- Date posted
- 4y
- Date posted
- 4y
So my story is kind of strange. OCD was never even on my radar until last month. I was listening to a podcast that discussed mental health issues, but it wasn't a mental health podcast. I decided to listen to an episode that featured a guest that has OCD. Prior to that, I thought OCD was just handwashing and wanting things very neat and organized. So I was beyond shocked when I realized I had many of the same thoughts and experiences as the person with OCD. I started to think I had OCD as well. I decided to do some research to prove to myself I didn't have OCD. But it did the opposite. Once I knew what to look for, I realized I started experiencing intrusive thoughts starting around age 8. For the first time, things I had written off as personality quirks started to make sense. I realized for the first time that my thoughts and experiences weren't normal. I believed everyone struggled the way I did. Shortly before starting treatment, I had one of the darkest periods of my life. I knew I needed professional help. But I felt completely hopeless. I didn't believe anything would change. I went into my OCD assessment believing that my counselor would tell me I didn't meet the criteria for OCD. But instead, I got diagnosed with OCD at age 45. ERP was brutal. But it works. I have made major progress. I haven't reached recovery yet, but I am determined to get there. ERP has been life changing for me.
- User type
- OCD Conqueror
- Date posted
- 4y
Thank you for being so brave and sharing your story jere! It’s so hard when you’re dealing with multiple themes! I struggle with rocd and hocd and it has completely destroyed me. It’s so scary because I’m in a long term relationship with my bf and it’s been so hard. But you are not alone !
- Date posted
- 4y
Thats very brave to tell your story and put yourself out there like that. Im almost done with ERP! Keep pushing through, its worth it! Best of luck on your healing journey!
Related posts
- Date posted
- 18w
Hi everyone! I’m feeling better today. I had a really bad flare yesterday, my husband really helped me calm down and fall asleep. However, if you have health OCD I feel like you probably shouldn’t read this post unless you are in a good head space. I do not have health OCD. So, I’ve been dealing with a lot of symptoms and health issues that have led me to alot of doctors visits, I have several different doctors that specialize in specific things and now go to an internal medicine doctor. My doctor thinks I have an autoimmune disease, so I’m running alot of tests for several different autoimmune conditions. My OCD has been dormant for a while. I would still deal with it sometimes, but it was way easier to manage. I’m not medicated for OCD. However, I do use arthritis cream and was prescribed muscle relaxers, I have not yet taken the muscle relaxers. So I had a really bad OCD flare last night, specifically Relationship OCD. My husband has just seen parole and I’m super excited for him to come home, but my OCD was trying to convince me otherwise. I also have a new nephew that was born on the 22nd. So I am out of state and was watching my niece for my sister in law. A lot of exciting things happening at once. I’m assuming that triggered my OCD. But I’ve been swelling in my face and dealing with a little bit of body pain as well. Autoimmune diseases come in flares like OCD. I have done some research on autoimmune diseases so I can know what I need to do in order to keep it under control if that’s what I do get diagnosed with. I learned that some autoimmune diseases are linked to OCD, or can even cause OCD because of inflammation in the brain. & It gave me a glimmer of hope honestly. Could my OCD have started because of an autoimmune disease? Could I get better by treating it? My OCD didn’t kick start until I was about 19. I am now 23. I did have symptoms of OCD at 17 though, I went through a period of time where I was compulsively praying and in a cycle of intense anxiety. So I probably had it since I was 17, but I don’t know. My symptoms of autoimmune disease didn’t start until about a year ago, but it could’ve been longer. I couldn’t get rid of a UTI I had for MONTHS & didn’t know why. I had to see a urologist, I was 21 when I kept getting UTI’s. I had to get a procedure done, I had pus build up in my urethra that was almost completely blocking off my urethra. I do not know how the infection got that severe.. especially because I took antibiotic after antibiotic. I felt like I’d get better for a few days, then boom…UTI symptoms once again. So.. that could’ve been the start of autoimmune symptoms. With an autoimmune disease, your immune system is pretty trash. You don’t fight off infections or illness as easy as others. I remember how I’d get sick after everyone else in the house would get sick, but I’d get it so much worse and have the illness for much longer than everyone else. Surprisingly enough, I never got COVID. My whole family had it & I didn’t get it. Unless I did and just didn’t have symptoms. Anyways, I never thought I would say this.. but I hope I do have an autoimmune disease that caused OCD so that I can treat the autoimmune disease and keep my OCD dormant for as long as possible. I forgot what it was like to deal with OCD.. it was so bad lastnight, I remember feeling that type of anxiety and it’s the worst.. 💔 If you took the time to read, thank you! I seem like a charity case lol.. I never thought by 23 years old I’d be like this.
