that therapists hear all the time and I have actually taken that piece of information as reassurance a few times over the years but it’s true. I feel so much more confused. I can’t even really explain it. It feels like my brain doesn’t engage or deny the obsession the same way as it used to and of course that makes me believe it’s real and I never actually had OCD. Instead, I’m left with thoughts that don’t give me that sharp feeling of anxiety that they used to and instead just leave me feeling super low and often angry just wishing it would go away. I think it’s probably because I’ve been at this for so long and had the same theme for years and so I’ve in a way habituated to the anxiety and that’s what rationally makes sense to me but like you all know, you can’t reason with this thing. It’s like it gives me just enough anxiety and depression to keep me on the hook and make it feel real but not enough send me into panic like it used to. I used to lie in bed, unable to get up and wishing that I was dead. I guess that now because I don’t feel that way, at least most of the time, my ocd is using that as a way to tell me I never really had it. Also I think I used to rely so heavily on reassurance but now know that I shouldn’t have it I try to avoid it. Without it though, it all feels real and I feel like eventually I will lose myself fully and that’s a fear that makes me feel unfathomably hopeless and makes me dread the future when I used to have dreams and hopes for myself that I looked forward to fulfilling. I don’t want to be big-headed, I just genuinely feel like I could’ve had a really great life and that’s gone now because of this thing. Anyway I just wanted to kind of use this post to get my head straight and map out something that I couldn’t quite explain effectively in therapy. I appreciate everyone who sees this but ask not to give me reassurance, I know we all empathise with each other but I’ve been at this long enough to know that it does none of us any good. I hope everyone is doing well, keep your head up. They tell me there’s a light at the end of this tunnel.

Hiii! This is my first post. I found NOCD through a tiktok ad that spoke to me. It was titled signs you didnt know were OCD or something like that, and one of the slides was “checking my pulse throughout the day to make sure i was okay”. This is something ive done for i dont even know how long. atleast 10 years, im 24 now. Ive always known Ive had OCD. Light Sanitation OCD runs in my family. But over the years ive started to realize i had way more than the “family trait”. Checking my pulse 40+ times a day is something i refer to as my “OCD tick”. Its to the point where people who dont know about my “tick” often ask if i am okay when they see me do it. Maybe this post is me putting it on paper for the first time so i myself can analyze but some other stuff i struggle with are: Often having thoughts of if i dont do A, B will happen. An example that is common for me is “if i dont refold this shirt me and my boyfriend will get into an argument” or if im out to dinner with a friend, “if i dont pick up this cup and place it back down, i will get into a car accident on the way home”. This is one i struggle with almost everyday, especially when im around people (work or outings). This compulsion happens multiple times a day. Now in my life i try to practice exposure therapy, even getting annoyed i feel the compulsion and think to myself “oh my god this is so stupid no!” but if i dont follow through i feel guilty. often when i get my next compulsion shortly after i tell myself “okay doing this will make up for not doing the previous one”. I definitely dont have a number based OCD, but i would have to pick up and put down the cup until it feels “right” or “correct”- same with checking my pulse. I have to check my pulse until the feeling is “just right”. With sanitation as i said before, i have a very clean and sanitary family, although mine is more severe than their feelings. I avoid touching certain surfaces after i have washed my hands, such as the front door knob, or living room tv remote, etc. If i need to touch or use these things, i have to immediately wash my hands again. Even if someone comes home and asks me to go and lock the front door ill often respond with “i cant i just washed my hands, if i lock the door ill have to rewash my hands”. thankfully my family is very understanding. I often feel like certain things are contaminated. For example when i come home i sanitize my phone immediately as it is contaminated from being outside of my house. I often have a feeling of something having to feel “just right”. If i go out to dinner i have to be the first to pick what seat or side of the booth im sitting on before the rest of my family sits down or i will feel anxious the whole dinner. Sometimes when im typing i have to back space and retype the same word over and over until i feel i typed it “just right”- even if i didnt make a typo. sometimes when i am driving and space out i often think “oh my god did i just hit someone” when there is no evidence that i have. it worries me. I think oh my god i mightve done a hit and run. But tell myself it can not be possible, theres no police chasing me, no honking, or anything. It is scary. this one is very rare. once in a blue moon i get a false memory. A main one ive felt since i was a kid is if someone or some object touches any part of my body, for example my left arm, i have to have them or atleast my self touch my right arm in the exact same way or i feel uneasy. this isnt with every single touch, but mainly when i feel triggered- although i never know what triggers a moment where i need the symmetry. I guess ive always known, i am very honest with my family, friends, and boyfriend about it. But i didnt start to realize how neurodivergent i was until asking some friends “you never randomly feel *insert compulsion*?” and they say never in their life have they felt like that. Im very self aware and have come to an acceptance with all these things, although it is debilitating. Periodically i think, wow it must be nice to not live life with these feelings but oh well. To be honest, downloading this app is the first step ive ever taken to find out more about OCD. Ive always kind of just been like “yeah i definitely have OCD but okay” more or less.

Just stumbled across this app/community. I've been struggling with just right or perfectionist OCD for several years. Im 47 and I've had a pretty successful life, ironically because of some of my OCD traits; attention to detail, organization, perseverance, etc. But about 4-5 years ago, without any specific trigger, I started noticing more... let's call them errors. Errors in just about everything. These errors led to compulsive behaviors to "fix" them. Place the can down again, "right" this time. That piece of trash didn't land "right" in my trash bin, take it out and do it again. But really it started happening because of me physically touching or manipulating things, or really anything that involved fine motor control. Picking things up/placing down, turning switches, knobs on/off, opening/closing doors, cupboards, cabinets, using a mouse, putting on and taking off clothes, brushing teeth/hair, drying my body after a shower, pressing buttons on my phone, buttons on my shirt, pants zippers, etc. I mean, you name it. I've never had the type of classical OCD where I obsessively washed bc I was worried about germs or intrusive thoughts about my family dying. I had anxiety about the compulsing itself, or specifically avoiding certain actions so I wouldn't start compulsing. So I was kind of lost for awhile. Then I'll never forget reading this article about just right OCD and getting tears in my eyes. It was a point of some validation that others had similar symptom clusters or patterns. Not that I'd wish these compulsions on anyone! I've started seeing a therapist and taking an SSRI. Don't really like the therapist and I don't really feel like the medication works. Plus I don't like the side effects. Night sweats and sexual side effects. But, I have had some moderate success with different types of mental tricks. Essentially some self taught ERP. Little mantras I use like "not down, but forward" as in stop slowing down and laser focusing on every step, every detail and move forward, physically and mentally. Remembering that compulsions come with the idea that they provide comfort or a good feeling, when in reality, moving through a chore or task without compulsions or repetitive behavior is f**king amazing. Remember and chase that feeling. Watching the uncomfortable feeling float away or specifically identifing that feeling where my mind wants to stop and restart a motion of or an action and ignoring it to "rewire" my thinking. And distraction. Distraction is a big one too. Those are a couple of things that have worked for me. Im by no means better... I still struggle every day. And it's exhausting. This disease makes me feel so stupid and it's embarrassing and frustrating. But I've had some glimmers of hope lately and i KNOW that i can overcome it. Get back to the ass kicker in life, and with my family, and in the gym, and at work, that i know is inside of me still. Anyway, I think typing some of my journey out has been helpful so thanks for reading.