- Username
- Renee*OCDmom
- Date posted
- 7y ago
If you need anything or have any questions, know you can always turn to us
Hi there, I have had OCD since I was 5 (im now 34). It wasn't until this past year that I really and truly got the real help that I needed. Back in the 80s they didn't know much about it but there has been considerable advancement in treatment. My best advice is to do what you're doing, learn as much about it as you can. Ocd manifests itself in ways I would never have realized. An excellent book is called "when a family member has OCD" by John Hershfield. He breaks it down really well - I only read it fairly recently and learned a lot from it and I thought I knew it all! Best of luck to you and your son.
And I thank you for that! We just got through a rough month and he’s turning the corner again and improving. He was diagnosed at 5 and is now 8.
What can we help you learn more about? Do you need additional treatment resources, general education, direction to help your son, etc? Whatever you need just name it
I’m looking for anything that might help me help him. I’ve studied the websites and have been reading and learning as much I can since he’s been diagnosed. Would love another perspective from others who grew up with it. He does so well and I’m afraid of major setbacks. I know it waxed and waned so I know it can happen at any time. I try so hard to stay on top of things. I think of his future a lot!
If it helps, here are a couple things I can tell you (as someone with OCD): 1) OCD treatment is improving at an exponential rate. There is a good chance in five years your son will have incredible treatment resources at his fingertips 24/7. 2) some of the most successful people have OCD, and although it can be challenging, it makes us stronger. OCD pushed me to where I am today. Besides online content, have you listened to any podcasts or talked to any people living with OCD in a manageable way?
Thank you!! Just online content and books his psychiatrist recommended. No podcasts. I did find a support group on FB for parents of children with with ocd that has been helpful. But I haven’t talked to or met anyone else living with with OCD.
This is Stephen Smith, I have OCD and founded nOCD a couple years ago. Can you reach out to our email info@nocdhelp.com? I'd love to talk and give you info about living with OCD, resources, etc. (if you want of course)
Thank you Stephen and thank all of you! This is more helpful than you know. We are working so hard at this and my goal is to Jersey as positive as possible because, well, negativity doesn’t bring progress. I have anxiety and depression myself so it’s a little easier me to be understanding of what he’s dealing with. But seeing your child struggle is never easy. I know with what he’s fighting against he’s tougher that most give him credit for. I admire all of you for fighting the fight and reaching out to help others! Thank you.
Seriously autocorrect. Forget Jersey, Jersey has nothing to with any of this. ?
*waxes and wanes
it's really awesome that you're diving in and learning all you can to support your son. 🌟 i'm dealing with a different ocd theme myself, but i totally get wanting to find the best tools and support out there. one thing that's been a game-changer for me and was recommended by my local ocd support group is the "unstuck ocd therapy tools" app. it offers ai-personalized guidance and exercises that can be super helpful in the moment. also, the ocd stories podcast has been an incredible resource for understanding different aspects of ocd and hearing how others manage it.
I’m new here and need help, not as someone who suffers from OCD, but as a mother who’s child (I believe) suffers from OCD. We have not had an official diagnosis yet as I am searching for a physician at this time. She has all of the aspects on the subject specifically, so I really wouldn’t be surprised by an OCD diagnosis at all. My question is, do any of you remember a time when the OCD became a problem for you? I meant, did something happen to trigger it or make it much worse or more evident? I’ve always known she was a “perfectionist” and very intellectually minded, so to speak, but several incidents happened last year (she’s almost 14) with some friends that didn’t end well. Since then, it’s as if she can’t focus at all and gets very obsessed by things. Almost like the incidents last year exacerbated the underlying problem. I want to help her however I can until we can get into a Dr, I just don’t know how and it seems she gets mad and irritated with me when I try, which is hurting this Moms heart. Can any of you suggest what I should or shouldn’t do at this point? She literally becomes frozen with certain fears, like being stung by a bee (never been stung before). Honestly, she’s had a fear of going to the bathroom forever (10 years), but medical Drs have never been able to help and now I know why. So, all to say, I’m not in denial but just want to help her. Thanks for any input you can give.
My 13 yr old son was just diagnosed with OCD. Does anyone have advise on how we can best support him? He I s seeing a therapist and is doing ERP therapy.
Our 13 yo daughter has OCD. Has this app been helpful to you?
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