I feel isolated in the OCD community sometimes…… outside of this app absolutely NO ONE recognizes anything that isn’t numbers, objects, or germs. In fact, to some people it’s laughable to mention harm, SO ocd, rocd etc. they think just because they can’t see the illness in action, that it simply doesn’t exist. I’m sick of it. I and many others who suffer from this type has never given a fuck about numbers, germs, perfectionism- so why is it the ONLY poster child of this illness??? Why does it only contain 3 forms of representation?? Makes me feel even worse and doubtful of my illness….

Lately I’ve seen way too many comments under posts about OCD, especially the harm, POCD, and relationship themes that are incredibly misinformed and honestly harmful. People saying things like “these thoughts are unnatural,”or “you need to go get real help” and encouraging confession ***compulsions*** when they clearly have no understanding of how OCD actually works. Let me be clear: OCD involves distressing and unwanted thoughts, images, or urges. That doesn’t make someone dangerous. It makes them someone with a mental illness who is terrified of their own brain. Saying these people are “unnatural” or implying they’re broken only reinforces shame, and shame is the opposite of what helps anyone heal. If you’re commenting under OCD-related posts on an OCD ***app*** without understanding what intrusive thoughts are, or what compulsions can look like, or **how OCD can attach itself to the things we fear most** then please, stop. You are not helping. You’re reinforcing stigma and pushing people further into silence. OCD is already isolating. We don’t need more people moralizing or projecting trauma theory onto something they haven’t experienced or don’t understand. If you really care, go learn. Read about intrusive thoughts. Learn about ERP therapy. Or maybe just listen. Because some of us are barely hanging on, and comments like those don’t just miss the point, they can do real damage. I’m sorry if I come off too angry, it just really upsets me to see people speak on something they clearly don’t understand. End of rant. Thank you for reading 🤍

If you are anything like me (and most of you are, because let’s face it, we are all on this chat), you have OCD. Real OCD, not the organisation, matching colours everyone thinks it is. Real OCD. I’ve always known I was different, known that my brain does some waking things and deep down, I’ve always known I’ve had OCD. But there is just something that changes when you finally get the diagnosis. It makes more sense, you have an explanation for your behaviours. So naturally I told my friends. When they ask why I had to stop and step four times on a tile I said ‘oh, I have OCD’. I finally had a word, a tangible concept that I could explain to people. But nobody warned me about the massive misconceptions about OCD. Instead of support or acceptance, my friends seemed to question the diagnosis saying ‘that’s not ocd, don’t you just like things organised?’. And no matter how much I explain it they don’t seem to get it. And that’s the part that feels so cruel. I go through hell in my head and it can all be reduced to a phrase of ‘oh, aren’t you organised’. So please be careful out there you guys, and if someone try’s to downplay your experience, know that you are valid and that what you are going through is probably something that they could never handle. It’s a lesson that took me time to learn, but it’s important because our experience matters. Our real experience.

Sometimes I feel like nobody really gets me. Nobody knows what’s going on in my head. I try to explain in vivid detail, but my ocd immediately reads the other persons face and registers that they don’t get it. It’s a very isolating experience. Anyone else have something like this?