- Date posted
- 6y ago
- User type
- Staff
- Date posted
- 6y ago
The IOCDF had a good article on this topic: https://iocdf.org/expert-opinions/ocd-and-tourette-syndrome/
- Date posted
- 6y ago
Urge to do it or you’ll lose yer mind.. that was the last part that was cut off
- Date posted
- 6y ago
I don’t have that, but nOCD, can you post some content that explains more about this co-morbidity?
- Date posted
- 6y ago
I don't have tourette's, but I do have tics. I only get them when my Pure O intrusive thoughts are really bad. I sort of shake my head to one side and my eyes twitch. I never noticed it until someone pointed it out while I was having particularly bad intrusive thoughts.
- Date posted
- 6y ago
I have Tourette’s and OCD! They are definitely co-morbid diseases. I had very severe OCD as a child and teenager. I had about 57 different tics. I am so thankful to have outgrown most of it. I take Rispirodal (Spelling?) morning and night which has definitely made a difference.
- Date posted
- 6y ago
I have heard about people with Tourette commonly having OCD (as well as ADHD). I don’t have Tourette, so is it okay if I ask what the tics for Tourette are like? I’ve seen them before but I always thought that they were completely uncontrollable? I don’t mean to be disrespectful or invade anyone’s personal space or feelings while asking this, please let me know if I’ve crossed a line!
- Date posted
- 6y ago
@Sassy_Classy_Lassy You are not invading any personal space at all! I always use the blinking example. If you tried not to blink, your eye lids would start to tingle, your thoughts would revolve around that need to blink, and after a while, you would give in. Tourette’s is similar, however those feelings of needing to do something are all over the body and for some in sounds and there are often many different feelings that want to be released. For me, my main tics were needing to feel a pull in a muscle at different parts of my body. My neck, my back, both arms, my wrists, my thighs (the exact pull you feel when you bend to touch your toes) I had to feel pressure on my toes so I would walk on them (at my worst my toenails grew inward) I would have to feel my teeth scrape against the side of my tongue. (When I had braces I had holes in my tongue. Numbing medicine was my only relief) I had to cross my fingers, twitch my nose, and push my uvula down my throat. For vocal tics I had to make a “da” sound as if you were saying “dot” and flicked your tongue. I made a gulping sound and a “pa” sound as if I was saying “pop” I never said any words which is a misconception about Tourette’s. From my treatment, it was explained that you “could” hold the tic in and ride that feeling in a wave. You hold it, the feeling gets worse and worse, but then it eases. But then the wave comes back over and over again. I imagine it would go down just like with OCD treatment, but it’s so hard. My Tourette’s is almost completely gone now. I take medication still and if I miss it my urges are stronger, but I very rarely tic besides rubbing my fingers together constantly. My tics were brutal as a teenager. I would be up all night thrashing in bed and my muscles in pain. We would try to wrap my wrists up because they hurt so much but the urges would be too strong and I’d have to do the tic, no matter how much it hurt. My back is damaged from my tics as well. I have 2 degenerated discs which I was told at 16 really should be replaced but it wouldn’t be beneficial in the long run. The cortisone shots no longer work but I have a procedure done once a year where they burn the nerves. A lot of my memories are just gone from my time as a teenager. Either from the 100s of meds I tested or just my brain not wanting to remember. But my parents, my school, and the community were amazing to me and looking back it doesn’t seem possible I struggled so much when I am doing phenomenal right now.
- Date posted
- 6y ago
ChipperChelsea, your story is so inspiring! Thanks for explaining everything, I think I understand the general idea of tics and Tourette’s much more clearly now. I definitely see some similarities in OCD and Tourette’s, but of course Tourette’s is much more severe than at least whatever rituals I have currently. It’s so amazing all the work you did to overcome Tourette’s, and thank you so, so much for sharing everything!
