- Date posted
- 3y ago
- Date posted
- 3y ago
I personally believe it’s able to be suppressed to a negligible level. To assume it can be completely eradicated from the body via behavioral treatment alone seems a bit far fetched. There are physiological aspects to OCD. For instance, the immune system contributes to OCD. Don’t believe me? Look up PANDAS and Immune-mediated OCD. I don’t claim to be a psychological professional by any means. Just someone who has ran the totem pole with OCD for years.
- Date posted
- 3y ago
I always wonder if I had PANDAS because I got OCD at age 12 after strep infection and it was very sudden and wayy out of control. But nobody really knew about PANDAS in 2004 so undiagnosed
- Date posted
- 3y ago
Interesting! I don't believe I am cured by any means. I feel like OCD is a cycle itself besides the obsessions-compulsions-relief cycle. I had just over a year of suffering so bad that I was ill and shaky all the time. Then I discovered OCD was the cause and am doing my best to keep on top of all the ways to beat it. It wasn't as bad as the whole year, but was still as frequent, then I had two whole months of no thoughts, just occasional weekly anxiety of 'somethings not right. Then I had an argument a couple days ago and then suddenly the thoughts and anxiety were back, just as strong at first until I remembered my steps to cope with it. I'm still in that episode (hopefully coming out of it now). This experience has made me believe that we can reduce it to almost non-existent but there will always be a trigger that causes it to flare up once in a while. The hard part of that is it can feel so disappointing/frustrating and more doubtful when it flares up after a really long time of being ok. Life is unpredictable and full of twists and turns and uncertainty that we don't see new triggers coming so we will need to do ERP for those new triggers. But on the whole it can become more manageable where we can even get breaks from it. Chrissie Hodges on YouTube touches on this and she's been suffering for years (around 28 years I think 🤔) and she said she has a normal life and it comes back sometimes.
- Date posted
- 3y ago
If you have a mindset that you will be cured, you will be setting yourself up for a nasty relapse. It is a disorder that needs to be managed, and of course sometimes will be better than others.
Related posts
- User type
- OCD Conqueror
- Date posted
- 14w ago
Looking back, I realize I’ve had OCD since I was 7. though I wasn’t diagnosed until I was 30. As a kid, I was consumed by fears I couldn’t explain: "What if God isn’t real? What happens when we die? How do I know I’m real?" These existential thoughts terrified me, and while everyone has them from time to time, I felt like they were consuming my life. By 12, I was having daily panic attacks about death and war, feeling untethered from reality as depersonalization and derealization set in. At 15, I turned to drinking, spending the next 15 years drunk, trying to escape my mind. I hated myself, struggled with my body, and my intrusive thoughts. Sobriety forced me to face it all head-on. In May 2022, I finally learned I had OCD. I remember the exact date: May 10th. Reading about it, I thought, "Oh my God, this is it. This explains everything." My main themes were existential OCD and self-harm intrusive thoughts. The self-harm fears were the hardest: "What if I kill myself? What if I lose control?" These thoughts terrified me because I didn’t want to die. ERP changed everything. At first, I thought, "You want me to confront my worst fears? Are you kidding me?" But ERP is gradual and done at your pace. My therapist taught me to lean into uncertainty instead of fighting it. She’d say, "Maybe you’ll kill yourself—who knows?" At first, it felt scary, but for OCD, it was freeing. Slowly, I realized my thoughts were just thoughts. ERP gave me my life back. I’m working again, I’m sober, and for the first time, I can imagine a future. If you’re scared to try ERP, I get it. But if you’re already living in fear, why not try a set of tools that can give you hope?
