- User type
- OCD Conqueror
- Date posted
- 4y
Thank you for sharing your experience. It’s always interesting to me how we’ve all had similar experiences, even though the specific things we have made ourselves worried sick over are different. I also started having OCD really young - my earliest memory of it is from when I was 6 years old.
You're very welcome. I know our experiences can be different but as you said, we all can relate to one another in some way. It is a bit comforting to know we arent alone. And yes, it seems when we are kids we still remember those thoughts! Thank you for sharing that.
Hiii! This is my first post. I found NOCD through a tiktok ad that spoke to me. It was titled signs you didnt know were OCD or something like that, and one of the slides was “checking my pulse throughout the day to make sure i was okay”. This is something ive done for i dont even know how long. atleast 10 years, im 24 now. Ive always known Ive had OCD. Light Sanitation OCD runs in my family. But over the years ive started to realize i had way more than the “family trait”. Checking my pulse 40+ times a day is something i refer to as my “OCD tick”. Its to the point where people who dont know about my “tick” often ask if i am okay when they see me do it. Maybe this post is me putting it on paper for the first time so i myself can analyze but some other stuff i struggle with are: Often having thoughts of if i dont do A, B will happen. An example that is common for me is “if i dont refold this shirt me and my boyfriend will get into an argument” or if im out to dinner with a friend, “if i dont pick up this cup and place it back down, i will get into a car accident on the way home”. This is one i struggle with almost everyday, especially when im around people (work or outings). This compulsion happens multiple times a day. Now in my life i try to practice exposure therapy, even getting annoyed i feel the compulsion and think to myself “oh my god this is so stupid no!” but if i dont follow through i feel guilty. often when i get my next compulsion shortly after i tell myself “okay doing this will make up for not doing the previous one”. I definitely dont have a number based OCD, but i would have to pick up and put down the cup until it feels “right” or “correct”- same with checking my pulse. I have to check my pulse until the feeling is “just right”. With sanitation as i said before, i have a very clean and sanitary family, although mine is more severe than their feelings. I avoid touching certain surfaces after i have washed my hands, such as the front door knob, or living room tv remote, etc. If i need to touch or use these things, i have to immediately wash my hands again. Even if someone comes home and asks me to go and lock the front door ill often respond with “i cant i just washed my hands, if i lock the door ill have to rewash my hands”. thankfully my family is very understanding. I often feel like certain things are contaminated. For example when i come home i sanitize my phone immediately as it is contaminated from being outside of my house. I often have a feeling of something having to feel “just right”. If i go out to dinner i have to be the first to pick what seat or side of the booth im sitting on before the rest of my family sits down or i will feel anxious the whole dinner. Sometimes when im typing i have to back space and retype the same word over and over until i feel i typed it “just right”- even if i didnt make a typo. sometimes when i am driving and space out i often think “oh my god did i just hit someone” when there is no evidence that i have. it worries me. I think oh my god i mightve done a hit and run. But tell myself it can not be possible, theres no police chasing me, no honking, or anything. It is scary. this one is very rare. once in a blue moon i get a false memory. A main one ive felt since i was a kid is if someone or some object touches any part of my body, for example my left arm, i have to have them or atleast my self touch my right arm in the exact same way or i feel uneasy. this isnt with every single touch, but mainly when i feel triggered- although i never know what triggers a moment where i need the symmetry. I guess ive always known, i am very honest with my family, friends, and boyfriend about it. But i didnt start to realize how neurodivergent i was until asking some friends “you never randomly feel *insert compulsion*?” and they say never in their life have they felt like that. Im very self aware and have come to an acceptance with all these things, although it is debilitating. Periodically i think, wow it must be nice to not live life with these feelings but oh well. To be honest, downloading this app is the first step ive ever taken to find out more about OCD. Ive always kind of just been like “yeah i definitely have OCD but okay” more or less.
