- User type
- OCD Conqueror
- Date posted
- 3y
Looking back, I realize I’ve had OCD since I was 7. though I wasn’t diagnosed until I was 30. As a kid, I was consumed by fears I couldn’t explain: "What if God isn’t real? What happens when we die? How do I know I’m real?" These existential thoughts terrified me, and while everyone has them from time to time, I felt like they were consuming my life. By 12, I was having daily panic attacks about death and war, feeling untethered from reality as depersonalization and derealization set in. At 15, I turned to drinking, spending the next 15 years drunk, trying to escape my mind. I hated myself, struggled with my body, and my intrusive thoughts. Sobriety forced me to face it all head-on. In May 2022, I finally learned I had OCD. I remember the exact date: May 10th. Reading about it, I thought, "Oh my God, this is it. This explains everything." My main themes were existential OCD and self-harm intrusive thoughts. The self-harm fears were the hardest: "What if I kill myself? What if I lose control?" These thoughts terrified me because I didn’t want to die. ERP changed everything. At first, I thought, "You want me to confront my worst fears? Are you kidding me?" But ERP is gradual and done at your pace. My therapist taught me to lean into uncertainty instead of fighting it. She’d say, "Maybe you’ll kill yourself—who knows?" At first, it felt scary, but for OCD, it was freeing. Slowly, I realized my thoughts were just thoughts. ERP gave me my life back. I’m working again, I’m sober, and for the first time, I can imagine a future. If you’re scared to try ERP, I get it. But if you’re already living in fear, why not try a set of tools that can give you hope?
Hi everyone, I’m Cayla. I’m a mom that’s lived with OCD since childhood, but my breaking point came more recently after having my son. I was consumed by terrifying thoughts—What if I hurt him? What if I did something awful without realizing it? I was so afraid of my own mind that I couldn’t be alone with him. The shame and exhaustion were unbearable, and I convinced myself I was broken. In 2024, I finally sought help. ERP therapy at NOCD was one of the hardest things I’ve ever done, but it saved my life. Even now, I have tough days, but I know I don’t have to be ruled by OCD. When my 12 year old daughter began showing signs of OCD, I felt overwhelmed with guilt. I never wanted her to go through what I had, but I knew what to do. I told her that I have OCD too and made sure she knew it wasn’t her fault—and that she wasn’t alone. One of the hardest parts of this journey was trusting someone else with my daughter’s OCD. I knew how vulnerable it feels to share intrusive thoughts, and I wanted her to feel safe. Her NOCD therapist was able to establish trust and genuine empathy from the start, and that relationship gave her the confidence to face ERP head-on. Seeing her build that trust made me certain she was in the right hands. ERP has helped both of us reclaim our lives, and it is beautiful to see my daughter managing her condition and making visible progress. Parenting with OCD while raising a child with OCD isn’t talked about enough, but I know so many parents are struggling with these same challenges. If you have questions about managing OCD while parenting, helping your child through ERP, or breaking cycles of guilt, drop them below—I’d love to share what I’ve learned. I’ll be answering all of the questions I receive in real-time today 4-5pm ET.
Looking back, my introverted nature and struggles to find belonging in high school may have set the stage for how OCD would later impact my relationships. I had my first relationship in high school, but OCD wasn’t a major factor then. It wasn’t until my longest relationship—six years from age 18 to 24—that OCD really took hold. The relationship itself wasn’t the issue; it was what happened after. When it ended, I became obsessed with confessing past mistakes, convinced I had to be completely transparent. Even when my partner was willing to work past them, I couldn’t let go of the intrusive thoughts, and that obsession landed me in the hospital. From there, my struggle with ROCD (Relationship OCD) fully emerged. For years, every time I tried to move forward in dating, doubts consumed me. I would start seeing someone and feel fine, but then the questions would creep in: Do I really like her? Do I find her attractive? Is she getting on my nerves? What if I’m with the wrong person? I’d break things off, thinking I was following my true feelings. But then I’d question: Was that really how I felt, or was it just OCD? I tried again and again, each time hoping I could “withstand it this time,” only to fall back into the same cycle. The back and forth hurt both me and the person I was with. By the time I realized it was ROCD, the damage had been done, and I still hadn’t built the tools to manage it. Now, at 28, I know I need to approach dating differently. I recently talked to someone from a dating app, and my OCD still showed up—questioning my every move, making me doubt my own decisions. I haven’t yet done ERP specifically for ROCD, but I know that’s my next step. Just like I’ve learned tools for managing my other OCD subtypes, I need a set of strategies for when intrusive doubts hit in relationships. My goal this year is to stop letting uncertainty control me—to learn how to sit with doubt instead of trying to “figure it out.” I want to break the cycle and be able to build something healthy without my OCD sabotaging it. I know I’m not alone in this, and I know healing is possible. I’m hopeful that working with a therapist will help me develop exposures and thought loops to practice. I don’t expect to eliminate doubt entirely—after all, doubt is a part of every relationship—but I want to reach a place where it doesn’t paralyze me. Where I can move forward without constantly questioning whether I should. And where I can be in a relationship without feeling like OCD is pulling the strings. I would appreciate hearing about your experiences with ROCD. Please share your thoughts or any questions in the comments below. I’d love to connect and offer my perspective. Thanks!
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