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It’s a struggle to explain it to non sufferers and especially family. My advice is to be patient, stand up for yourself, and reinforce the truth when it comes up. For example: If they try to tell you it’s normal or not bad, simply say “no it’s not normal, it’s a mental disorder that causes significant distress and difficulty functioning. It’s manageable with proper treatment, but it is a real and significant mental health problem. I need you to stop minimizing this disorder by saying it’s normal. Can you do that?” If they say “we’re all a little ocd,” say “No, we all have certain quirks about how we like things. That has absolutely nothing to do with ocd. OCD is a real mental health disorder that you do not have. I need you to stop claiming everyone has this mental health disorder. It effects about 1% of the population, including me.” If they tell you it’s good to be safe, say “yes it is good to be safe. But my ocd doesn’t keep me safe. when untreated, it actually threatens my ability to function. That is in fact very unsafe. It is a real threat to my happiness and ability to live any life day to day. I need you to stop saying it’s good for me. Can you do that?”
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Or when they act like it’s my fault for what they seem to think is me deciding to worry about. When I show them I’m worried they act like I’m deciding to let myself be. Whereas they are perfectly content when I’m hiding it 24/7 and seek to think I’m better during these times when I’m actually fighting incredibly hard all the time and need to share how I feel on occasion.
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“I’m not deciding to worry about this. My brain is sending me faulty signals that say I’m in danger and cause me to worry, panic, and want to perform compulsions. My brain does this a lot, and sometimes I’m better at hiding it than other times. But this is the reality of living with ocd. I need you to stop saying I’m somehow choosing to have a diagnosed mental disorder. Can you do that?”
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@pureolife Thank you! That is really helpful! My mom seems to be trying really hard to understand which is great. I know it would be hard to understand if I didn’t have ocd. Looking back, my brain is so incredibly different from before OCD really surfaced. The anxiety I experienced about things then is nothing like this. I just have to keep reminding her and trying to share my experiences.
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Thank you for all of your help by the way
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Thank you so much. I used the one percent of the population bit when my mom told me I’m normal and trying to be safe. I’ll try some of the others. Do you have any advice for explaining that even though I’m smart and can think rationally that I cannot rationalize my ocd away?
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“I cannot rationalize my ocd away anymore than a patient with heart disease could rationalize that away. I have a disorder that causes my brain to act differently than others. I need you to stop denying my medical diagnosis. Can you do that?”
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*worry about something
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*seem
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They seem to think I’m not anxious most of the time so why am I letting myself be anxious when I choose to express myself.
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“I’m expressing my anxiety to you in this moment. But this is how I’m feeling 70/80/90/100% of my day, every day. I am opening up for support because worrying like this all alone is very scary and exhausting and I could use some encouragement.”
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One last thing, they don’t seem to get that the content of my ocd isn’t the problem and they don’t need to solve what ocd is telling me. How would I get them to start to understand this?
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“I know it seems counterintuitive, but ocd specialists actually recommend that Ocd suffers stop trying to solve their ocd worries. Trying to sort them out is scythe problem. Not the worries themselves. I dont need help solving them, I actually need help to stop trying to solve them. If you would like to support me in this, you can help me by not enabling my worries with trying to help me solve them.”
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@pureolife Actually* not “scythe” — weird autocorrect
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