So... I few years ago, I did self-harm a few times, and then I got super into spirituality, and about a year ago, I remembered I did self-harm and ever since haven't been able to shake the guilt off... Constantly, every day, my mind would make me feel guilty about it and think about it all day. It's like my brain knew the thought that I could/ have cut myself scared me, so it kept bringing it up. My family had no idea I had ever done this, so my OCD told me I was a liar for not telling them about every day. I was afraid that they wouldn't love me anymore and send me to a mental hospital if I told them. About 2-3 months ago, I had gotten so fed up with having these thoughts every day and confessed to my mom what I had done, and her reaction was great. And I thought I'd never have thoughts about when I did self-harm again because I finally confessed. I was wrong. Even with people telling me that it's okay, I did that, I can't shake the guilt I had around this event, and even more so the fear/guilt around my own thoughts... My therapist and I talk about how the problem isn't the thoughts but what the OCD does to them. I try to create positive neural pathways, but that just makes me more stressed about it. There are things I'm supposed to tell myself when I feel negative, but I think I get that confused and tell myself those things every time I have thoughts about what I did. Which is feeding into a mental compulsion (replacing every "bad" thought with a "good" one. What works for me is (if I can) do nothing and have the thoughts... It's been hard to get better because I have had no idea what's been happening to me and felt like for the last year I was going crazy... I always thought OCD was cleaning stuff and physical compulsions . Everything that happened to me happened in my head. On the worst days when my OCD is really bad, every single time I was conscious and aware, I was thinking about the fact that I did self-harm. I would lie in bed all day trying to figure out my thoughts because I thought if I watched TV, I would be avoiding important things. I thought I had to figure out all my thoughts. I would ruminate, replay, and second-guess all. day. long. It was hard to do any of the things I loved; OCD took the joy out of it. It was hard to recognize it was OCD because I thought I had done something seriously bad and wrong, and that I must deserve these thoughts. I think the trick is that you feel like you must have positive thoughts, and the most distressing thing wasn't necessarily the fact that I did self-harm, but the fact that I couldn't stop thinking about it. I find the best thing you can do is just have all your thoughts in your head and try not to separate them from good and bad, if you can. It's nice to have people who understand!!!! More to come, about the journey. My favorite thing to say when I'm stuck is "that sly devil... OCD. Silly OCD is getting to me right now, but it won't last forever. That sneaky guy tricked me again." Love you!!!
Hi NOCD community, I wanted to share my story of my journey so far with OCD to provide perspective to anyone who needs it. I can't believe how far I have come with a huge part because of my NOCD treatment and utilizing ERP. For reference I am a 24-year old male, so for anyone who is like me and on the fence with treatment, trust me it is worth it. If you ever want to talk about OCD and are not sure where to start or need guidance please do not hesitate to reach out to me. I am now almost 2-years into treatment and working on recovery to this day. Sending my support to all. My OCD Story Adolescence Growing up, I didn’t know what mental health was—or even much about who I was. I was somewhat consciously aware, but something always felt off. My life seemed surrounded by reacting to fear instead of exploring or discovering like a regular kid. It felt like there was a switch in my brain that never let me settle in. My earliest compulsions were more physical than mental. One example that likely went unnoticed was how I would obsessively organize and align my toys in a certain way. It may have seemed like I was just being finicky, but now I recognize this as an early sign of OCD. The key is understanding that anything can become a compulsion—it’s not about what you do, but why you do it. In my case, it was always to avoid a bad outcome or neutralize a feeling. Another moment that stands out was in preschool during a performance. I was reciting something I can’t remember in front of an audience—a common childhood fear—but the way I coped was by repeatedly hitting myself in the head with my fist. I wasn’t aware I was doing it, but it calmed me, even though inflicting pain had no logical connection to the fear itself. Looking back, this was clearly a physical tic. My dreams were disturbing too. I’d experience that terrifying space between sleep and consciousness. My parents once had to put my limbs in ice just to fully wake me. And even the process of going to sleep became ritualistic. I had to jump into bed using my left foot, pray a specific way (including naming everyone I didn’t want to be affected by harm), rotate clockwise, shake my pillow four times, and do various actions around my room—cleaning, checking the door, and more. All to prevent the visions in my mind from becoming real. Teenage Years Though my childhood was tough, things really escalated in high school. My family life was chaotic—divorce, shifting homes, and being the older sibling trying to hold it together. I was smart and creative, and I found joy in creative writing, fantasy books, cartoons, video