a_raisinbran_original

Date posted: 17h

Y’all 😐

I, for whatever reason, took it upon myself to share with one of my friends about OCD diagnosis… Immediately regretted it. The first thing she said to me after I told her was “you know I think all of us are a little bit OCD.” Then she literally proceeds to tell me why she thinks she’s OCD… I’ve heard that people react like this sometimes when people share their diagnosis with them, I just never thought one of my friends would respond like that. It just caught me off guard.

Aquariuschik2

Date posted: 16h

It infuriates me. I know people don’t intentionally do this, but it minimizes and normalizes your experience. I support you 100%.

a_raisinbran...

Date posted: 15h

@Aquariuschik2 🩵 thank you - it’s actually the first time it’s happened to me, personally. I know others on the app have experienced it more often though. It just took me by surprise.

tryingtoheal7

Date posted: 17h

It’s so messed up.Someone said at work yesterday that they need things facing up because of their adhd.I have no idea why people feel the need to say they have disorders that are a struggle for many people as if it’s a joke and a quirk.OCD is hell and you’re not so ocd for wanting things organized and no shoes inside alone.Theres people with that sub type and it’s terrible for them also but that alone is not so ocd so im not sure why people throw around I’m so ocd with those things.Its painful for people with that subtype and the many other sub types that aren’t known.Its not a uncomfort or dislike when things are out of order.We get danger alerts that aren’t even there.You just want things clean.

a_raisinbran...

Date posted: 17h

@tryingtoheal7 Honestly, I feel like if anyone knew what we go through on a day-to-day basis, they would feel like assholes.

JeffTheLands...

Date posted: 17h

It is very dismissive, and I am sorry they responded that way. You should have just walked away. I've had friends be dismissive about very serious things and it is hurtful.

a_raisinbran...

Date posted: 17h

@JeffTheLandshark Honestly, if I could’ve just walked away, I probably would have! We went to an event together and it came up in conversation because I had asked her to go on the walk with me coming up in October. And then she said that and I thought to myself, you know what, I’m not even gonna remind her about it… Lol I’m just gonna go. OCD awareness week is coming up very soon, so I will definitely be educating people when the time comes. 🩵🙏🏼

saffvel

Date posted: 17h

That’s messed up. I’ve noticed how people will bring it up so casually to describe their perfectionism. They don’t realize the true reality of OCD. I recently told my dad (big mistake, too much machismo) and he told me I was just insecure and gave me examples on what he does that were clearly not OCD. I think some people want to make you feel better and it ends up being worse.

a_raisinbran...

Date posted: 16h

@saffvel Yeah I definitely think she was describing her perfectionism to me as well about her cleaning. And I also have perfectionism linked with OCD along with many other subtypes. I can get where she was mistaken, and I even get her trying to relate to me. But yeah, definitely not OCD and definitely not an appropriate time to bring that up. I’m sorry things didn’t go well with your dad. You have a friend here! 😊

truetrev

Date posted: 17h

It’s an opportunity to educate them! A lot of people just dont know enough about this disorder. It really is like “coming out” in many ways

a_raisinbran...

Date posted: 16h

@truetrev Literally! And I did definitely try, she’s just the type of person that things often fall on deaf ears. It’s unfortunate but I hope to help educate a lot of people in the near future. 🩵 I want to create a safe space for all of us suffering. 🙏🏼

truetrev

Date posted: 16h

@a_raisinbran_original Thats honorable, im proud of u. Not everyone will get it though unfortunately 😞

a_raisinbran...

Date posted: 16h

@truetrev I’ve really been trying to get involved with the International OCD Foundation but it’s hard to actually get an email back. So I’ve just followed to instagram pages in my area to hopefully get some community time soon! No, you’re right, not everyone will get it. But if at least a few do, it’s a few more than before. All we can do is try. 🫶🏻 and I feel like being on this app and talking with you guys and people like us has really helped me feel less alone in this. And I want that feeling for everyone.

[Deleted]

Date posted: 16h

Comment deleted by user

a_raisinbran...

Date posted: 16h

@777Q I can partially agree with that. Sometimes people don’t know what to say, and that’s okay! I don’t expect people to know what to say to be honest, because I didn’t even have the right words when I found out about my own diagnosis. I just expect a little more respect from a friend that’s all. Saying that “everyone is a little OCD” invalidates what we are all experiencing. That’s the only part I wasn’t okay with.

JeffTheLands...

Date posted: 16h

@777Q People might be particular about some things or have specific preferences, but that doesn't mean they have a condition like OCD. Saying everyone has it means there is no problem and puts those who are really struggling in an awkward place of less understanding, support, and resources.

JeffTheLands...

Date posted: 16h

@777Q I don't understand what having a sense of humor has to do with people being disrespectful and minimizing a serious health condition... I'm going to stop responding to this thread now.

Itspauliek

Date posted: 15h

I hear that all of the time that someone has ocd, and I don’t think people will ever understand how it feels to really have that obsession or anxiety.

a_raisinbran...

Date posted: 14h

@Itspauliek I hope we can spread more awareness and understanding someday.

Anonymous

User type: OCD Conqueror

Date posted: 17h

I know of a person with a doctorate in psychology who is a therapist who has said those same words.

a_raisinbran...

Date posted: 17h

@Anonymous 😳 yikes…

024lifeislove

Date posted: 19w

OCD

When I hear the others might think that they could also have ocd when I tell them I could have it or they want to say they have it after I’ve got diagnosed with, without knowing how I feel it is like why do I always have to have something and then they say they also might have it are they supporting, joking or what?

Sunshine_09

Date posted: 16w

The part of OCD that nobody told me about

If you are anything like me (and most of you are, because let’s face it, we are all on this chat), you have OCD. Real OCD, not the organisation, matching colours everyone thinks it is. Real OCD. I’ve always known I was different, known that my brain does some waking things and deep down, I’ve always known I’ve had OCD. But there is just something that changes when you finally get the diagnosis. It makes more sense, you have an explanation for your behaviours. So naturally I told my friends. When they ask why I had to stop and step four times on a tile I said ‘oh, I have OCD’. I finally had a word, a tangible concept that I could explain to people. But nobody warned me about the massive misconceptions about OCD. Instead of support or acceptance, my friends seemed to question the diagnosis saying ‘that’s not ocd, don’t you just like things organised?’. And no matter how much I explain it they don’t seem to get it. And that’s the part that feels so cruel. I go through hell in my head and it can all be reduced to a phrase of ‘oh, aren’t you organised’. So please be careful out there you guys, and if someone try’s to downplay your experience, know that you are valid and that what you are going through is probably something that they could never handle. It’s a lesson that took me time to learn, but it’s important because our experience matters. Our real experience.

cae.luh

Date posted: 13w

opening up to family

I was super recently diagnosed with OCD and nervous to share my diagnosis with my family. I’m a somewhat messy person and don’t have germophobic tendencies, so since I don’t have the stereotypical OCD presentation I was terrified that nobody would believe me. I ended up talking to my mom and making a silly TikTok post about it, which my grandma saw. Not only did they believe and support me–I learned that my grandma has it too! Funny to look back on, but really cool to see that the worst outcome doesn’t always happen. (:

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