Living with the fear of going crazy. Hey everyone, through my journey living with OCD I’ve had many different themes. The most enduring one was Harm OCD, but I would also have intermittent POCD thoughts. It wasn’t until the last few years that I developed a new theme: the fear of developing psychosis/schizophrenia. While this theme seems to be far more common, it is my experience it isn’t really noted in most of the conventional information you might find online. In all the books, websites, videos, and blogs I’ve digested, I’ve only seen it mentioned a few times. But a perusal online shows that in many OCD communities, it’s a common fear. That’s why, for those of you who are suffering or may suffer with this theme, that I find it important to share the experience openly. During the day-to-day, depending on the intensity of the obsessions, it can have a profoundly limited effect on your life. You want to avoid any scenario that might trigger the thoughts, but the avoidance leads to ever-increasing isolation. Personally, I’ve found actively participating in treatment and ERP has helped me maintain most of my regular responsibilities and habits. In the past, an OCD spike could really derail my life. And while I’m certainly dealing with more intrusive thoughts than “usual” at the moment, knowing I have the support of the community and my therapist helps me stay on course. It is without question that without treatment, my suffering would be greater than it is now. I have tools now to manage it that I never had before. It’s important to remember that no matter the theme, someone else is experiencing it. And within that theme, the particular thoughts aren’t really the issue. It’s our response and relationship to them. OCD is incredibly creative, and many with OCD tend to be reflective and conscientious people! You may have all manner of odd, strange, or disturbing thoughts. And that’s ok! Although it seems like a tired cliche, you’re never truly alone. If you have this theme, and are comfortable sharing, it can help others feel that they can be open and without judgement. I hope this has helped someone who felt isolated. Thank you!

Looking back, I realize I’ve had OCD since I was 7. though I wasn’t diagnosed until I was 30. As a kid, I was consumed by fears I couldn’t explain: "What if God isn’t real? What happens when we die? How do I know I’m real?" These existential thoughts terrified me, and while everyone has them from time to time, I felt like they were consuming my life. By 12, I was having daily panic attacks about death and war, feeling untethered from reality as depersonalization and derealization set in. At 15, I turned to drinking, spending the next 15 years drunk, trying to escape my mind. I hated myself, struggled with my body, and my intrusive thoughts. Sobriety forced me to face it all head-on. In May 2022, I finally learned I had OCD. I remember the exact date: May 10th. Reading about it, I thought, "Oh my God, this is it. This explains everything." My main themes were existential OCD and self-harm intrusive thoughts. The self-harm fears were the hardest: "What if I kill myself? What if I lose control?" These thoughts terrified me because I didn’t want to die. ERP changed everything. At first, I thought, "You want me to confront my worst fears? Are you kidding me?" But ERP is gradual and done at your pace. My therapist taught me to lean into uncertainty instead of fighting it. She’d say, "Maybe you’ll kill yourself—who knows?" At first, it felt scary, but for OCD, it was freeing. Slowly, I realized my thoughts were just thoughts. ERP gave me my life back. I’m working again, I’m sober, and for the first time, I can imagine a future. If you’re scared to try ERP, I get it. But if you’re already living in fear, why not try a set of tools that can give you hope?

I started dealing with OCD when I became fixated on health issues, particularly the fear of contracting a life-threatening disease. If I experienced any kind of medical symptom, no matter how small, that even remotely hinted at something potentially fatal, it would drive me crazy, and I couldn’t stop obsessing over it. Then one day, I started having intrusive thoughts about accidentally hitting someone with my car, and I would end up driving in circles to check if I had. Eventually, I found myself overwhelmed by a flood of new obsessive thoughts and compulsions. One day, while I was at the park, a squirrel came near me, and for some reason, I felt like it attacked me. I Googled it and learned that squirrels could carry rabies, which spiraled me into a deep fear of rabies. I became consumed with the thought I received a bite from a squirrel, raccoon, or bat any time I’m in areas that trigger me. It started off only being inside then transferred to even being in my own home. This made me obsess over every physical sensation in my body, compulsively checking to make sure nothing was wrong. One compulsion that I hated the most would to be putting rubbing alcohol on me to make sure that I had no open wounds. Every day feels like I’m walking around in a fog of anxiety, constantly worrying that I won’t even make it to old age. Sometimes, it gets so overwhelming that I just want it all to end. It stresses me so bad at times to where my brain feels like I’ve been studying all day.

Does anyone else struggle with this? It's been the main thing powering my POCD, and it's only been getting worse. Especially when I see posts online of people sharing their personal stories relating to CSA, specifically grooming. It's so triggering now, but before this theme developed, the most I'd feel while reading posts like that would be disgust targeted towards people who did those things. Now, my first thought is, "What if I do something like that one day? What if I've done it before and I don't remember or didn't know I was doing it?" I have many, many different intrusive thoughts or worries related to this theme, but it all circles back to this specific fear that I'll become like the people who hurt and took advantage of me. Does anyone have advice for this? I'm not sure if I've asked a similar question in the past or not, but is this something I need to deal with separately before beginning ERP for OCD? I'm just curious and also lost on where to begin with all of this. I'm just glad I'm able to begin working through all of these issues now, rather than later in life when I'd probably have a lot more responsibilities. Anyways, any feedback is appreciated! 🤍