- Username
- Isnteasy
- Date posted
- 6y ago
The IOCDF had a good article on this topic: https://iocdf.org/expert-opinions/ocd-and-tourette-syndrome/
Urge to do it or you’ll lose yer mind.. that was the last part that was cut off
I don’t have that, but nOCD, can you post some content that explains more about this co-morbidity?
I don't have tourette's, but I do have tics. I only get them when my Pure O intrusive thoughts are really bad. I sort of shake my head to one side and my eyes twitch. I never noticed it until someone pointed it out while I was having particularly bad intrusive thoughts.
I have Tourette’s and OCD! They are definitely co-morbid diseases. I had very severe OCD as a child and teenager. I had about 57 different tics. I am so thankful to have outgrown most of it. I take Rispirodal (Spelling?) morning and night which has definitely made a difference.
I have heard about people with Tourette commonly having OCD (as well as ADHD). I don’t have Tourette, so is it okay if I ask what the tics for Tourette are like? I’ve seen them before but I always thought that they were completely uncontrollable? I don’t mean to be disrespectful or invade anyone’s personal space or feelings while asking this, please let me know if I’ve crossed a line!
@Sassy_Classy_Lassy You are not invading any personal space at all! I always use the blinking example. If you tried not to blink, your eye lids would start to tingle, your thoughts would revolve around that need to blink, and after a while, you would give in. Tourette’s is similar, however those feelings of needing to do something are all over the body and for some in sounds and there are often many different feelings that want to be released. For me, my main tics were needing to feel a pull in a muscle at different parts of my body. My neck, my back, both arms, my wrists, my thighs (the exact pull you feel when you bend to touch your toes) I had to feel pressure on my toes so I would walk on them (at my worst my toenails grew inward) I would have to feel my teeth scrape against the side of my tongue. (When I had braces I had holes in my tongue. Numbing medicine was my only relief) I had to cross my fingers, twitch my nose, and push my uvula down my throat. For vocal tics I had to make a “da” sound as if you were saying “dot” and flicked your tongue. I made a gulping sound and a “pa” sound as if I was saying “pop” I never said any words which is a misconception about Tourette’s. From my treatment, it was explained that you “could” hold the tic in and ride that feeling in a wave. You hold it, the feeling gets worse and worse, but then it eases. But then the wave comes back over and over again. I imagine it would go down just like with OCD treatment, but it’s so hard. My Tourette’s is almost completely gone now. I take medication still and if I miss it my urges are stronger, but I very rarely tic besides rubbing my fingers together constantly. My tics were brutal as a teenager. I would be up all night thrashing in bed and my muscles in pain. We would try to wrap my wrists up because they hurt so much but the urges would be too strong and I’d have to do the tic, no matter how much it hurt. My back is damaged from my tics as well. I have 2 degenerated discs which I was told at 16 really should be replaced but it wouldn’t be beneficial in the long run. The cortisone shots no longer work but I have a procedure done once a year where they burn the nerves. A lot of my memories are just gone from my time as a teenager. Either from the 100s of meds I tested or just my brain not wanting to remember. But my parents, my school, and the community were amazing to me and looking back it doesn’t seem possible I struggled so much when I am doing phenomenal right now.
ChipperChelsea, your story is so inspiring! Thanks for explaining everything, I think I understand the general idea of tics and Tourette’s much more clearly now. I definitely see some similarities in OCD and Tourette’s, but of course Tourette’s is much more severe than at least whatever rituals I have currently. It’s so amazing all the work you did to overcome Tourette’s, and thank you so, so much for sharing everything!
@Sassy_Classy_Lassy (your username is so fun to say ?) Of course!! Thank you! And I think it’s important to remember that some cases of Tourette’s can be more severe than OCD but OCD too has the power to be more severe than Tourette’s. Those rituals are no joke! OCD is constant mind games while Tourette’s is more physical sensations. Both can be equally exhausting, but I truly believe we all have the power to overcome it. ?
@chipper_chelsea I gotta admit your username is pretty amazing too?it’s true though! I’m glad that this app is so good at bringing people together into such a strong fighting community.?
I’ve been diagnosed with OCD but I don’t have these intrusive thoughts like everyone else...so I’m convincing myself I don’t really have OCD I struggle I guess with rOCD (and more)...I guess I always check to see if a person texted me back. I blow up the persons phone until they respond. I use to have it really bad where I had so much anxiety if I didn’t do it and so much anxiety if I did. When guys leave me....I freak out and have damn near a heart attack from panicking so much. And once I get this thought in my head whether it’s “you should’ve said this” or “he probably lied to you when he said this” or whatever there’s this feeling in my body. It’s like an uncomfortable negative vibe and that thought becomes priority. I have to do it. I have to text them and it’s hard to think of anything else. And when I do it doesn’t stop so i shouldn’t give in but sometimes I do. And if I get over that thought later another might replace it and it starts again. Anybody else feel this way...?
Hey everyone!! So I’ve been diagnosed with moderate ocd. Sometimes when a new symptom arises with my ocd, I don’t how to combat it. Since I have ocd, sometimes I get scared that it might mean somethings else. So basically I have this weird thing where I need to pull my hair or rip it out. I thought it was trichotillomania but I’m not sure. I was gonna talk about it in therapy today but I forgot. When this happens I usually get a feeling in my scalp where I have to pull or rip my hair out to feel better. It is weird. Sometimes I don’t need to pull my hair out, I can get that satisfaction just from tugging of it and feeling the hair being tugged . The feeling of needing to pull my hair even shows up no only on my scalp but my shoulder muscle and I have to pull my hair or stretch it to feel better. I’m not sure if it is Tourette’s. Can someone let me know if they have had this or similar to it. What if so what is it? Is it just plain ocd. Help!!
So, I haven’t been diagnosed with OCD, but over the past year I’ve developed something that seems very much like it. It might be OCD, but I don’t know. I have very strong urges to move my body in certain ways or touch certain things in certain patterns or an amount of times. An example of this is when I’m typing on a real keyboard I repeatedly hit buttons that I don’t need to hit because I almost constantly have the random urge to. I get a very strong tingling sensation inside of my body that almost hurts when I resist the urge. I don’t have any emotional parts of OCD, I don’t really worry about things or have anxiety very much. I used to have anxiety, but this has kind of replaced that. There are a few people in my family with symptoms of Tourette’s, I’m not sure if it’s full on or not, so my situation may have been influenced by that. Any advice/help is greatly appreciated!
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