I very rarely see posts from anyone with somatic ocd. is there anyone else out there who struggles with this?

Hi everyone, I’m Andrea and I am a member of the Intake Team here at NOCD. In junior high, I was known as the “aneurysm girl” because I was convinced any small headache meant I was dying. At just 12 years old, I read something that triggered my OCD, and from that moment on, my brain latched onto catastrophic health fears. Any strange sensation in my body felt like proof that something was seriously wrong. I constantly sought reassurance, avoided being alone, and felt trapped in an endless cycle of fear. Over time, my OCD shifted themes, but health anxiety was always there, lurking in the background. I turned to drinking to numb my mind, trying to escape the fear that never let up. Then, in 2016, everything spiraled. I was sitting at work, feeling completely fine, when suddenly my vision felt strange—something was “off.” My mind convinced me I was having a stroke. I called an ambulance, launching myself into one of the darkest periods of my life. I visited doctors multiple times a week, terrified I was dying, yet every test came back normal. The fear never loosened its grip. For years, I cycled in and out of therapy, desperately trying to find answers, but no one recognized what was really happening. I was always told I had anxiety or depression, but OCD was never mentioned. I was suicidal, believing I would never escape the torment of my mind. It wasn’t until 2022—after years of struggling, hitting rock bottom, and finally seeking specialized OCD treatment—that I got the right diagnosis. ERP therapy at NOCD was the hardest thing I’ve ever done, but it saved my life. Today, I’m 34, sober, and living a life I never thought was possible. Do I still have hard days? Absolutely. But I am no longer a prisoner to my fears. The thoughts still come, but they don’t control me anymore. They don’t dictate my every move. Life isn’t perfect, but it no longer knocks me off my feet. If you’re struggling with health OCD or somatic OCD, I see you. I know how terrifying and isolating it can be. But I also know that it can get better. If you have any questions about health & somatic OCD, ERP, and breaking the OCD cycle, I’d love to tell you what I’ve learned first hand. Drop your questions below, and I’ll answer all of them!

Hello, my name is Brittany, and I have been living with obsessive-compulsive disorder (OCD) for as long as I can remember. However, since experiencing a stroke that I believe was a result of chiropractic care, my struggles have intensified and become overwhelmingly exhausting. I have always been acutely aware of my body and its signals, which has led to a heightened sense of worry about potential health complications. Though I’ve always had a tendency to worry, the anxiety that has surged since my stroke feels insurmountable. I’m reaching out in hopes of connecting with others who understand this journey, sharing stories and experiences in the hope that, one day, I might find a way to overcome these challenges or at least discover some relief from the relentless grip of anxiety.

Anyone else struggle with somatic OCD and any pain/feeling slightly different is so noticeable and you feel like you’re just going to collapse or something? Like my ocd always convinces me that any sort of pain is related to some kind of illness that can cause a bad outcome or even death. If so, please share your tips of how to improve with this type of ocd 😭