- Date posted
- 6y ago
@Sassy_Classy_Lassy (your username is so fun to say ?) Of course!! Thank you! And I think it’s important to remember that some cases of Tourette’s can be more severe than OCD but OCD too has the power to be more severe than Tourette’s. Those rituals are no joke! OCD is constant mind games while Tourette’s is more physical sensations. Both can be equally exhausting, but I truly believe we all have the power to overcome it. ?
- Date posted
- 6y ago
@chipper_chelsea I gotta admit your username is pretty amazing too?it’s true though! I’m glad that this app is so good at bringing people together into such a strong fighting community.?
Related posts
- Date posted
- 20w ago
So I've had OCD since I was a child. Like really young. The first intrusive thought I can remember was when I was 5. It just keeps getting worse and lately they've been making me physically ill or throwing me into extreme panic attacks again ( ones where I can't move my body ) the other night I thought God was trying to kill me because I was thinking about ending myself from OCD+ life issues but in reality I was just having a panic attack😭😭it affects me daily. It gets a little better with therapy but I don't see therapy coming into my life any time soon and I'm not even sure if I would want to go (for multiple reasons). To wrap this up if you have severe ocd can you tell me what it's like?? I don't want to label anything without proper research and hearing others perspectives. Thank you!! <3 (My profile says all of my subtypes if that helps any)
- Date posted
- 19w ago
I have a lot of thoughts about the universe, and they’re overwhelming—like being caught in a rip current, except it’s all inside my head. Most of the time, they’re about how small we are, how there really isn’t a “we” because our bodies aren’t truly ours—we’re just bacteria, cells, and microbes. The thoughts spiral, deeper and deeper, smaller and smaller, coiling until suddenly, I’m pulled under, drowning in a whirlpool. I’ve never felt like this before, and I’m convinced I’ve been faking it somehow. For the past few weeks, my OCD has been worse than it’s ever been in my 20 years of life. Or maybe I’m just more aware of it now. Has anyone else had their OCD suddenly get really bad? Does it ever end—if it even can? I’ve convinced myself that my intrusive thoughts aren’t actually intrusive, that my OCD is a choice, and that everything I do is intentional. As for compulsions, I don’t have the typical “If I don’t do ____ then ____ will happen” kind of thoughts. Instead, my brain simply commands, “Do ____,” and I always give in. It’s so loud in my head, and I can’t shake the feeling that I’m an imposter. Like I don’t belong here—like my presence on this app is an intrusion, invalidating everyone else’s struggles just by downloading it and daring to post. If anyone feels that way, if you think I’m intruding, I’m sorry. I only came here because I have no one to share my diagnosis with. Pouring my thoughts out, hoping someone might understand, feels less suffocating than journaling. Journaling is like letting a wound fester—each word burying the thoughts deeper, leaving them to decay in silence, for nobody to ever read but myself.
- Date posted
- 9w ago
This list by ai gives a good summary of my symptoms. Does it resemble OCD or is it something else? 1. Compulsions (OCD-specific behaviors): • Feeling the need to flex or contract muscles an even number of times, equally on both sides of your body. • Needing to reverse actions (for example, if you roll your eyes or trace a line with your finger, you feel compelled to do it again in the exact opposite way). 2. Intrusive Thoughts (OCD-specific ruminations): • Daydreaming about people you care about getting hurt (e.g., school shooting, injury, or kidnapping). • Sometimes feeling like you might want something bad to happen to someone you find attractive—possibly because of a desire to help or save them, though it’s confusing. • These thoughts can sometimes provide a twisted sense of relief while remaining distressing and confusing. 3. Sexual Orientation OCD: • Experiencing confusion or doubt about your sexual orientation. 4. Contamination Thoughts: • Feeling like things are contaminated, especially after touching something gross. 5. Sensory Compulsions: • Feeling the need to smell your hand after touching areas like your ear or hair. 6. ADHD-like Symptoms / Additional Observations: • Fidgeting or moving your legs when standing or sitting.
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