My boyfriend spent the night recently. I had to leave in the morning before him. When I got home I found that he had (very sweetly!) made my bed and even folded my special blanket at the end of my bed. But he hadn’t made my bed the way I always do and I felt compelled to redo it my normal way, effectively undoing his act of kindness. It was really frustrating and my non-OCD friends couldn’t understand. I’m glad to find someplace to share and find some validation and understanding.

If you are anything like me (and most of you are, because let’s face it, we are all on this chat), you have OCD. Real OCD, not the organisation, matching colours everyone thinks it is. Real OCD. I’ve always known I was different, known that my brain does some waking things and deep down, I’ve always known I’ve had OCD. But there is just something that changes when you finally get the diagnosis. It makes more sense, you have an explanation for your behaviours. So naturally I told my friends. When they ask why I had to stop and step four times on a tile I said ‘oh, I have OCD’. I finally had a word, a tangible concept that I could explain to people. But nobody warned me about the massive misconceptions about OCD. Instead of support or acceptance, my friends seemed to question the diagnosis saying ‘that’s not ocd, don’t you just like things organised?’. And no matter how much I explain it they don’t seem to get it. And that’s the part that feels so cruel. I go through hell in my head and it can all be reduced to a phrase of ‘oh, aren’t you organised’. So please be careful out there you guys, and if someone try’s to downplay your experience, know that you are valid and that what you are going through is probably something that they could never handle. It’s a lesson that took me time to learn, but it’s important because our experience matters. Our real experience.

I wanted to come on here and explain my OCD because I always feel so out of place since my OCD works a little differently than everyone else’s. If someone can relate to this, PLEASE LET ME KNOW! I’ve always felt so alone with not knowing what this feeling is and why it affects me so much. Okay so ever since I was a toddler, Ive had a fear of change I can’t control. when the weather changes I’d have anxiety attacks, and a cloudy day would make me feel like i’m not myself. I don’t recognize my surroundings and I would cry and close my eyes until I’m back to normal. When it was still bright out at 8pm in the summer, as a kid, we’d go to bed at 8:30. But I’d tell my dad that I couldn’t go to bed. Not because of the sun, but because I wasn’t used to it. I vividly remember how different my room would feel when the sun was setting at 9pm. I hated it to the point where it’d make me anxious and scared. As I’ve grown, I’ve understood what causes me to feel so out of place when it’s a rainy day. My routine has always been the same for the most part: I wake up, I run to the store to get a monster, I clean/watch tv/work/hangout with friends, and then at night (which is crucial), I’m in bed around 10pm & I burn incense and watch tv for a bit until i’m ready to sleep. When things get in the way of that schedule, I go in panic mode. It’s almost like derealization when something is off in my normal routine. Like I feel like I’m in a different home, a different timeline, a dream almost. Since i’m older, It takes more for me to feel this way, but when I was younger, just watching a movie in my room would set me off because I’ve never watched a movie as a part of my routine. I know this is all over the place but I always wonder if everyone feels this way, but my OCD just intensifies it. It’s such a big part of my life, this sort of anxiety. And I don’t know how to get rid of it. I want to have my friends stay the night, but I can’t have people overnight in my room because it’ll change the whole “vibe” of the room. Something unfamiliar happening in my room is a nightmare for me. Another thing: I enjoy rearranging my room quite often and I figure that’s because It’s change I can control. But I always dread the night after it’s changed and I have to force myself into getting used to how it feels and being used to the way things are. But it really takes a toll on me; sometimes I end up crying because of it. ALSO! This affects relationships as well. If I’m in a relationship, I have to let in someone who has never been apart of my routine and my schedule before and that’s terrifying and almost impossible to get past. I know if I just let myself get used to the new feeling of having someone APART of my routine/schedule I can get used to it, but it’s harddd. Lastly, going overnight to people’s houses isn’t awful for me, because It doesn’t affect what’s mine. Does that make sense? Since I’m not in my room, my house, my backyard, etc, there’s nothing to change. Only the fact that i’m in a different place which used to be an issue, but my body/mind has accepted that I will go to different places and i’m very optimistic so i’m not one to just live in a bubble for the rest of my life. I would love to travel, but I don’t know how I could when I fear so much change. I leave for college soon and i’m DREADING the change because I know a whole different room is going to have me stressing 😭😭. If anyone understands this feeling even just by a little, I greatly appreciate if you leave a comment or even if u don’t relate, advice would be helpful:) Thank you!

my roommates are great people and very supportive, but they don’t understand ocd. they try to fix me by telling me things i’ve heard a million times before, and by doing things that actively trigger me as a kind of exposure therapy. i’m very particular about contaminants in my water, but i have a specific aversion to tap water, which is why i have my own water dispenser. every few weeks, i fill jugs with filtered water and keep them upstairs so others can use them too. after getting home from work, i filled my cup with ice water and, for once, didn’t inspect it like i normally would. i drank it down. when i went for a refill, the ice had melted a bit and i noticed particulates floating in the water, instantly recognizable as calcium and other minerals from our tap. i don’t explode when i’m triggered. instead, i shut down. the anxiety starts to crawl in. i felt myself spiraling while i pulled out the jug. i know it sounds stupid, but i swear there’s a real difference in smell between filtered and tap water. i checked it, sniffed it, and confirmed what i already felt. and once that thought was in my head, it took hold. i felt disgusting. i wanted to make myself puke. i couldn’t tell if it was anxiety or the water itself, but it felt like something was burning a hole in my stomach. i sent a message in our group chat asking about it, and one of my roommates said they had done it to prove i wouldn’t be able to tell the difference. they said water is water, so i shouldn’t care. i know they meant well. but when people who don’t fully understand ocd try to force those kinds of steps on you, it sticks. it reminds me of my parents. they do things like this a lot, pushing back against my compulsions, trying to help by challenging them. and sometimes, i do appreciate that. but this felt like too much. it crossed a line. and i just needed to rant.