It boils my blood when people think they are ocd because They use hand sanitizer once in a while or like a clean house. The term is used really loosely at my work and it bothers me. They have no idea what we go through.

When I hear the others might think that they could also have ocd when I tell them I could have it or they want to say they have it after I’ve got diagnosed with, without knowing how I feel it is like why do I always have to have something and then they say they also might have it are they supporting, joking or what?

I know that sounds a bit harsh, but people with OCD think very differently then everyone else and we do strange things. I used to think OCD was just that we overthink to much and have compulsions to fix it, but its kinda alot more than that i realise. Like peoples lives are legit debilitated from this thing. Thats serious and i dont think others realise that. Mabye im concerned too much idk.

If you are anything like me (and most of you are, because let’s face it, we are all on this chat), you have OCD. Real OCD, not the organisation, matching colours everyone thinks it is. Real OCD. I’ve always known I was different, known that my brain does some waking things and deep down, I’ve always known I’ve had OCD. But there is just something that changes when you finally get the diagnosis. It makes more sense, you have an explanation for your behaviours. So naturally I told my friends. When they ask why I had to stop and step four times on a tile I said ‘oh, I have OCD’. I finally had a word, a tangible concept that I could explain to people. But nobody warned me about the massive misconceptions about OCD. Instead of support or acceptance, my friends seemed to question the diagnosis saying ‘that’s not ocd, don’t you just like things organised?’. And no matter how much I explain it they don’t seem to get it. And that’s the part that feels so cruel. I go through hell in my head and it can all be reduced to a phrase of ‘oh, aren’t you organised’. So please be careful out there you guys, and if someone try’s to downplay your experience, know that you are valid and that what you are going through is probably something that they could never handle. It’s a lesson that took me time to learn, but it’s important because our experience matters. Our real experience.