What’s the most ignorant thing you’ve ever heard someone say about mental illness or OCD? Last week I was in a meeting at school with my teachers. We were discussing how bad my OCD is currently and that we need an action plan for school. I told them that, at the moment, I can’t touch pens, which is obviously an issue in a school environment. It seriously took courage to open up to a room full of practical strangers about my OCD. Do you want to know one of the teachers response? Here it is: “Oh I’m sooo OCD about the pens I use, I have like a million in my office because I change my mind all the time.” Yeah, cool. Thanks for completely invalidating my illness. d a i s y

Has anyone experienced their reputation affected or misunderstood because of a societally taboo OCD theme? Others catching wind of your obsessions and misinterpreting it, assuming the worst? I’m intentionally keeping it vague because I don’t want my specific situation to get reassured, but it’s been a real tough pill to swallow knowing that people close to me (and anyone else they might talk to) think of me differently. I’m unwilling to share about my OCD because I feel pretty confident it will be taken as an excuse or denial, and feels compulsive and reassurance seeking. Let me know if anyone here has experienced anything like it, how they handled it, exposures you did.

OCD is so much more than just being 'neat' or 'organized'—it’s relentless, exhausting, and often deeply misunderstood. The intrusive thoughts, the compulsions, the anxiety—it can feel like a never-ending cycle that others just don’t seem to get. Many of us have had experiences where even therapists didn’t fully grasp the depth of our struggles. I myself faced difficulty being misdiagnosed and my talk therapist not understanding the full extent of what I was going through until I found NOCD. So many prior therapists wrote off my symptoms as general anxiety, not realizing it was actually OCD all along. If you could sit down with a therapist who truly wanted to understand, what do you wish they knew about OCD?

I never heard about people with OCD who have messy living conditions. Maybe this is why it took so long to accept my diagnosis. Although I really dont like how OCD is percieved at by the majority of people, I feel like Im weird or something because I dont fit into that stereotype. I understand that a lot of people with OCD have this issue, but why do I feel so different? If anybody else has/had this belief, what helps with feeling more comfortable? Everytime my mom points out my room, and how its messy- Its like I feel so lazy and useless. So then I often plan out everything I was going to do, step by step, always having a reasoning behind everything, because logic always comforts me. When I start tidying up my room, I go full out (Sheets, Laundry, Clorox, Candles, Vaccuming, Then I start going through the guinea pigs cage to rearranging all of their stuff) Yet always somewhere after doing a few things, I start feeling disgusting and almost shameful of myself. 99% of the time I end up laying on my floor sobbing, noting every little thing about my room. How my furiniture doesnt match, how i would rather have solid floor like hardwood or vinyl instead of the carpet, usually things i cant change… and then barely anything gets done in my room. I start to have a meltdown and often dont take care of myself even more afterwards. A piece of me feels like my thoughts are just me being a spoiled brat and wanting everything i dont have- meanwhile others dont even have a roof over their head. The other piece of me is just tired, just emotionally exaughsted. Please comment any thoughts or recomendations to maybe improve motovation and attitude towards doing long tasks.