- Date posted
- 7y
- User type
- Staff
- Date posted
- 7y
The IOCDF had a good article on this topic: https://iocdf.org/expert-opinions/ocd-and-tourette-syndrome/
- Date posted
- 7y
Urge to do it or you’ll lose yer mind.. that was the last part that was cut off
- Date posted
- 7y
I don’t have that, but nOCD, can you post some content that explains more about this co-morbidity?
- Date posted
- 7y
I don't have tourette's, but I do have tics. I only get them when my Pure O intrusive thoughts are really bad. I sort of shake my head to one side and my eyes twitch. I never noticed it until someone pointed it out while I was having particularly bad intrusive thoughts.
- Date posted
- 7y
I have Tourette’s and OCD! They are definitely co-morbid diseases. I had very severe OCD as a child and teenager. I had about 57 different tics. I am so thankful to have outgrown most of it. I take Rispirodal (Spelling?) morning and night which has definitely made a difference.
- Date posted
- 7y
I have heard about people with Tourette commonly having OCD (as well as ADHD). I don’t have Tourette, so is it okay if I ask what the tics for Tourette are like? I’ve seen them before but I always thought that they were completely uncontrollable? I don’t mean to be disrespectful or invade anyone’s personal space or feelings while asking this, please let me know if I’ve crossed a line!
- Date posted
- 7y
@Sassy_Classy_Lassy You are not invading any personal space at all! I always use the blinking example. If you tried not to blink, your eye lids would start to tingle, your thoughts would revolve around that need to blink, and after a while, you would give in. Tourette’s is similar, however those feelings of needing to do something are all over the body and for some in sounds and there are often many different feelings that want to be released. For me, my main tics were needing to feel a pull in a muscle at different parts of my body. My neck, my back, both arms, my wrists, my thighs (the exact pull you feel when you bend to touch your toes) I had to feel pressure on my toes so I would walk on them (at my worst my toenails grew inward) I would have to feel my teeth scrape against the side of my tongue. (When I had braces I had holes in my tongue. Numbing medicine was my only relief) I had to cross my fingers, twitch my nose, and push my uvula down my throat. For vocal tics I had to make a “da” sound as if you were saying “dot” and flicked your tongue. I made a gulping sound and a “pa” sound as if I was saying “pop” I never said any words which is a misconception about Tourette’s. From my treatment, it was explained that you “could” hold the tic in and ride that feeling in a wave. You hold it, the feeling gets worse and worse, but then it eases. But then the wave comes back over and over again. I imagine it would go down just like with OCD treatment, but it’s so hard. My Tourette’s is almost completely gone now. I take medication still and if I miss it my urges are stronger, but I very rarely tic besides rubbing my fingers together constantly. My tics were brutal as a teenager. I would be up all night thrashing in bed and my muscles in pain. We would try to wrap my wrists up because they hurt so much but the urges would be too strong and I’d have to do the tic, no matter how much it hurt. My back is damaged from my tics as well. I have 2 degenerated discs which I was told at 16 really should be replaced but it wouldn’t be beneficial in the long run. The cortisone shots no longer work but I have a procedure done once a year where they burn the nerves. A lot of my memories are just gone from my time as a teenager. Either from the 100s of meds I tested or just my brain not wanting to remember. But my parents, my school, and the community were amazing to me and looking back it doesn’t seem possible I struggled so much when I am doing phenomenal right now.
- Date posted
- 7y
ChipperChelsea, your story is so inspiring! Thanks for explaining everything, I think I understand the general idea of tics and Tourette’s much more clearly now. I definitely see some similarities in OCD and Tourette’s, but of course Tourette’s is much more severe than at least whatever rituals I have currently. It’s so amazing all the work you did to overcome Tourette’s, and thank you so, so much for sharing everything!
- Date posted
- 7y
@Sassy_Classy_Lassy (your username is so fun to say ?) Of course!! Thank you! And I think it’s important to remember that some cases of Tourette’s can be more severe than OCD but OCD too has the power to be more severe than Tourette’s. Those rituals are no joke! OCD is constant mind games while Tourette’s is more physical sensations. Both can be equally exhausting, but I truly believe we all have the power to overcome it. ?
- Date posted
- 7y
@chipper_chelsea I gotta admit your username is pretty amazing too?it’s true though! I’m glad that this app is so good at bringing people together into such a strong fighting community.?
Related posts
- Date posted
- 18w
i’ve been struggling with tics a lot lately. my doctor and neurologist are still unsure whether it’s a tic disorder like tourette’s, or if it’s myoclonic absence seizures i’m having. i’m getting an EEG done soon, but does anyone else have this or know someone who does??
- Date posted
- 11w
I think I have mild OCD. Maybe that's why I can't relate to many of the difficulties experienced by other posters. My OCD is more on the compulsion side performing certain rituals at key transitions or points during the day. I honestly cannot figure out what the underlying obsession is other than some kind of weird mental hoarding to acknowledge and cherish a moment but also to protect my family and even my pets. I get little or no anxiety (I used to when I was younger). Even mild OCD absolutely sucks and is debilitating to an extent.
- Date posted
- 10w
Hi I’m new to the community and I have such weird ocd tendencies I was curious to see if anyone else has so I’m just going to list them in no specific order: 1. My brain goes “I hope” every time I think of something bad happening. Like “I hope that pedestrian gets hit by a car” or “I hope a demon snatches me under the bed right now.” 2. I have dermatillomania mostly on my arms, chest, face, and shoulders. If I have a bunch of open wounds on my body, I make myself feel “cleaner” by doing an everything shave in the shower. Conversely, if I’m having a period of mostly healed skin, I like to leave my body hair growing out for a couple days as a way to gloat to myself how “clean” I am even without shaving. 3. After my whole life living with these symptoms, most of them I’m able to brush off. But this next one still shakes me and disturbs me to my core every time it happens and it’s picturing sex acts with people I would NEVER want to do sex acts with. My earliest memory of this is when I was a little kid, as young as 5 years old, I had an image in mind of what I thought God looked like. Every time I would imagine God, I would automatically imagine him naked and I would shove my head under the pillow and shut my eyes tightly and try to make the image go away because I thought I was being blasphemous by imagining such a thing. 4. This one is relatively new, the past year or two, but cutting my own bangs. The only reason I consider it an ocd tendency and not just self sufficiency is because I SUCK at it and botch it every time!!! But I keep trying to find the perfect parting that contours to all the existing cowlicks and kinks in my hair and try to carve out my “natural bangs.” I convince myself a hairdresser is just not familiar enough with my hair growth patterns to give me what I want. This one is particularly embarrassing because it’s like I’m wearing my mental illness on my face. I have been wearing a headband for the past year to try and hide it but it doesn’t stop me from cutting it again because I am so insistent to get it right. I always regret it after. 5. I don’t know if this one is ocd but I suspect it might be and it’s that I rarely ever am not drinking water. If I finish a glass I’m filling up another one. Sometimes it will be a different beverage like coffee or matcha but I almost always am sipping compulsively on something. I use the bathroom about once every hour and 3-4 each night. That’s all I can think of for now but I wanted to share some atypical traits to see if anyone relates! This isn’t by any means all of my ocd tendencies unfortunately:/ just the ones I’ve never heard anyone else share before!
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