My boyfriend spent the night recently. I had to leave in the morning before him. When I got home I found that he had (very sweetly!) made my bed and even folded my special blanket at the end of my bed. But he hadn’t made my bed the way I always do and I felt compelled to redo it my normal way, effectively undoing his act of kindness. It was really frustrating and my non-OCD friends couldn’t understand. I’m glad to find someplace to share and find some validation and understanding.

I never heard about people with OCD who have messy living conditions. Maybe this is why it took so long to accept my diagnosis. Although I really dont like how OCD is percieved at by the majority of people, I feel like Im weird or something because I dont fit into that stereotype. I understand that a lot of people with OCD have this issue, but why do I feel so different? If anybody else has/had this belief, what helps with feeling more comfortable? Everytime my mom points out my room, and how its messy- Its like I feel so lazy and useless. So then I often plan out everything I was going to do, step by step, always having a reasoning behind everything, because logic always comforts me. When I start tidying up my room, I go full out (Sheets, Laundry, Clorox, Candles, Vaccuming, Then I start going through the guinea pigs cage to rearranging all of their stuff) Yet always somewhere after doing a few things, I start feeling disgusting and almost shameful of myself. 99% of the time I end up laying on my floor sobbing, noting every little thing about my room. How my furiniture doesnt match, how i would rather have solid floor like hardwood or vinyl instead of the carpet, usually things i cant change… and then barely anything gets done in my room. I start to have a meltdown and often dont take care of myself even more afterwards. A piece of me feels like my thoughts are just me being a spoiled brat and wanting everything i dont have- meanwhile others dont even have a roof over their head. The other piece of me is just tired, just emotionally exaughsted. Please comment any thoughts or recomendations to maybe improve motovation and attitude towards doing long tasks.

If you are anything like me (and most of you are, because let’s face it, we are all on this chat), you have OCD. Real OCD, not the organisation, matching colours everyone thinks it is. Real OCD. I’ve always known I was different, known that my brain does some waking things and deep down, I’ve always known I’ve had OCD. But there is just something that changes when you finally get the diagnosis. It makes more sense, you have an explanation for your behaviours. So naturally I told my friends. When they ask why I had to stop and step four times on a tile I said ‘oh, I have OCD’. I finally had a word, a tangible concept that I could explain to people. But nobody warned me about the massive misconceptions about OCD. Instead of support or acceptance, my friends seemed to question the diagnosis saying ‘that’s not ocd, don’t you just like things organised?’. And no matter how much I explain it they don’t seem to get it. And that’s the part that feels so cruel. I go through hell in my head and it can all be reduced to a phrase of ‘oh, aren’t you organised’. So please be careful out there you guys, and if someone try’s to downplay your experience, know that you are valid and that what you are going through is probably something that they could never handle. It’s a lesson that took me time to learn, but it’s important because our experience matters. Our real experience.

I wanted to come on here and explain my OCD because I always feel so out of place since my OCD works a little differently than everyone else’s. If someone can relate to this, PLEASE LET ME KNOW! I’ve always felt so alone with not knowing what this feeling is and why it affects me so much. Okay so ever since I was a toddler, Ive had a fear of change I can’t control. when the weather changes I’d have anxiety attacks, and a cloudy day would make me feel like i’m not myself. I don’t recognize my surroundings and I would cry and close my eyes until I’m back to normal. When it was still bright out at 8pm in the summer, as a kid, we’d go to bed at 8:30. But I’d tell my dad that I couldn’t go to bed. Not because of the sun, but because I wasn’t used to it. I vividly remember how different my room would feel when the sun was setting at 9pm. I hated it to the point where it’d make me anxious and scared. As I’ve grown, I’ve understood what causes me to feel so out of place when it’s a rainy day. My routine has always been the same for the most part: I wake up, I run to the store to get a monster, I clean/watch tv/work/hangout with friends, and then at night (which is crucial), I’m in bed around 10pm & I burn incense and watch tv for a bit until i’m ready to sleep. When things get in the way of that schedule, I go in panic mode. It’s almost like derealization when something is off in my normal routine. Like I feel like I’m in a different home, a different timeline, a dream almost. Since i’m older, It takes more for me to feel this way, but when I was younger, just watching a movie in my room would set me off because I’ve never watched a movie as a part of my routine. I know this is all over the place but I always wonder if everyone feels this way, but my OCD just intensifies it. It’s such a big part of my life, this sort of anxiety. And I don’t know how to get rid of it. I want to have my friends stay the night, but I can’t have people overnight in my room because it’ll change the whole “vibe” of the room. Something unfamiliar happening in my room is a nightmare for me. Another thing: I enjoy rearranging my room quite often and I figure that’s because It’s change I can control. But I always dread the night after it’s changed and I have to force myself into getting used to how it feels and being used to the way things are. But it really takes a toll on me; sometimes I end up crying because of it. ALSO! This affects relationships as well. If I’m in a relationship, I have to let in someone who has never been apart of my routine and my schedule before and that’s terrifying and almost impossible to get past. I know if I just let myself get used to the new feeling of having someone APART of my routine/schedule I can get used to it, but it’s harddd. Lastly, going overnight to people’s houses isn’t awful for me, because It doesn’t affect what’s mine. Does that make sense? Since I’m not in my room, my house, my backyard, etc, there’s nothing to change. Only the fact that i’m in a different place which used to be an issue, but my body/mind has accepted that I will go to different places and i’m very optimistic so i’m not one to just live in a bubble for the rest of my life. I would love to travel, but I don’t know how I could when I fear so much change. I leave for college soon and i’m DREADING the change because I know a whole different room is going to have me stressing 😭😭. If anyone understands this feeling even just by a little, I greatly appreciate if you leave a comment or even if u don’t relate, advice would be helpful:) Thank you!