Hi! I’m so sorry you’re going through this right now. I really know how you feel. I’ve been in a very similar place. I was diagnosed with cptsd when I was about 23, and then with OCD when I was 26. I’m 29 now. Recently, my therapist has been working with me through a neurodivergent friendly framework, which has made a BIG difference I feel. I’m not diagnosed with autism and haven’t pursued one, but it does feel like a missing piece of the puzzle. All of that for context.
I’ve had OCD symptoms for as long as I can remember, but had HORRIBLE ROCD ever since I started dating when I was in middle school. I had a huge crush on someone, and when I imagined actually going to the movies with him, I had this gut wrenching dread. This scared me and I spent a lot of time reviewing this scenario over and over in my head, trying to predict how I would feel. I never ended up going on a date with him because I was too scared of these thoughts. That’s when it started for me. Fast forward through various short and long term relationships, I met my now fiance when I was only 18 after moving to a new big city for college. This time was different, I was not scared, I was so in love with him. We moved in together and had a very sweet and honest relationship. As time went on, I felt this guilt that I was doing life “wrong”. I was worried that since I wasn’t living my best single life, I was doing something incorrectly. If I was planning a future with him, I was not being independent enough. Even though these were things I wanted, I worried it wasn’t “right”. Then, one day in 2019, my whole word came crashing down. I had the thought “I don’t love him anymore”. It was on a trip with him and my family. I felt caught between him and my family (who abused me) and the dynamic between all of us was hurtful. That context didn’t matter to me at that time—the thought “I don’t love him anymore” was what destroyed me. I went into a deep spiral for the next several months, obsessively checking astrology sites, watching TikToks about breakups and divorces, constantly checking my feelings, listening to love songs and feeling a wave of doom and dread. I held it all in. It was so confusing. One day, we had a conversation about my anxiety about our relationship. I came to a realization that I could explore my own individuality AND be in the relationship at the same time. And if that became not possible, then I could evaluate whether or not to go our separate ways. But, from then on, it became important to work on myself. And things got SO much better.
Things were great for a while, but in 2023, I had another OCD spiral. It was like a war was going on in my mind and my anxiety was worse than ever. It’s hard to distill this spiral into just a few sentences, but my grandmother was dying. She was like my mother, perhaps the only person in my family who really saw me. She protected me from a lot of hurt from my stepfather. Losing her was like losing a part of myself. My OCD said “do I love her in the correct way? Do I love anyone in the correct way? Is it bad that I rely on others for love and protection? Who am I without the people I love? Is it bad that I don’t know?” My relationship with my boyfriend became a hostage for OCD again. This was by far the lowest period of my life.
It was during this period when I stopped being able to work, I spent most of my days in bed, never sleeping through the night, almost in a constant panic attack. I entered an outpatient program for mental health, was discharged 6 months later, and that’s when I found NOCD.
Since then, after about 2 years of OCD therapy, I am in a completely different place. I am planning a wedding and feel a true sense of ownership over my life and my choices, and that’s both scary and empowering. I feel deeply happy more days than not. I still have compulsions, and if I give into those, my mood and health gets worse. I have the tools, and I still have a lot to learn.
But, related to ROCD specifically, I want to share some things that I think made a big difference for me. I’m not saying that ROCD always has some kind of hidden drive or meaning. But for me, my attachment to everyone in my life did have to go through a shift in order to get to the healthier place I’m in now. And this was terrifying. Because of my CPTSD, I thought that because of these small shifts, I would lose these attachments, or thought I was in danger by getting closer to someone.
I mentioned the crush I had in middle school because I think it’s exactly the same thing. Every time I get closer to someone in a new way, anxiety comes. My OCD wants to make meaning out of this anxiety. “Oh, if I feel anxious, it must mean that something bad will happen, or it’s not the right relationship, or my feelings aren’t there.” But, once I let the anxiety just exist, it is true that my “real” feelings usually become more clear. One of the biggest things that changed in my relationship with my fiance was as I got better at sitting with my anxiety, I realized I really didn’t like parts of our dynamic. What followed were a lot of conversations about certain things that were sort of left over from a younger, less mature version of our relationship. I started to know more about what I needed to feel safe and loved, was able to express those things to him, and to my surprise, he showed me that he can and wants to meet those needs. This has been the single most healing thing I’ve ever experienced. Because of the attachment trauma, I think I learned that closeness is not safe, and my needs are never going to be met. I definitely think this is part of the reason the ROCD theme shows up. It makes total sense that these attachment wounds need to be healed in relationship to another person, where there are real stakes. He could have showed me that he doesn’t care to meet my needs, and hurt me. He could have decided that it was too much work. He could have left, or I could have decided that I didn’t want to be in a relationship where my needs weren’t being met. It’s so scary to put yourself at risk of losing something dear to you. But, even if we ended up breaking up, I needed to learn this lesson I think. Now, we’re closer than ever and at the same time, I’m much more comfortable spending time alone and I feel like I know myself so much better. I know to expect anxiety to show up and be triggered by certain things, but I can also trust myself to make decisions that I feel are best for me, and the pressure to do the “right” thing isn’t hanging over my head as much at all. I know OCD could whack me on the head tomorrow and I could be in a scary place, but I do feel like I have a lot more tools and self knowledge now.
If there is any advice I could give, it would be to trust the ERP process. It’s really scary but it has given me so much agency. CPTSD and OCD are so painful in combination. But, you deserve to feel known and loved. That can feel like a life-threatening, terrifying risk to take if you have trauma! Just know you’re not alone or crazy for feeling that. Be gentle and patient with yourself, none of these changes happen overnight. I wish you all the best and I’m happy to chat more about the neurodivergent aspect if you’re interested! Hang in there 🖤