- User type
- OCD Conqueror
- Date posted
- 3y
I wouldn't classify my self as having severe ocd. But I have been dealing with ROCD for about 4 years and I have gotten better results from ERP therapy here then I ever have through other therapist and my own methods.
Thank you! How often do you have therapy? I say severe because just a year ago I tried ERP and didn’t work, I did IOP and felt like I was just being exposed and then I’ll go back to compulsions, or maybe I was doing wrong wrong I don’t know. My therapists then suggested I commit to IOP every day and I couldn’t do it. I quit, it was so hard and I wasn’t getting any better. With NOCD , I hear many people get better and I keep thinking how? Should I try it?
Yes but I even doubt it , as a compulsion , I take ocd tests, I contact different therapist and read articles to make sure it’s ocd and even though right now I know it’s ocd, I don’t always believe it
Omg, thank you so much for yo to post. I guess I’m reluctant to treatment in some ways because it didn’t work the first time. I was doing IOP twice a week 1.5 hour each day, but my therapist said that I needed more, perhaps every day because I was losing sense of reality? I was believing all my ocd thoughts and had lost insight. Anyways, it’s been 6months that I stopped IOP and am looking to go back to perhaps doing a more intense treatment. Maybe, everyday. How much IOP did you do?
You're welcome! I did an IOP that ran 5 days a week. M-T was 3.5 hours a day (2 hours ERP), and F was 2.5 hours a day (1 hour ERP). That was the right amount for me, but I know it can be hard when you have work and family obligations on top of that. But I definitely think it could be something that's worth exploring for you again, even if it's just to investigate what's out there and what might best suit your needs. <3
Ok, I think if I can handle this, I would like to be an NOcD peer advisor.
We'll for starters, I would make sure so was financially stable. If so, assuming that dealing with life when OCD runs the show really freaking sucks for you, what do you got to lose? OCD is the hardest thing I've ever experienced and I'd be damned if I didn't give not feeling so shitty a chance.
If you feel comfortable answering, what are your themes?
I’ve suffered from ROCD, Harm, POCD and HOCD. Right now, HOCD. As you know, ocd jumps from theme to theme
Is HOCD harm ocd?
No, the other
Oh ok, is that the same thing as SO OCD? ROCD has always been my theme but there was a short time that I wondered if the reason I have rocd is because I'm actually gay. That managed to go away pretty quickly though for me.
Yes 😢
Not for me
Mine started with POCD, then jumped to Harm, then jumped to ROCD and finally HOCD. I’ve recovered from POCD but not the other themes
That must be rough dude. For me the hardest thing is objectively seeing that it's OCD but it feeling like it's the truth
Same, most of the time it doesn’t seem like it’s ocd and it’s me and I panic!!!! The hardest thing for me has been suffering with this for so long and not knowing I had ocd
When did it start to dawn on you that you had OCD?
Well, I had all those intrusive thoughts that began 13 years ago, I thought I was going crazy. So, I hit rock bottom, no one knew what to diagnose me with. They said GAD. Maybe a few years later, I started researching online and found intrusive thoughts eventually hit OCD and got diagnosed last year
Did it feel a little better to finally have a diagnosis that makes sense?
Me neither. The uncertainty is the most unbearable part.
Yes! I literally have obsessions and compulsions from when I wake to when I go to sleep
What are some of the obsessions and compulsions you've been going through lately?
Well it’s all related to that theme and I ruminate all day and research to make sure it’s ocd
Would you say your compulsions are more mental then physical? That's how it is with me. There are some physical ones like looking for signs in words or letters I see around me. Or trying to feel affectionate feelings during intimate moments.
