- User type
- OCD Conqueror
- Date posted
- 3y ago
I wouldn't classify my self as having severe ocd. But I have been dealing with ROCD for about 4 years and I have gotten better results from ERP therapy here then I ever have through other therapist and my own methods.
Thank you! How often do you have therapy? I say severe because just a year ago I tried ERP and didn’t work, I did IOP and felt like I was just being exposed and then I’ll go back to compulsions, or maybe I was doing wrong wrong I don’t know. My therapists then suggested I commit to IOP every day and I couldn’t do it. I quit, it was so hard and I wasn’t getting any better. With NOCD , I hear many people get better and I keep thinking how? Should I try it?
Yes but I even doubt it , as a compulsion , I take ocd tests, I contact different therapist and read articles to make sure it’s ocd and even though right now I know it’s ocd, I don’t always believe it
Omg, thank you so much for yo to post. I guess I’m reluctant to treatment in some ways because it didn’t work the first time. I was doing IOP twice a week 1.5 hour each day, but my therapist said that I needed more, perhaps every day because I was losing sense of reality? I was believing all my ocd thoughts and had lost insight. Anyways, it’s been 6months that I stopped IOP and am looking to go back to perhaps doing a more intense treatment. Maybe, everyday. How much IOP did you do?
You're welcome! I did an IOP that ran 5 days a week. M-T was 3.5 hours a day (2 hours ERP), and F was 2.5 hours a day (1 hour ERP). That was the right amount for me, but I know it can be hard when you have work and family obligations on top of that. But I definitely think it could be something that's worth exploring for you again, even if it's just to investigate what's out there and what might best suit your needs. <3
Ok, I think if I can handle this, I would like to be an NOcD peer advisor.
We'll for starters, I would make sure so was financially stable. If so, assuming that dealing with life when OCD runs the show really freaking sucks for you, what do you got to lose? OCD is the hardest thing I've ever experienced and I'd be damned if I didn't give not feeling so shitty a chance.
If you feel comfortable answering, what are your themes?
I’ve suffered from ROCD, Harm, POCD and HOCD. Right now, HOCD. As you know, ocd jumps from theme to theme
Is HOCD harm ocd?
No, the other
Oh ok, is that the same thing as SO OCD? ROCD has always been my theme but there was a short time that I wondered if the reason I have rocd is because I'm actually gay. That managed to go away pretty quickly though for me.
Yes 😢
Not for me
Mine started with POCD, then jumped to Harm, then jumped to ROCD and finally HOCD. I’ve recovered from POCD but not the other themes
That must be rough dude. For me the hardest thing is objectively seeing that it's OCD but it feeling like it's the truth
Same, most of the time it doesn’t seem like it’s ocd and it’s me and I panic!!!! The hardest thing for me has been suffering with this for so long and not knowing I had ocd
When did it start to dawn on you that you had OCD?
Well, I had all those intrusive thoughts that began 13 years ago, I thought I was going crazy. So, I hit rock bottom, no one knew what to diagnose me with. They said GAD. Maybe a few years later, I started researching online and found intrusive thoughts eventually hit OCD and got diagnosed last year
Did it feel a little better to finally have a diagnosis that makes sense?
Me neither. The uncertainty is the most unbearable part.
Yes! I literally have obsessions and compulsions from when I wake to when I go to sleep
What are some of the obsessions and compulsions you've been going through lately?
Well it’s all related to that theme and I ruminate all day and research to make sure it’s ocd
Would you say your compulsions are more mental then physical? That's how it is with me. There are some physical ones like looking for signs in words or letters I see around me. Or trying to feel affectionate feelings during intimate moments.
Yes
I do the same with ROCD
Heya, I've recovered from extremely severe OCD with the help of NOCD. I worked with NOCD for a couple of months, but then I got worse (for unrelated reasons) and they recommended I do an IOP. It helped, but I wound up relapsing and had to go back to IOP for a further 7 weeks. That time, the improvements stuck. But the point is that in that whole period, if I wasn't in IOP, I was working with NOCD. I'm still working with them now. And even though I wasn't always doing the NOCD program specifically, I remained in touch with my NOCD therapist and felt like NOCD staff were supporting me that whole time. Having them play that role for me made a huge difference in my recovery. I saw in the comments that you did an IOP too and that you didn't feel like it helped you. I'm sorry for that. In terms of treatment, NOCD offers a similar ERP approach to what you'd get in most OCD IOPs, but with a smaller amount of hours per week. If a NOCD therapist feels that isn't enough for you, they may recommend you do an IOP and then come back to NOCD after. I can't say why that IOP didn't work for you, but I will say that that doesn't mean that *every* IOP (or ERP treatment generally) isn't going work for you. It's also important to be aware that it can take a while to start seeing results with ERP, and that it's normal to get worse before you get better. But if treatment truly isn't working for you--NOCD, IOP, anything--you have the right to talk to your care team and try address that. ERP is really hard, especially when your OCD is severe. In my experience, though, it's less hard that living with the OCD. Having gone through it, I'd the pain of ERP over the pain of OCD any day. One other way NOCD can help with all this is that members get access to free Zoom support groups, so you can find support, community and advice to help you cope as you go through treatment. It's definitely made a really big difference for me, and even if there were no other benefits, I'd recommend NOCD just for that. Woof, I wrote an essay. I hope some of this helps! Best of luck as you go through this process. <3
The scariest thing for me, is that I have work and kids and a family and when I was doing therapy twice a week with really hard exposures, I started doing more compulsions than ever!!! I guess maybe the exposures were too difficult and I wasn’t ready for them. I felt like my life was all around compulsions and I had ignored my family completely.
