Anyone here with cOCD who had their symptoms almost completely disappear after changing their environment? I'm still on my personal misdiagnosis quest and I'm wondering if it's part of OCD for those diagnosed. I was in a horrible place and moved back home, and a couple family members are currently covid+ and I just wear my mask and have zero anxiety about it.

I feel like I’ve had a lot of different categories of ocd. Some categories stick with me more and are repetitive. I’ve been doing well with mental health - not having anxiety stick around. When the physical feeling of anxiety sticks around, every thought is horrible, but when the feeling of anxiety is gone the obsessions don’t really impact me. If I can keep anxiety at bay, my life is good. I’ve been doing well lately, although this week I was scrolling through tictok and watched a video about someone in a coma and wondered if I was in a coma right now and didn’t know it. I had a panic attack for about 15 minutes. Anxiety, sweating, etc. It didn’t take ahold of me and it quickly lost its impact on me. It still shook me and I was just like “wow” where did that come from. Now I am staying away from social media. Is that avoidance? Should I make myself keep watching social media? Many ocd problems have come from social media or watching a movie or show that triggers something and then spirals. I am limiting what I watch, which I believe is good because I shouldn’t be watching that stuff anyway. What do you think?

i’ve unfortunately fallen into the cycle of trying to figure out my thoughts and find answers as to why i feel so distressed. this still pertains to the situation regarding changing my room for those reading who have seen my multiple posts over the last few days. i’ve been so distressed and in so much panic about it. i’m also panicking over my other room looking so different from when i left it. it’s been making me feel crazy because to me there’s no reason for my anxiety to latch so hard onto something that seems so minuscule. i was thinking i was having anxiety over change, but it’s like symptoms of ocd too that’s making it really hard for me to let go. SO i started thinking maybe it was perfectionism ocd? i’ve realized over time that i do compulsions to where things have to feel “just right”, but i also do that with any environment i’m in. like it HAS to feel cozy to me and provide me comfort in order for me to feel at ease. and this change is causing me to panic because there’s something wrong that i can’t find an answer to. maybe the different colored carpet? but it’s also more than that it feels like. however, now it’s spreading into other areas of my house where i’ve always been fine in and possibly to just any area i’m in at all. hence why it’s making me feel crazy because there’s no reason for me to be THIS distressed over that as i’ve never really had this problem before. and when i did it would last maybe an hour to a couple of days at most, but this has been going for over 2 weeks with my really bad anxiety being this week. i’m doing a little better, but it’s still hard when i can feel that panic waiting for me to acknowledge and just engulf me in the ocd cycle. i’m also analyzing basically any feeling i have so i just feel off in general and like i’m going insane. i’ve been so hyper focused on how i feel and that will send me spiraling too. multiple themes then start coming in like existential ocd and fear of solipsism. not to mention my harm and contamination ocd that just adds on when i’m this vulnerable. then i worry if no one is real, then no one feels the way i do. or just in general that what if no one feels the way i do. honestly, i think being out of college and in my house with nothing to do is causing me too much time with my thoughts. which is why i’m so distressed about everything that pops into my brain.

Some background: I’m a woman in my 30s who’s been struggling to find the right diagnosis for years. Since 2022, I’ve had multiple psych hospital stays, and with each stay came a different diagnosis and different sets of medications: Bipolar II, CPTSD, MDD with psychotic features, “high functioning BPD,” and most recently, Schizoaffective Disorder (depressive type). Before all of that happened, I had been seeing a therapist for CPTSD and AuDHD traits for 2 years, but after they left the practice, I struggled to find someone I trusted again. Most of my breakdowns happened during my last relationship. Looking back, I was in survival mode with them, leaving who *I* am behind. I got to the point where I started doubting my own reality from the abuse. This eventually added up and landed me in my first episode of psychosis. That combined with my attempts is what got me my schizoaffective diagnosis. After finally leaving that relationship 1.5 years ago, I’ve slowly rebuilt my life: new town, new job, new friends. Many of my old symptoms (major ones) haven’t returned, which makes me believe I may have been misdiagnosed due to reliving past childhood trauma and stress responses from the abuse. Through all of this, I’ve felt like nothing ever truly fit. I journal, I reflect, I replay the recordings and I’ve even watched old vlogs –the puzzle pieces still don’t come together. It’s left me feeling like I’ll never really know what’s going on, and I’ve started to fear that my diagnoses will just keep stacking up without ever leading to effective treatment. Recently, I opened up to a friend about this. She mentioned that her neighbor went through something similar not exactly like me but she thought it would give me a starting point—multiple diagnoses that never felt right—until a new doctor finally identified it as OCD. That one diagnosis changed everything for her. It made me realize I really don’t know much about OCD beyond the stereotypes. I didn’t know OCD could involve intrusive thoughts, rumination, or mental compulsions. My friend encouraged me to look into it, especially as I start searching for a new therapist. Facebook and Google lead me here… So now I’m wondering: could OCD be a better explanation for what I’ve been experiencing all these years? Questions for the community: 1. What steps did you take to find out if OCD was what you were dealing with? 2. If you had a long history of misdiagnoses, how did you finally find a clinician who got it right? 3. How did you advocate for yourself when people dismissed your concerns? 4. Is there anything you wish you had done earlier in your OCD journey? Thank you so much if you made it this far. I’m really grateful for this space and just want to start finding answers and the right kind of help.