- User type
- Therapist
- Date posted
- 5y ago
You are welcome lulu23. Thank you for sharing! I talk to many clients that struggle with depersonalization and existential obsessive thoughts. Try to focus on them like you would any other obsessive thought. Question the uncertainty of these thoughts and do not move away from the thought until your anxiety has come down and you feel like you can move on. Then move on! Go do something you like, think about what you are grateful for. Challenge that negativity with positive thoughts. I know you can do this! ?
Wow. “They don’t feel like themselves anymore” really hit home
Me too ?
I hope it is helpful to know this is what your symptoms look like. This is not your true self, it is an OCD symptom. Remember who you are, remember what you like to do and who you want to be, that person is there under the uncertainty. Challenge that uncertainty...maybe or maybe not, could it be a symptom. Connect with the thoughts you want to have, the ones that are about the true you. I appreciate all your posts! Thank you for sharing. I hope each one of you ge to work with a trained ERP therapist and learn some great coping mechanisms for stopping this cycle.
But like what if I fall for one of these thoughts and do the harm action? I don’t know if my old self is there
The focus can be on the “what if” that’s the uncertainty mentioned above. Focus on the uncertainty instead of moving to the next behavior which is seeking reassurance, checking in with yourself. That’s what ERP is all about. I hope you are able to get into treatment with a trained ERP therapist who can help you stop these compulsions. Believe me, I understand how difficult it is to let go! Talking about sounds easy, but it is a challenge for sure. However, it works! Wishing you good luck ??
Thank you for this post. Ever since I went off my medication the wrong way (without tapering/doctor telling me it was ok) I have been going through derealization/depersonalization and it’s created so many existential and philosophical thoughts. It has gotten to the point where I can’t separate myself from them at all and I do feel like a different person. I can’t interact with people like I once used to, even my family. Im working hard on just living my life every day and posts like these help so thank you.
I have problems separating from my symptoms of OCD. When I wash my hands, I have to follow the feeling and it has to be of a certain way. If I don't follow the feelings, I might not be able to focus. That's what makes it hard for me to separate myself from my OCD symptoms.
Thank you for sharing Dahliah. Sometimes when you have an obsession like hand washing, your compulsion can be a physical action - like muscle tensing and letting go. Often it can be difficult to tell what the compulsion is because it follows the obsessive thought so closely. This is after some time of obsessing and compulsive. Try working on separating the obsessive thought from the following compulsion - that feeling you get follows something you are doing. Try to pay attention so you can stop yourself from doing that compulsion. It may feel uncomfortable at first to not have that comfortable feeling that allows you to stop washing your hands. This is what ERP is all about - exposure response prevention. Preventing the compulsion to stop the obsessing. Work with a trained ERP specialist to work consistently and you will see results. I wish you good luck in separating!
I’m struggling to “stay who I am” because I feel like I want these things. I feel like I lost my true self and truly want to do these harm thoughts.
I feel like I am losing myself everyday, and I am struggling to "stay who I am" because I want to be able to reach my dreams as a dancer. I have to do my compulsions so I will be able to stay who I am
@Dahliah It sucks but I think the true self is still in us
Right now i have fear of fainting, which makes me rethink in i should go out and play. But i still play. How do i get rid of fear of fainting
Looking back, I realize I’ve had OCD since I was 7. though I wasn’t diagnosed until I was 30. As a kid, I was consumed by fears I couldn’t explain: "What if God isn’t real? What happens when we die? How do I know I’m real?" These existential thoughts terrified me, and while everyone has them from time to time, I felt like they were consuming my life. By 12, I was having daily panic attacks about death and war, feeling untethered from reality as depersonalization and derealization set in. At 15, I turned to drinking, spending the next 15 years drunk, trying to escape my mind. I hated myself, struggled with my body, and my intrusive thoughts. Sobriety forced me to face it all head-on. In May 2022, I finally learned I had OCD. I remember the exact date: May 10th. Reading about it, I thought, "Oh my God, this is it. This explains everything." My main themes were existential OCD and self-harm intrusive thoughts. The self-harm fears were the hardest: "What if I kill myself? What if I lose control?" These thoughts terrified me because I didn’t want to die. ERP changed everything. At first, I thought, "You want me to confront my worst fears? Are you kidding me?" But ERP is gradual and done at your pace. My therapist taught me to lean into uncertainty instead of fighting it. She’d say, "Maybe you’ll kill yourself—who knows?" At first, it felt scary, but for OCD, it was freeing. Slowly, I realized my thoughts were just thoughts. ERP gave me my life back. I’m working again, I’m sober, and for the first time, I can imagine a future. If you’re scared to try ERP, I get it. But if you’re already living in fear, why not try a set of tools that can give you hope?