- Date posted
- 17w
this is the most i will ever go into depth about my mental health, all in one post; all in one sitting. this will be draining. to start this off, yes, i have OCD—but i also have several other disorders as well. some of my diagnoses that will come to light in this have a strong correlation to comorbidity and so instead of this being a story simply about my OCD, i will cover all areas of my mental health. for readers, i want it to be clear; this is for me. i’m doing this to put my story out. i hope you find some interest in what i have to say, but in the end, my intentions are strictly to make my damage good. symptoms of my mental issues were present frequently in my childhood experience. for years i avoided any truth to how i thought or felt. thinking, feeling, acting—all 3 were never in cohesion. i had a very anti-social attitude towards life for most of my pubescent years. i got use to faking and manipulating to appear a certain way when i knew i was at risk of punishment; it allowed me to get away with a lot of immoral behaviors for a long time before i eventually was forced into counseling from a school fight i had initiated. i was roughly 14 at this time. counseling was my initial therapy for a while. i have since seen 5 therapists. i can’t say any of those therapists knew a single truth about me, really—with a mixture of pathological lying and a bad masking habit, I was stopping myself from getting any real treatment. i don’t know why, but for a long time i was content with this truth. a part of me never really felt the need to address it. my manipulative behaviors were often unintentional and not once had i sought a need to be callous, even when doing the things i was doing. with every new therapist, i had tuned my personality specifically to fit them—a concept that i don’t have a name for but now can dissect in immense detail. i would take parts of my personality and accentuate them to fit the attitudes and interests of particular people. in my head it was always about admiring the story. nobody was real; everyone was a character, everyone was a unique, self-manifested character. i just made my character with greater intents. i was a good listener, i think understanding that made me get more comfortable with my destructive and manipulative tendencies. when someone believes your listening, like really, actively listening—they’ll eventually tell you everything about themselves. now for a slight addressing of the obvious, i want it to be clear, i’m not describing ASPD—aka, the real life equivalence of sociopathy. i do think i show strong signs of it early on in my youth, and i bring these behaviors up because i think the issues that i do have developed from my anti-social behaviors—however, i was a child; i didn’t know the consequences of my behavior like i do now. if anything is needed to be said here, it’s best to address the following events like this: i understand now, i didn’t understand then. turning 15, i had started off 2023 in a relationship that meant a lot to me—a lot more to me than anything in my life leading up to this point. it’s best to address this now as well—i don’t feel a lot, but when i do, it’s usually irrationally intense and feels completely uncontrollable. at this time, i had gotten over a lot of my anti-social tendencies by now and have spent the last year improving myself after the things i had done began hurting the people i valued most. from a long list of lying, manipulating, preying, harassing, even stabbing people with whatever sharp thing was at my disposal—i had come a long way in creating a character that i actually liked. an important thing to keep in mind during this time was the early development of my OCD that had initially come in the form of suicidal ideation. most of the people in here i’m assuming are people that personally have OCD and understand that it’s not a disorder based in the stigmatized-lens of perfectionism but rather an irrational need for certainty. death quickly became my “ultimate form of certainty” in my teenage years as i turned to the concept like a comfort place—a hand on my shoulder saying “it’s okay, you can fuck up however you might, there’s always a way out.” i had not been truthful about that in therapy either, nor did the several medications prescribed in my lifetime ever do something of benefit to what my issues actually were. of course, i blame no one but myself for not benefiting from outside sources. skipping over a lot of meaningless detail—the gist of the year went like this: Jan-April relationship breaks up badly—in my irrational state, i attempted to take my life and was hospitalized, and eventually, institutionalized. i stayed there for 11 days. at the time the only diagnoses they could make of me was MDD and ASD with slight signs of generalized anxiety. May-August i get extremely medicated and start taking 150+ pills a month to maintain what at the time was being treated for bipolar and schizophrenia. i was too young to see my clinical record, and i assume they wouldn’t tell this to a minor, but it seems they believed whatever my issues really were—i was simply too young to get an accurate assessment. September-December the medication makes me completely apathetic and my loss of care