- Date posted
- 22w
Talk?
Just kinda need to vent.
Just kinda need to vent.
heyš¤what's going on?
My body is being stupid. Stuck in a wheelchair cuz I can't walk TwT
@š¤SavageGirlš¤ - https://app.treatmyocd.com/community/posts/2169500
@š¤SavageGirlš¤ sorry that you're struggling :( it must be really frustrating!!
@moon027097 - It is, and my OCD is like "Quit lying about this, you're fine, there's nothing wrong with you so stop faking!" (All the tests have been coming back normal)
@š¤SavageGirlš¤ i also commented on your other post that you linked. just remember that absence of evidence does not mean evidence of absenceā just because they have not yet discovered a reason or explanation does not mean that there isn't one or that what you're experiencing isn't real.
@moon027097 - Thank you <3
Whatās up? Do you need a female to talk to or does it matter?
Doesn't matter
@š¤SavageGirlš¤ Thatās the hardest, when something is off but thereās no answers and others donāt believe you. You know your body, it tells you when something is wrong, trust that.
@Someonemaybe - I wish I did trust it, I'm trying to. It's just so difficult cuz I have false memory too, so if I fall I can't tell if I actually did or not, even if there's proof of bruises and whatnot.
@š¤SavageGirlš¤ That really does make it difficult. One way to tell is to go get checked out. That will validate your concerns if they do exist and maybe help you better understand what to trust and what to ignore. When your body tells stories, it really does make it hard to want to believe it. But first instinct, trust it until it proves you wrong.
@Someonemaybe - Oki! Thank uuuuuu, mom's taking me to the hospital (maybe) later.
@š¤SavageGirlš¤ I hope so, i hope it will ease your mind a bit. Youāre very welcome
@š¤SavageGirlš¤ How are you? Did you get to the doctor? Hopefully all went well.
@Someonemaybe - I went to Lurie's, and they found out that it's FND, where the connection between my brain and body was severed do to chronic pain.
@š¤SavageGirlš¤ Thatās a whole lot of words and acronyms i donāt know yet but it sounds like going was exactly what you needed and so Iām glad that happened. Itās there anything they gave or did that helped? Iām going to look up what all that means. Thank you for replying, i was really hoping you made it to the doctorsš. I never knew a connection could be severed from chronic pain but it makes sense since pain is a stress and stress is hell on the body.
@Someonemaybe - Yeah, it sucks. And of course it's another rare disorder. TwT
@š¤SavageGirlš¤ I know a little about rare disorders. They suck, nobody really knows what to do because they are rare and so youāre kind of stuck until somebody figures it out. Fortunately thereās some seriously smart people out there so hope is not lostš„¹.
@Someonemaybe - Thank you! May I ask your experience?
@š¤SavageGirlš¤ One of my daughters has a rare kind of blood disorder and it was nearly devastating. Fortunately some seriously smart people were involved and sheās doing much better. I donāt want to give too much detail given itās my daughter. I hope you understand. I nearly lost her and initially nobody even knew why. Thatās my only experience with it, and i hope i can say that for the rest of my life.
@Someonemaybe - I'm so sorry to hear that. <3 I'm so glad she is still alive today.
@š¤SavageGirlš¤ Thank you. Me too, beyond grateful for that š„¹
@Someonemaybe - Of course!!
@š¤SavageGirlš¤ And despite everything, youāre still here as well, doing your thing, thatās just awesome! Keep doing exactly that for a very very long time.
@Someonemaybe - Thank you and I shall. <3
is there anything youāve been wanting to do for awhile you could do now to make yourself feel better, thatās wheelchair friendly? sorry youāre not feeling well :(
Thank you <3 I wanna go to the mall to kinda get my mind off it. We have a wheelchair that we sort of used for my grandma before she passed, but I don't know. I can't use it in the house (the dogs will jump on me ><) and my mom will probably take me to the hospital later to try and figure this out faster.
Or see my Honey Bunny.
@š¤SavageGirlš¤ I hope you did get to go to the mall or do something else you like :) hope youāre feeling better today!
I feel so immature rn >< I'm just rolling everywhere.
Need to talk?
Tried to have a fun day today but I was too into my thoughts and that just ended up ruining it. Had it triggered by something, which was being in a social environment surrounded by people talking to each other while I feel I can't talk to anyone all that much. Why is this the trigger? Because it's happened in the past, and probably childhood, and I guess it didn't sit well with me and it still doesn't. It completely took my mood away on top of bad habits that hurt my self esteem further. Then when I feel I talk a bit too much, I get no responses, so that's why I don't say a whole lot to begin with. That combined with worrying about being judged. Just a vent.
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