Yes
I do the same with ROCD
Heya, I've recovered from extremely severe OCD with the help of NOCD. I worked with NOCD for a couple of months, but then I got worse (for unrelated reasons) and they recommended I do an IOP. It helped, but I wound up relapsing and had to go back to IOP for a further 7 weeks. That time, the improvements stuck. But the point is that in that whole period, if I wasn't in IOP, I was working with NOCD. I'm still working with them now. And even though I wasn't always doing the NOCD program specifically, I remained in touch with my NOCD therapist and felt like NOCD staff were supporting me that whole time. Having them play that role for me made a huge difference in my recovery. I saw in the comments that you did an IOP too and that you didn't feel like it helped you. I'm sorry for that. In terms of treatment, NOCD offers a similar ERP approach to what you'd get in most OCD IOPs, but with a smaller amount of hours per week. If a NOCD therapist feels that isn't enough for you, they may recommend you do an IOP and then come back to NOCD after. I can't say why that IOP didn't work for you, but I will say that that doesn't mean that *every* IOP (or ERP treatment generally) isn't going work for you. It's also important to be aware that it can take a while to start seeing results with ERP, and that it's normal to get worse before you get better. But if treatment truly isn't working for you--NOCD, IOP, anything--you have the right to talk to your care team and try address that. ERP is really hard, especially when your OCD is severe. In my experience, though, it's less hard that living with the OCD. Having gone through it, I'd the pain of ERP over the pain of OCD any day. One other way NOCD can help with all this is that members get access to free Zoom support groups, so you can find support, community and advice to help you cope as you go through treatment. It's definitely made a really big difference for me, and even if there were no other benefits, I'd recommend NOCD just for that. Woof, I wrote an essay. I hope some of this helps! Best of luck as you go through this process. <3
The scariest thing for me, is that I have work and kids and a family and when I was doing therapy twice a week with really hard exposures, I started doing more compulsions than ever!!! I guess maybe the exposures were too difficult and I wasn’t ready for them. I felt like my life was all around compulsions and I had ignored my family completely.
Ok so I think that sounds like something my therapist wanted me to do. Curious, what would you do the other hour if not erp?
Psychoeducation group--learning skills, etc. =)
So you went from IOP to NOCD?
I went from NOCD ➡️ IOP ➡️ NOCD ➡️ PHP ➡️ IOP ➡️ NOCD. But I was doing NOCD support groups as well most of the time I was in IOP. Peer advisor is a full time job, so it might not work for you, but being able to help folk in that kinda way is a great goal to have 😊 It's why I do this!
So it’s been a journey for you. Wow. So you are better now? I mean maybe in the future , if I get better
Hi everyone, I’m Andrea and I am a member of the Intake Team here at NOCD. In junior high, I was known as the “aneurysm girl” because I was convinced any small headache meant I was dying. At just 12 years old, I read something that triggered my OCD, and from that moment on, my brain latched onto catastrophic health fears. Any strange sensation in my body felt like proof that something was seriously wrong. I constantly sought reassurance, avoided being alone, and felt trapped in an endless cycle of fear. Over time, my OCD shifted themes, but health anxiety was always there, lurking in the background. I turned to drinking to numb my mind, trying to escape the fear that never let up. Then, in 2016, everything spiraled. I was sitting at work, feeling completely fine, when suddenly my vision felt strange—something was “off.” My mind convinced me I was having a stroke. I called an ambulance, launching myself into one of the darkest periods of my life. I visited doctors multiple times a week, terrified I was dying, yet every test came back normal. The fear never loosened its grip. For years, I cycled in and out of therapy, desperately trying to find answers, but no one recognized what was really happening. I was always told I had anxiety or depression, but OCD was never mentioned. I was suicidal, believing I would never escape the torment of my mind. It wasn’t until 2022—after years of struggling, hitting rock bottom, and finally seeking specialized OCD treatment—that I got the right diagnosis. ERP therapy at NOCD was the hardest thing I’ve ever done, but it saved my life. Today, I’m 34, sober, and living a life I never thought was possible. Do I still have hard days? Absolutely. But I am no longer a prisoner to my fears. The thoughts still come, but they don’t control me anymore. They don’t dictate my every move. Life isn’t perfect, but it no longer knocks me off my feet. If you’re struggling with health OCD or somatic OCD, I see you. I know how terrifying and isolating it can be. But I also know that it can get better. If you have any questions about health & somatic OCD, ERP, and breaking the OCD cycle, I’d love to tell you what I’ve learned first hand. Drop your questions below, and I’ll answer all of them!