for life brought back my irrational gimmicks and self-destructive tendencies. i, in a 4 month period, ruined every single relationship i had kept close to me. 2024. i was alone. i stopped taking my pills due to a loss of interest and excessive weight gaining but it made my intense emotions start to bite me again. this was the year my OCD had fully developed and by April, i was diagnosed after failing a risk-assessment. for a long period of time, i lived a meaningless, uneventful, isolated life. that year, i let my mental health take over all acts of my being. i got deep into philosophy, psychology, pathology, a lot of tv shows built around psychological dynamics—i was desperate to understand this parasite that seemed to destroy my life without any awareness. i never wanted it to take the years it did since i was initially that 13 year old boy, but i write this now with a simple truth—a truth i refused to let myself believe until recently. i can’t fix this. the more i feed into it, obsess over it—the more these issues are going to worsen. for years i wasted my days thinking i was trying everything i could and it just wasn’t working. i couldn’t accept the fact that i don’t control this, and despite being told that again and again—it never got through to me until i spent the last week not feeding into the OCD and emotional dysregulation, and for the first time, i didn’t find myself counting the seconds that passed me by. it might not mean that much for an outsider looking in, but since my OCD had fully developed—i would always be counting the seconds in the back of my head, not like 1231, 1232, 1233… but as a tick of a metronome that made me always aware of the time. the days where this wasn’t annoying, it was boring, which i ultimately hated more. i’m seeing a light i haven’t seen in years, and with it i keep reaching the same notion—i wish i didn’t waste so much of my life being miserable. i’m getting a psychological evaluation within the next month. i’ve been out of therapy for about a year now but i’m going in now looking to help myself. this is specifically for my emotional dysregulation. my current theories revolve around cluster B personality types, 1 of 4 including ASPD as i had mentioned earlier, albeit my bet is actually on BPD (Borderline Personality Disorder.) I crossed off Borderline for a long time because the symptoms list always felt too broad, but the more i understand the disorder—the more i feel connected to it. my theory comes from several factors—my rapidly changing self image, my impulsive/erratic behaviors, my irrational emotions, my long history of unconventional relationships, my fear of abandonment, my chronic emptiness, my history of self harm, etc. this is not confirmed however, and i wish to get an evaluation specifically for the disorder. getting a personality disorder diagnosed in a minor isn’t easy, but i’m doing it half for the certainty of just knowing—and half for potentionally getting a medication that can help me live a healthy-adjacent life. i never thought i would see a life free of obsession since being diagnosed with OCD. now i can enjoy the silence. thanks for reading. any commentary appreciated.
- Date posted
- 12w
I suffer since 10 - 15 yrs from specific fears. It was years that my OCD constantly wanted to be checked if I have HIV or not. I had a lot of sex and I thought this is normal. But I ruminated in my backhead about and was testing like 5 - 10 times a year. After the test I felt everytime so relieved. In Corona I was addicted to porn and even I lost control and was watching pretty hard stuff. I was chatting with a girl and we fantasized about really disturbing things. I never wanna meet her and for me was sure it's just kinda onlinestuff. I was in a relationship 3 years now. And I lost fear of HIV. But then came Morality OCD, Real Event (this chat) and after some times POCD. This combination was knocking me out, I felt like the badest person on earth. I did everything wrong and searched for relief and reassurance. It put me to the point of suicidal. I never ever hurting somebody, but my brain was making me a monster. I had to quit the relationship because I just couldn't give her what she deserved. I was in a clinic for 3 months. And we tested medication with ERP (before I took escitalopram for years). Anafranil was working first, then too many side-effects. I tried even without meds, but was so depressed. Now on sertralin for 5 weeks, but only 2 weeks on therapeutic dose 200mg. And wow, now I really feel so confused in the brain. I feel like how big my OCD became. The specific thoughts are not anymore, BUT it sticks on EVERYTHING atm. It's delusional how it feels in the brain. I really hope so deep my brain makes finally a reset and I need to wait it out. I could live with OCD for a long time but the last 1-2 yrs it took absolutely everything. I remark that POCD doesn't stick anymore like before but my brain is now constructing a very bad future because of past mistakes (that I all discussed with family, friends for relief over and over and over again). So it's like my OCD is now Real Event (The sexchat) again. Anyone was on the same point in life?
Be a part of the largest OCD Community
Share your thoughts so the Community can respond