PPPD

woah, yes!! i had this for years in my childhood!! it caused cyclical anxiety for me at the time. it became a trigger and a symptom for health worries. it's eased up now, but i used to associate it with leaving the house and when i tried to sleep mostly. that feeling of going up and down. lifts/elevators also triggered it badly. blessings to you, i hope you're able to find closure with this. and remember you're definitely not alone 🤍🤍

I was diagnosed with this, and it started after a really bad head cold and persisted for months afterwards. The anxiety made it so much worse because for months I didn’t have a diagnosis, I had no idea what this was, and was worried that the worst was happening to me, which now, of course I know perpetuated the condition. I had blood tests and a neurology visit to rule out anything, but the test that fully validated the diagnosis was a VNG test. It is now six months later since the symptoms first started, and about three months since I started treatment. Since then, I am almost back to normal with some short bursts of symptoms when I am really tired or under a lot of stress or in an overstimulating environment. the helpful treatment I have received has been First taking vitamins and most importantly, magnesium glycinate, doing vestibular rehab rehabilitation exercises that were Tailor made for me based on the VNG test, and doing therapy, though to be honest, I haven’t been as good about keeping up with therapy as I should have… But I have been retraining, my mind to not treat dizziness as an emergency, but try to ignore it as best as I can and live my life as normal. With that in mind, it starts to fade more and more.

It is a really strange condition because for me, at least it did have a physical basis, but then it became psychosomatic because even though nothing is physically wrong with me, my anxiety was actually training my brain to stay dizzy… It’s a really hard thing to understand, but I think Once you begin to let go of trying to fix it at a certain point, it does start to get better because your brain starts to learn not to interpret it as an an emergency. It was really hard to find a Doctor Who understood what this was, though I went to an out of network audiologist, it was really expensive, but thankfully, I was able to get it reimbursed, but this is such a difficult and poorly misunderstood condition.