December 14, 2024, marked two years since my first ERP therapy session with my NOCD therapist, Mixi. And October 2024 marked a year of being free from OCD. It was not an easy journey, confronting my fears face to face. Exposing myself to the images and thoughts my brain kept throwing at me, accepting that I might be the worst mother, that my daughter wouldn’t love me, and that I deserved to be considered a bad person. It was challenging having to say, “Yes, I am those things,” feeling the desire to run, but realizing the thoughts followed me. At the start of my therapy, I remember feeling like I couldn’t do this anymore. Life felt unbearable, and I felt so weak. I longed for a time before the OCD, before the flare-ups, before the anxiety, the daily panic attacks. I thought I’d never be myself again. But I now know that ERP saved my life. The first couple of sessions were tough. I wasn’t fully present. I lied to my therapist about what my actual thoughts were, fearing judgment. I pretended that the exposures were working, but when the sessions ended, I went back to not sleeping, constantly overwhelmed by fear and anxiety. But my therapist never judged me. She made me feel safe to be honest with her. She understood OCD and never faltered in supporting me, even when I admitted I had been lying and still continued my compulsions. My biggest milestone in therapy was being 100% transparent with my therapist. That was when real change began. At first, I started small—simply reading the words that terrified me: "bad mom," "hated," "unloved." Then, I worked on listening to those words while doing dishes—not completely stopping my rumination, but noticing it. Just 15 minutes, my therapist said. It wasn’t easy. At one point, I found myself thinking, “Will I ever feel like myself again?” But I kept pushing through. Slowly, I built tolerance and moved to face-to-face exposures—sitting alone with my daughter, leaning into the thought that my siblings might die, reading articles about my worst fears, and calling myself the things I feared. Each session was challenging, but with time, the thoughts started to lose their grip. By my eleventh session, I started to realize: OCD was here, and it wasn’t going away, but I could keep living my life despite it. I didn’t need to wait for it to be quiet or go away to move on. Slowly, it began to quiet down, and I started to feel like myself again. In fact, I am not my old self anymore—I’m a better version. OCD hasn’t completely disappeared, but it’s quieter now. Most of the time, it doesn’t speak, and when it does, I know how to handle it. The last session with my therapist was emotional. I cried because I was finishing therapy. I remember how, in the beginning, I cried because I thought it was just starting—because I was overwhelmed and terrified. But at the end, I cried because I was sad it was ending. It felt like I had come so far, and part of me wasn’t ready to say goodbye, even though I had already learned so much. It was a bittersweet moment, but I knew I was walking away stronger, equipped with the tools to handle OCD on my own. If I could change anything about my journey, it would be being open and honest from the beginning. It was the key to finding true healing. The transparency, the honesty—it opened the door to lasting change. I’m no longer that person who was stuck in constant panic. I’m someone who has fought and survived, and while OCD still appears from time to time, I know it doesn’t define me. I'd love to hear your thoughts and comments. Have you started therapy, is something holding you back? Is there something you want to know about ERP therapy? I'll be live in the app answering each and every one today from 6-7pm EST. Please drop them below!
I’m starting NOCD. I had several years of cbt as a child (well over 20 years ago) and I see a trauma therapist. But now I’ll be seeking further help for OCD and just really scared. CBT wasn’t helpful for me. How has ERP been helpful for you? Do you feel like you’ll finally get your life back? I’m consumed by my obsessions 😢 Would love others feedback if ERP helped you ❤️
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