Repetitive Sound Loops

Hi everyone, My name is Trevin (24,male,he/him) and I’m new to this app and this is my first post. Here’s how I’m feeling today: OCD frustrates the hell out of me. Mostly when it becomes hard for me to comprehend. A few weeks ago I had convinced myself I have Huntington’s Disease (or will have it in the future). I was reading symptoms that overlap with how I was feeling at that time, and started drawing connections to my life. Some large connections, like my grandma who has parkinson’s, and my psychiatrist augmenting my SSRI with memantine, fixating on “what it means” for me, a young, healthyish individual to be on an “old person” drug. Some longshot connections linked to Huntington’s, like my above average intelligence and large head size. Each symptom I found that “clicked” my OCD made the anxiety ramp up. I shut this down fairly quickly as I could tell it was unrealistic and it felt very clearly that it was OCD. However, on days like today, my OCD is a much more undefeated beast, not dissimilar to a Rancor. Unfortunately I am not a Jedi. Today, my OCD just feels like nothing feels right. I feel like my entire perception of the world is different today. I’m drowning in it. The sky looks different, the coldness against my skin feels more piercing than it normally would. My thoughts just feel like a whirlpool, like I can’t place a finger on a single thought I have. They are moving fast and swirling like a galactic orb or nebula. Everything just feels “off”. And that makes me frustrated and angry. I feel like I have no control of myself. TLDR; I fucking hate this disorder. And I hate its name too. More often than not, I don’t feel like I have an obsession or compulsion. It’s just a feeling or perspective distortion. Maybe a better name for OCD is Control & Doubt Disorder, or Obsessional Uncertainty Disorder. I hate searching OCD online and it simplifying the hell out of it: “Obsessions that lead to compulsions”. Girl, I wish it was that fucking cut and dry and easy to delineate. I still insist to my psychiatrist that I have a different disorder in addition to OCD, because what I feel doesn’t “feel” like OCD. They, of course, insists that this is OCD about OCD. Ugh, frustrated, whatever :P Thanks for reading 🫶🏻

I’ve come to a point in my life where I can be very happy. I have a safe environment, a loving community. Yknow I’ve really healed through or moved on from a traumatic past and as I say to my boyfriend from time to time like a broken record: I feel like nowadays the only thing bringing me stress or at times misery is myself. I am a fairly joyful person, when I’m comfortable I’m very goofy and like to sing dance and have fun. I find that I relate to so many amazing people I meet that are the nicest, most fun, elevating individuals, who also struggle with the hardest sometime debilitating things. It truly sucks because when I find those moments of peace I see the power of what an ocd mind could be as a person. We are people who may over analyze, but I myself also always find the good in people. And aye if in a moment I don’t think anything is doomly wrong and if I don’t try to understand it I may parish 😅 then that moment feels like the best one in the world. But on the other side of that when I’m not in a quiet mind moment and I’m left with myself to take control of what life in front of me looks like in or around me. I almost have been crumbling. Like I said at the beginning of this story here, the life around me is not so situationally stressful. And it’s also fairly simple. My boyfriend and I live together in a small cozy trailer with our two cats, he works full time very hard and I work part time where I spend as much time as I can working and then have a few days around the house. We’re saving for a home and are quite content with our lifestyle at the moment with work and being “lazy”, or resting and going out for fun now an then on our time off together. Most times though I do have day or two off during the week by myself, which usually goes one of only two ways. Like I said before I do like to work hard, especially now that I have a part time job that’s fairly easier than others I’ve had in the past. So I work 6-7 hours then drive home, air up my tires and wash my car sometimes because I like doing something after work while I still have energy.Or I go to the store. Come home make food, prolly nap and not really worry about too much because I’ve worked all day. But on my days off. I find myself waking up with a lot of anxiety. I usually fight it off by going back to sleep. But my OCD is heavily circled around shame. Even though I only sleep in till 10-11, 12-1 at the latest. I find myself thinking about how wrong (in nice terms) it is to do that. And the funny thing is the older I get (I’m a 21F). I’m not as pressured by this thought, even though it’s still stressful it literally just feels like a thought I can’t escape from. To put things in simple terms. I truly psycho analyze my actions breath by breath and my intrusive thoughts are critiquing those actions bit by bit. I’ve recently have started medication and it was a tremendous difference in the beginning and it helped me cope with the acceptance and letting go (f it or just care less) of those thoughts. But let’s say I forget to take it, or I wake up one morning by myself all day and I’m super tired or unmotivated. That day will feel truly debilitated. And now I’m definitely to the point where I’m battling that, but also have a thin vale behind that where I now know what is going on. And the thoughts are shameful for “not trying to get better or be better” Because I do Like I write a lot, and it truly is one of the best coping mechanisms for working through intrusive or obsessive compulsions. I could also write all day, and if I don’t listen to that ease of the anxiety from writing. And try to keep going the writing will turn into a compulsion itself I feel like I should not stop or critique it as well. But luckily I’ll hopefully find my place in explaining the cycle of what I do when my brain is very loud about things. The next time it’s too loud:)

Here is what I say to people: I wish I could make it stop. I really do. I also wish I could stop tinnitus. What is tinnitus, you may ask? Well, have you ever gone to a loud concert and after it had a ringing in your ears. Or, in movies when a loud explosion hears, first it is often muffled, and then there is a very loud ringing sound. Well, I have hear that sound for over 30 years. Turns out the medications I took as a kid for allergies and all the antibiotics I was on for Strep had a side effect for some people - tinnitus - that sound that I have heard every decade, year, month, day, hour, and second, for the past 30 years. I have learned to live with it. As I type this, it is REALLY loud, because I am paying attention to it. But, in a few minutes it will fade into the background, and, while I will hear it, I will not pay much attention to it, and therefore I will go on with my night. I will listen to music, practice my story for the MOTH radio hour, and work out. I will clean up the kitchen and load the dishwasher, and I will eventually get ready for bed. I will go to bed hearing that sound, and fall asleep for a few hours until tomorrow morning when I start the day all over again. I cannot make the sound stop. There is nothing to do for it - no surgery or medication. Just learning to live with it, and that is what I have done. It is the thing that I hate the most in my life, and, if granted three wishes, it would be the first thing to change. For now, as I have for 30 years, I will live with it, and I will ask you to live with your noises in your head - the thoughts, the images, and the urges, and we will practice together accepting that things are not always as we want them, but we can handle that. We got this.