- Date posted
- 7y
- User type
- Staff
- Date posted
- 7y
The IOCDF had a good article on this topic: https://iocdf.org/expert-opinions/ocd-and-tourette-syndrome/
- Date posted
- 7y
Urge to do it or you’ll lose yer mind.. that was the last part that was cut off
- Date posted
- 7y
I don’t have that, but nOCD, can you post some content that explains more about this co-morbidity?
- Date posted
- 7y
I don't have tourette's, but I do have tics. I only get them when my Pure O intrusive thoughts are really bad. I sort of shake my head to one side and my eyes twitch. I never noticed it until someone pointed it out while I was having particularly bad intrusive thoughts.
- Date posted
- 7y
I have Tourette’s and OCD! They are definitely co-morbid diseases. I had very severe OCD as a child and teenager. I had about 57 different tics. I am so thankful to have outgrown most of it. I take Rispirodal (Spelling?) morning and night which has definitely made a difference.
- Date posted
- 7y
I have heard about people with Tourette commonly having OCD (as well as ADHD). I don’t have Tourette, so is it okay if I ask what the tics for Tourette are like? I’ve seen them before but I always thought that they were completely uncontrollable? I don’t mean to be disrespectful or invade anyone’s personal space or feelings while asking this, please let me know if I’ve crossed a line!
- Date posted
- 7y
@Sassy_Classy_Lassy You are not invading any personal space at all! I always use the blinking example. If you tried not to blink, your eye lids would start to tingle, your thoughts would revolve around that need to blink, and after a while, you would give in. Tourette’s is similar, however those feelings of needing to do something are all over the body and for some in sounds and there are often many different feelings that want to be released. For me, my main tics were needing to feel a pull in a muscle at different parts of my body. My neck, my back, both arms, my wrists, my thighs (the exact pull you feel when you bend to touch your toes) I had to feel pressure on my toes so I would walk on them (at my worst my toenails grew inward) I would have to feel my teeth scrape against the side of my tongue. (When I had braces I had holes in my tongue. Numbing medicine was my only relief) I had to cross my fingers, twitch my nose, and push my uvula down my throat. For vocal tics I had to make a “da” sound as if you were saying “dot” and flicked your tongue. I made a gulping sound and a “pa” sound as if I was saying “pop” I never said any words which is a misconception about Tourette’s. From my treatment, it was explained that you “could” hold the tic in and ride that feeling in a wave. You hold it, the feeling gets worse and worse, but then it eases. But then the wave comes back over and over again. I imagine it would go down just like with OCD treatment, but it’s so hard. My Tourette’s is almost completely gone now. I take medication still and if I miss it my urges are stronger, but I very rarely tic besides rubbing my fingers together constantly. My tics were brutal as a teenager. I would be up all night thrashing in bed and my muscles in pain. We would try to wrap my wrists up because they hurt so much but the urges would be too strong and I’d have to do the tic, no matter how much it hurt. My back is damaged from my tics as well. I have 2 degenerated discs which I was told at 16 really should be replaced but it wouldn’t be beneficial in the long run. The cortisone shots no longer work but I have a procedure done once a year where they burn the nerves. A lot of my memories are just gone from my time as a teenager. Either from the 100s of meds I tested or just my brain not wanting to remember. But my parents, my school, and the community were amazing to me and looking back it doesn’t seem possible I struggled so much when I am doing phenomenal right now.
- Date posted
- 7y
ChipperChelsea, your story is so inspiring! Thanks for explaining everything, I think I understand the general idea of tics and Tourette’s much more clearly now. I definitely see some similarities in OCD and Tourette’s, but of course Tourette’s is much more severe than at least whatever rituals I have currently. It’s so amazing all the work you did to overcome Tourette’s, and thank you so, so much for sharing everything!
- Date posted
- 7y
@Sassy_Classy_Lassy (your username is so fun to say ?) Of course!! Thank you! And I think it’s important to remember that some cases of Tourette’s can be more severe than OCD but OCD too has the power to be more severe than Tourette’s. Those rituals are no joke! OCD is constant mind games while Tourette’s is more physical sensations. Both can be equally exhausting, but I truly believe we all have the power to overcome it. ?
- Date posted
- 7y
@chipper_chelsea I gotta admit your username is pretty amazing too?it’s true though! I’m glad that this app is so good at bringing people together into such a strong fighting community.?
Related posts
- Date posted
- 25w
I am struggling right now with intrusive harm urges. They feel real and it feels like I am going to act any second. It feels like I have to hold myself back, which is a scary thoughts. I am trying so hard not to compulse, but does anyone have tips on what they do in these situations?
- Date posted
- 17w
i’ve been struggling with tics a lot lately. my doctor and neurologist are still unsure whether it’s a tic disorder like tourette’s, or if it’s myoclonic absence seizures i’m having. i’m getting an EEG done soon, but does anyone else have this or know someone who does??
- Date posted
- 10w
I think I have mild OCD. Maybe that's why I can't relate to many of the difficulties experienced by other posters. My OCD is more on the compulsion side performing certain rituals at key transitions or points during the day. I honestly cannot figure out what the underlying obsession is other than some kind of weird mental hoarding to acknowledge and cherish a moment but also to protect my family and even my pets. I get little or no anxiety (I used to when I was younger). Even mild OCD absolutely sucks and is debilitating to an extent.
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