I get asked about the name NOCD a lot. People might want to know how it’s pronounced, and they’re curious about our story. Every time, I’m excited to share a bit about what the name means—in fact, it’s an opportunity for me to talk about something everyone should know about OCD. First things first: it’s pronounced “No-CD.” And it actually means a couple things, both central to our mission: To restore hope for people with OCD through better awareness and treatment. The first meaning of our name is about awareness: Know OCD. Though we’ve come a long way, not enough people truly know what OCD is or what it’s like. How many times have you heard someone say “Don’t be so OCD about that,” or “I wish I had a little OCD. My car is a mess!” Things like that may seem innocent, but they trivialize the condition and keep most people with OCD—around 8 million in the US alone—from getting the help they need. The second meaning of NOCD is about treatment: No-CD. To go a bit deeper: Say “No” to the compulsive disorder. On one level, this is also related to knowing OCD—noto means “to know” in Latin. This inspired the name NOTO, the operations and technology infrastructure that powers NOCD the way an engine powers a vehicle. But this meaning goes even further. It has to do with how you can manage OCD symptoms—learning to resist compulsions. This is the foundation of exposure and response prevention (ERP) therapy, the most effective, evidence-based form of treatment for OCD. Learning how to resist compulsions with ERP changed my life, and it taught me how important it is to get treatment from a specialty-trained therapist who truly understands how OCD works. I’ll give you an example. When I was 20, my life was going according to plan. I was thriving on the field as a college quarterback, doing well in school, even winning awards—until OCD struck out of nowhere. I started having taboo intrusive thoughts, things that horrified me and went against my core values and beliefs. Desperate for help, I saw several different therapists—but no one diagnosed me with OCD. At one point, I was instructed to snap a rubber band against my wrist whenever I had an intrusive thought. It was supposed to stop the thoughts, but it only made my symptoms worse. Driven into severe depression, I had to put my entire life on pause. Once I started ERP with a therapist who understood OCD, I learned why: you can’t stop intrusive thoughts from occurring. Everyone has them—and the more you try to get rid of them, the worse they get. Anything you do to suppress them is actually a compulsion, whether it’s counting in your head, snapping a rubber band against your wrist, or using substances to drown the thoughts out. To get better, you have to learn to resist compulsions and accept uncertainty. OCD doesn’t get to decide how you live your life. How do you educate the people in your life about OCD? Whether friends, family, or strangers, I’d love to hear how you share your understanding and raise awareness about OCD.
Hi everyone, I’m Andrea and I am a member of the Intake Team here at NOCD. In junior high, I was known as the “aneurysm girl” because I was convinced any small headache meant I was dying. At just 12 years old, I read something that triggered my OCD, and from that moment on, my brain latched onto catastrophic health fears. Any strange sensation in my body felt like proof that something was seriously wrong. I constantly sought reassurance, avoided being alone, and felt trapped in an endless cycle of fear. Over time, my OCD shifted themes, but health anxiety was always there, lurking in the background. I turned to drinking to numb my mind, trying to escape the fear that never let up. Then, in 2016, everything spiraled. I was sitting at work, feeling completely fine, when suddenly my vision felt strange—something was “off.” My mind convinced me I was having a stroke. I called an ambulance, launching myself into one of the darkest periods of my life. I visited doctors multiple times a week, terrified I was dying, yet every test came back normal. The fear never loosened its grip. For years, I cycled in and out of therapy, desperately trying to find answers, but no one recognized what was really happening. I was always told I had anxiety or depression, but OCD was never mentioned. I was suicidal, believing I would never escape the torment of my mind. It wasn’t until 2022—after years of struggling, hitting rock bottom, and finally seeking specialized OCD treatment—that I got the right diagnosis. ERP therapy at NOCD was the hardest thing I’ve ever done, but it saved my life. Today, I’m 34, sober, and living a life I never thought was possible. Do I still have hard days? Absolutely. But I am no longer a prisoner to my fears. The thoughts still come, but they don’t control me anymore. They don’t dictate my every move. Life isn’t perfect, but it no longer knocks me off my feet. If you’re struggling with health OCD or somatic OCD, I see you. I know how terrifying and isolating it can be. But I also know that it can get better. If you have any questions about health & somatic OCD, ERP, and breaking the OCD cycle, I’d love to tell you what I’ve learned first hand. Drop your questions below, and I’ll answer all of them!
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