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- 5y
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- 5y
Unfortunately yes
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- 5y
Used to be. I got straight about a year ago. I was only 14 and was taking opioids such as codeine to numb myself
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- 5y
Used to drink to deal with it v bad idea
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- 5y
Behind every addiction is trauma "Laugh and the world laughs with you. Weep, and you weep alone."
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- 5y
Alcohol big time but its not a solution its just another problem to deal with unfortunately.
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- 5y
Im completely house bound beacuse of my POTS it feels like dying every day and then the ocd doesnt make matters better lmao wtf is this???? Im losing my mind i would give my soul to satan tbh this is hell on earth
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- 5y
been like this for 2 years and im losing it
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- 5y
yes
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- 5y
Yes to alcohol, but it is only occasionally and I don’t consume A LOT, usually just a couple of drinks to take the edge off, and it never became an addiction. Now that I’m finally on a prescription medication cocktail that works for me (and my anxiety, depression, etc), I rarely ever drink as a response to stress / anxiety.
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- 5y
Postural orthostatic tachycardia syndrome,I thought first that i had erythromelalgia beacuse of red feet but then it turned out to be dysautonomia in form of pots
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- 5y
Really nasty syndrome
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- 5y
Makes u bed bound if not treated correctly ,In my case doctors have failed me and im own my own im thinking about buying the drugs that i think will help from tor web illegally i have nothing to lose anymore
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- 5y
Ocd is useful in things like this haha,This is crazy that u have a same situation going on,My redness started in legs then slowly came to my hands it feels like they are burning.. I was convinced in the beginning i had erythromelalgia
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- 5y
Ummm for me its always if i dont take medication ,Pulse lying down 60 standin up 130
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- 5y
Yeah get it checked out it will only get worse if its pots,if u wanna self diagnose just download a pulse app Then lay down 10 minutes then stand up and if it goes up 30 bpm from laying down to standing its pots
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- 5y
I got diagnosed with pots in a sleep clinic they did every test known to man 24h ECG and orthostatic test ,long story short 20 doctors knew nothing in the end i self diagnosed and actually had it lmao these doctors
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- 5y
I paid two grand for a piece of paper that said that i have it yey and now the doctor is stubborn to give me medication that would probaply fix this nightmare
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- 5y
Yeah i was in the dumps too i just wanted to die ,So i did the only reasonable thing i layed down for weeks just to get so sick that my family would believe me and got the diagnosis haha ocd and stubborness saved me :)))
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- 5y
Yeah hands and feet ,here is a good forum for EM https://www.livingwitherythromelalgia.org/t/about-us/1663
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- 5y
Yeah EM pain is described as literally burning
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- 5y
Alcholol ,Exercise,Being in warm makes it worse so basically living makes it worse
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- 5y
I think,Aspirin ,betablockers,mexiletine,and lidocaine infusions help some patients good luck brother.
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