production, and drawing. But the storm really hit freshman year of high school. I was bullied relentlessly—for being shorter, having low self-esteem, and dealing with an undiagnosed mental illness. One night while trying to fall asleep, I noticed my heart beating fast. I panicked, convinced something was wrong. My dad said it was heartburn and gave me soda (caffeine), which only made things worse. I slept maybe an hour, and we went to the ER the next morning. After a full workup and an EKG, the doctor concluded I was physically fine and gave me anti-anxiety medication. But that wasn’t the end. I had more episodes. I became obsessed with the idea that something was wrong with my body. I had blood drawn thinking I had a thyroid issue. I panicked at doctor’s visits, which spiked my blood pressure, fueling more health fears. I was also in an advanced biology class, learning about diseases and cancers—which triggered me to the point I felt like I was going to pass out. Motion sickness and vertigo became a daily fear, and I became terrified it would never go away. That became a core theme in my health-related OCD and deeply affected my quality of life. It was also during this time I developed HOCD (Homosexual OCD). Intrusive thoughts about my male friends consumed me. I couldn’t relax around them or enjoy hanging out. I compulsively told myself I was straight, watched porn to “test” my reaction, and mentally analyzed everything I thought or felt. It was exhausting. It chipped away at my confidence, especially with women, though I know other external factors played a role in that too. Still, I had no education around mental health and assumed this chaos in my mind was normal—or that anyone seeking help had to be “crazy.” I couldn’t have been more wrong. Adulthood Despite all that, I managed to graduate high school with good marks—even finishing at a new school I attended for just eight weeks after moving in with my mom. College was a major turning point. For the first time, I experienced independence and the ability to sit with my thoughts. I still didn’t know what I was dealing with, but being away from a broken home and forging my own identity was incredibly freeing. Freshman year felt like a fresh start…until the pandemic hit. Like many others, I was forced to return home. For someone with OCD, the sudden lack of control and isolation was devastating. I was trapped in my room, stuck in my head, with nothing but virtual classes and uncertainty. Still, I eventually got back to campus, focused on my career in the sports and entertainment industry, and was accepted into a prestigious program while working multiple internships and completing challenging coursework. But with roommates and stress came new obsessions—and still, no diagnosis. I eventually sought therapy for anxiety, realizing my mental state was unsustainable. That’s when two of my most distressing OCD subtypes emerged: Staring OCD and POCD. They worked together in the worst way—fears of inappropriately staring at people, especially children. It felt like I couldn’t exist in public without fearing I’d harm someone just by looking at them. It shattered my self-worth. I couldn’t enjoy life, couldn’t even look in the mirror. The guilt and shame consumed me. I turned to talk therapy, where I was diagnosed with severe anxiety and depression. While sessions brought momentary relief, it quickly became clear I wasn’t getting better. In fact, the act of confessing my thoughts—seeking reassurance—was fueling the OCD. Still, I didn’t have the language for it. After doing my own research (a compulsion in itself), I discovered POCD and Staring OCD. For the first time, I read stories that sounded exactly like mine. I brought this to my therapist, but they dismissed it. Unfortunately, OCD is still widely misunderstood—even among professionals. Because I didn’t fit the “cleaning and checking” stereotype, I wasn’t taken seriously. In 2023—just two years ago—I found NOCD, a teletherapy platform specializing in OCD. I scheduled a free consultation, thinking “Why not?” I was miserable and desperate for relief. The therapist who evaluated me confirmed: I had OCD. She administered the DSM-5 criteria and said I was a textbook case. This was the turning point. Through NOCD, I finally received proper treatment with Exposure and Response Prevention (ERP). I learned how OCD functions, how to track and reduce compulsions, and how to sit with discomfort instead of running from it. It took time—5 to 6 months before I noticed true change—but for the first time in my life, I felt heard. I wasn't alone. NOCD gave me a judgment-free space to unpack the most disturbing thoughts and to not be defined by them. I won’t sugarcoat it—this journey has been painful, frustrating, and nonlinear. I still live with OCD every day. But now I have tools. I’ve continued treatment with multiple NOCD therapists, joined support groups, and practiced exposures: scripting, imaginal scenarios, response prevention, you name it. I’ve learned to live with uncertainty instead of trying to solve the unsolvable. The biggest lesson? Stop trying to figure it out. OCD is emotional, not logical. The moment I stopped trying to outthink it and changed my relationship with it, everything shifted. Today, I’m not “cured,” but I’m grounded. I’m more myself than I’ve ever been. And now, I want to give back. I want to share my story so others know that they’re not alone—and that OCD doesn’t have to rule your life. Whether you're 14, 24, or 44—there is help, and there is hope.
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