- Date posted
- 7y
- Date posted
- 7y
If you need anything or have any questions, know you can always turn to us
- Date posted
- 7y
Hi there, I have had OCD since I was 5 (im now 34). It wasn't until this past year that I really and truly got the real help that I needed. Back in the 80s they didn't know much about it but there has been considerable advancement in treatment. My best advice is to do what you're doing, learn as much about it as you can. Ocd manifests itself in ways I would never have realized. An excellent book is called "when a family member has OCD" by John Hershfield. He breaks it down really well - I only read it fairly recently and learned a lot from it and I thought I knew it all! Best of luck to you and your son.
- Date posted
- 7y
And I thank you for that! We just got through a rough month and he’s turning the corner again and improving. He was diagnosed at 5 and is now 8.
- Date posted
- 7y
What can we help you learn more about? Do you need additional treatment resources, general education, direction to help your son, etc? Whatever you need just name it
- Date posted
- 7y
I’m looking for anything that might help me help him. I’ve studied the websites and have been reading and learning as much I can since he’s been diagnosed. Would love another perspective from others who grew up with it. He does so well and I’m afraid of major setbacks. I know it waxed and waned so I know it can happen at any time. I try so hard to stay on top of things. I think of his future a lot!
- Date posted
- 7y
If it helps, here are a couple things I can tell you (as someone with OCD): 1) OCD treatment is improving at an exponential rate. There is a good chance in five years your son will have incredible treatment resources at his fingertips 24/7. 2) some of the most successful people have OCD, and although it can be challenging, it makes us stronger. OCD pushed me to where I am today. Besides online content, have you listened to any podcasts or talked to any people living with OCD in a manageable way?
- Date posted
- 7y
Thank you!! Just online content and books his psychiatrist recommended. No podcasts. I did find a support group on FB for parents of children with with ocd that has been helpful. But I haven’t talked to or met anyone else living with with OCD.
- Date posted
- 7y
This is Stephen Smith, I have OCD and founded nOCD a couple years ago. Can you reach out to our email info@nocdhelp.com? I'd love to talk and give you info about living with OCD, resources, etc. (if you want of course)
- Date posted
- 7y
Thank you Stephen and thank all of you! This is more helpful than you know. We are working so hard at this and my goal is to Jersey as positive as possible because, well, negativity doesn’t bring progress. I have anxiety and depression myself so it’s a little easier me to be understanding of what he’s dealing with. But seeing your child struggle is never easy. I know with what he’s fighting against he’s tougher that most give him credit for. I admire all of you for fighting the fight and reaching out to help others! Thank you.
- Date posted
- 7y
Seriously autocorrect. Forget Jersey, Jersey has nothing to with any of this. ?
- Date posted
- 7y
*waxes and wanes
Related posts
- User type
- OCD Conqueror
- Date posted
- 22w
Hi everyone, I’m Cayla. I’m a mom that’s lived with OCD since childhood, but my breaking point came more recently after having my son. I was consumed by terrifying thoughts—What if I hurt him? What if I did something awful without realizing it? I was so afraid of my own mind that I couldn’t be alone with him. The shame and exhaustion were unbearable, and I convinced myself I was broken. In 2024, I finally sought help. ERP therapy at NOCD was one of the hardest things I’ve ever done, but it saved my life. Even now, I have tough days, but I know I don’t have to be ruled by OCD. When my 12 year old daughter began showing signs of OCD, I felt overwhelmed with guilt. I never wanted her to go through what I had, but I knew what to do. I told her that I have OCD too and made sure she knew it wasn’t her fault—and that she wasn’t alone. One of the hardest parts of this journey was trusting someone else with my daughter’s OCD. I knew how vulnerable it feels to share intrusive thoughts, and I wanted her to feel safe. Her NOCD therapist was able to establish trust and genuine empathy from the start, and that relationship gave her the confidence to face ERP head-on. Seeing her build that trust made me certain she was in the right hands. ERP has helped both of us reclaim our lives, and it is beautiful to see my daughter managing her condition and making visible progress. Parenting with OCD while raising a child with OCD isn’t talked about enough, but I know so many parents are struggling with these same challenges. If you have questions about managing OCD while parenting, helping your child through ERP, or breaking cycles of guilt, drop them below—I’d love to share what I’ve learned. I’ll be answering all of the questions I receive in real-time today 4-5pm ET.
- Date posted
- 21w
Hey all, This is so strange to share this, and I have been judged by others and misdiagnosed many times. About a year ago I worked with an OCD therapist and it was really triggering. For me my thoughts are mainly about suicidal ocd and harm ocd centered around my children of all things. Fear that I could or would want to hurt them, then feeling so horrible that I believe I’m suicidal then I go back and forth on that. After reading a few of your posts, it makes me truly have a bit of hope that I can overcome this.
- Date posted
- 21w
Overwhelmed
Be a part of the largest OCD Community
Share your thoughts so the Community can respond