- User type
- OCD Conqueror
- Date posted
- 12w ago
Hi everyone, I’m Andrea and I am a member of the Intake Team here at NOCD. In junior high, I was known as the “aneurysm girl” because I was convinced any small headache meant I was dying. At just 12 years old, I read something that triggered my OCD, and from that moment on, my brain latched onto catastrophic health fears. Any strange sensation in my body felt like proof that something was seriously wrong. I constantly sought reassurance, avoided being alone, and felt trapped in an endless cycle of fear. Over time, my OCD shifted themes, but health anxiety was always there, lurking in the background. I turned to drinking to numb my mind, trying to escape the fear that never let up. Then, in 2016, everything spiraled. I was sitting at work, feeling completely fine, when suddenly my vision felt strange—something was “off.” My mind convinced me I was having a stroke. I called an ambulance, launching myself into one of the darkest periods of my life. I visited doctors multiple times a week, terrified I was dying, yet every test came back normal. The fear never loosened its grip. For years, I cycled in and out of therapy, desperately trying to find answers, but no one recognized what was really happening. I was always told I had anxiety or depression, but OCD was never mentioned. I was suicidal, believing I would never escape the torment of my mind. It wasn’t until 2022—after years of struggling, hitting rock bottom, and finally seeking specialized OCD treatment—that I got the right diagnosis. ERP therapy at NOCD was the hardest thing I’ve ever done, but it saved my life. Today, I’m 34, sober, and living a life I never thought was possible. Do I still have hard days? Absolutely. But I am no longer a prisoner to my fears. The thoughts still come, but they don’t control me anymore. They don’t dictate my every move. Life isn’t perfect, but it no longer knocks me off my feet. If you’re struggling with health OCD or somatic OCD, I see you. I know how terrifying and isolating it can be. But I also know that it can get better. If you have any questions about health & somatic OCD, ERP, and breaking the OCD cycle, I’d love to tell you what I’ve learned first hand. Drop your questions below, and I’ll answer all of them!
- User type
- OCD Conqueror
- Date posted
- 11w ago
December 14, 2024, marked two years since my first ERP therapy session with my NOCD therapist, Mixi. And October 2024 marked a year of being free from OCD. It was not an easy journey, confronting my fears face to face. Exposing myself to the images and thoughts my brain kept throwing at me, accepting that I might be the worst mother, that my daughter wouldn’t love me, and that I deserved to be considered a bad person. It was challenging having to say, “Yes, I am those things,” feeling the desire to run, but realizing the thoughts followed me. At the start of my therapy, I remember feeling like I couldn’t do this anymore. Life felt unbearable, and I felt so weak. I longed for a time before the OCD, before the flare-ups, before the anxiety, the daily panic attacks. I thought I’d never be myself again. But I now know that ERP saved my life. The first couple of sessions were tough. I wasn’t fully present. I lied to my therapist about what my actual thoughts were, fearing judgment. I pretended that the exposures were working, but when the sessions ended, I went back to not sleeping, constantly overwhelmed by fear and anxiety. But my therapist never judged me. She made me feel safe to be honest with her. She understood OCD and never faltered in supporting me, even when I admitted I had been lying and still continued my compulsions. My biggest milestone in therapy was being 100% transparent with my therapist. That was when real change began. At first, I started small—simply reading the words that terrified me: "bad mom," "hated," "unloved." Then, I worked on listening to those words while doing dishes—not completely stopping my rumination, but noticing it. Just 15 minutes, my therapist said. It wasn’t easy. At one point, I found myself thinking, “Will I ever feel like myself again?” But I kept pushing through. Slowly, I built tolerance and moved to face-to-face exposures—sitting alone with my daughter, leaning into the thought that my siblings might die, reading articles about my worst fears, and calling myself the things I feared. Each session was challenging, but with time, the thoughts started to lose their grip. By my eleventh session, I started to realize: OCD was here, and it wasn’t going away, but I could keep living my life despite it. I didn’t need to wait for it to be quiet or go away to move on. Slowly, it began to quiet down, and I started to feel like myself again. In fact, I am not my old self anymore—I’m a better version. OCD hasn’t completely disappeared, but it’s quieter now. Most of the time, it doesn’t speak, and when it does, I know how to handle it. The last session with my therapist was emotional. I cried because I was finishing therapy. I remember how, in the beginning, I cried because I thought it was just starting—because I was overwhelmed and terrified. But at the end, I cried because I was sad it was ending. It felt like I had come so far, and part of me wasn’t ready to say goodbye, even though I had already learned so much. It was a bittersweet moment, but I knew I was walking away stronger, equipped with the tools to handle OCD on my own. If I could change anything about my journey, it would be being open and honest from the beginning. It was the key to finding true healing. The transparency, the honesty—it opened the door to lasting change. I’m no longer that person who was stuck in constant panic. I’m someone who has fought and survived, and while OCD still appears from time to time, I know it doesn’t define me. I'd love to hear your thoughts and comments. Have you started therapy, is something holding you back? Is there something you want to know about ERP therapy? I'll be live in the app answering each and every one today from 6-7pm EST. Please drop them below!
Be a part of the largest OCD Community
Share your thoughts so the Community can respond