Ok so I think that sounds like something my therapist wanted me to do. Curious, what would you do the other hour if not erp?
Psychoeducation group--learning skills, etc. =)
So you went from IOP to NOCD?
I went from NOCD ➡️ IOP ➡️ NOCD ➡️ PHP ➡️ IOP ➡️ NOCD. But I was doing NOCD support groups as well most of the time I was in IOP. Peer advisor is a full time job, so it might not work for you, but being able to help folk in that kinda way is a great goal to have 😊 It's why I do this!
So it’s been a journey for you. Wow. So you are better now? I mean maybe in the future , if I get better
My OCD has never been this strong, it's so real, it feels like it will never go away, it's never been this strong for me and it's very scary.
Now that we’ve kicked off the new year, I find myself reflecting on where the OCD community is today—how things have changed for the better, as well as my hopes for the future. Ten years ago, it was almost impossible to access a licensed therapist with specialty training in OCD using health insurance. Most professionals simply didn’t understand what OCD actually looks like, so over 95% of OCD cases weren’t correctly diagnosed. As a result, insurance companies weren’t able to see how widespread OCD actually was—or how effective exposure and response prevention (ERP) therapy was at treating it. Instead, people with OCD had to pay about $350 or more per session, all out of pocket, for their best chance at getting their life back. I know this from personal experience. OCD turned my life completely upside-down, and I reached out desperately for help, only to be misdiagnosed and mistreated by professionals who didn’t understand OCD. When I finally learned about ERP therapy, the evidence-based treatment specifically designed for OCD, I learned that I’d have to wait for months to see the one OCD specialist in my area, and I couldn’t afford the cost. But I was fortunate. My mom found a way to help us pay, and I finally got the help I needed. Otherwise, I don’t think I’d be here today. In a few months, I started seeing improvement. As I continued to get better using the skills I learned while working with my OCD specialist, I learned I wasn’t the only one with this experience—in fact, millions of people across the country were going through the exact same things I was. That’s why we started NOCD. Since 2015, we’ve always had one mission: to restore hope for people with OCD through better awareness and treatment. The OCD community needed an option for evidence-based treatment that they could afford and access, no matter where they live—an option that also provided necessary support between sessions. And the entire healthcare industry needed to understand how OCD actually works. As I write this post, I’m more enthusiastic than ever about our mission. Just recently, we’ve partnered with Blue Cross Blue Shield of Illinois, Texas, New Mexico, Montana, and Oklahoma. To put this into perspective, 155 million Americans can now use their insurance to access NOCD Therapy. This year, I have high hopes for the OCD community. More and more people will be able to use their insurance to pay for NOCD Therapy, and we’re working hard to give everyone who has OCD the ability to access the treatment they deserve. In addition to providing ERP Therapy, our OCD-specialty therapists also support our Members in prioritizing their overall well-being. With a focus on developing important lifestyle habits, including diet, exercise, mindfulness, and healthy sleep hygiene, they help our members build a strong foundation for lasting mental health so people are more prepared to manage OCD long-term. For every person who gains access to a therapist specialized in OCD for the first time, 2025 could be a year that changes their lives. If you or a loved one is suffering from OCD, please comment below or schedule a free 15-minute call with our team to learn more about how to access evidence-based OCD treatment and ongoing support using your insurance benefits.
Hello, I unknowingly have lived with ROCD or OCD (not sure what one. I’m new to this). It has ruined so many amazing romantic and platonic relationships and I am so sad that just now I am finding out what the hell is wrong with me. Maybe life would be different if I have known. My OCD and anxiety is at an all time high (ATH) due to some horrible events that have happened in the recent months. I am at the point where paranoia has taken over my life now. I had my first panic attack a few weeks ago where I fainted. My anxiety attacks are so extreme I go thought cognitive distortion that has lasted days. My girlfriend of 3 years is my emotional guardian and she no long has the energy to be that and honestly it’s not her responsibility to be that. She is bi and wanted to have an open relationship and for someone who has OCD this has not been good for me. She also was assaulted in my own home by a good friend of ours when I was out of town but it’s not a clear situation because it sounded consensual at first. I just left my very high paying job. I am financially secure but the job was emotionally abusive and looking back made my OCD worse. I am taking some time off to get my head right…but now, all I have to do during the day is live in my OCD. I’m very happy I finally figured out why I act the way I do but I don’t know if I can get better quick enough to save my relationship. I have never been so worried about myself (M 28 years old). I am a confident young professional and never thought I would be writing on a page like this. Anyway…I hope it gets better.
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