I get triggered when people discuss how it frustrates them to hear someone say, “That’s sooo OCD.” Then they talk about how OCD is *real* suffering, and these people don’t know what real suffering is. Another time, a friend asked, “Have you ever struggled with depression?” I said, “I don’t know.” He said, “You’d know if you had.” It makes me feel like suffering is a competition. And that I have to rank a certain percentage in suffering before I’m allowed to express my pain or ask for help or practice self compassion. Maybe nothing is wrong with me. “Suck it up, buttercup.” And all that.

When I hear the others might think that they could also have ocd when I tell them I could have it or they want to say they have it after I’ve got diagnosed with, without knowing how I feel it is like why do I always have to have something and then they say they also might have it are they supporting, joking or what?

If you are anything like me (and most of you are, because let’s face it, we are all on this chat), you have OCD. Real OCD, not the organisation, matching colours everyone thinks it is. Real OCD. I’ve always known I was different, known that my brain does some waking things and deep down, I’ve always known I’ve had OCD. But there is just something that changes when you finally get the diagnosis. It makes more sense, you have an explanation for your behaviours. So naturally I told my friends. When they ask why I had to stop and step four times on a tile I said ‘oh, I have OCD’. I finally had a word, a tangible concept that I could explain to people. But nobody warned me about the massive misconceptions about OCD. Instead of support or acceptance, my friends seemed to question the diagnosis saying ‘that’s not ocd, don’t you just like things organised?’. And no matter how much I explain it they don’t seem to get it. And that’s the part that feels so cruel. I go through hell in my head and it can all be reduced to a phrase of ‘oh, aren’t you organised’. So please be careful out there you guys, and if someone try’s to downplay your experience, know that you are valid and that what you are going through is probably something that they could never handle. It’s a lesson that took me time to learn, but it’s important because our experience matters. Our real experience.

Today I heard a girl say ' no, I know I have OCD because I need to have a clean car'. I asked ''what are you worried about happening if you don't have a clean car' and she told me 'nothing'. And she told me she has to organize her cutlery. She continued to be...well.... oblivious and it's almost like she sees it as a trend for social media. Like what even is that??!! It was so bad for me last year and After all the debilitation I have worked through, it's kind of somehow insulting when someone thinks it's trendy to have. Like why am I still mad about it. This was 12 hours ago and I'm still urked but I know people would get it if I wrote it here! I need absolutely no reassurance, I feel how I feel I'm just mad!