- Date posted
- 3y
- Date posted
- 3y
So what she's trying to do is mix the definitions of neurodivergency + the social model of disability. A lot of people do this, they mean well but they have NO idea what they're talking about.
- Date posted
- 3y
Neurodivergent = My brain has changed/is different than a "normal" brain due to trauma, mental illness, damage, or disorder. Social model of disability= If we lived in a society designed for people with disabilities, those things wouldn't be disabilities any longer. And that's a good theory. If we taught ASL and braille in schools along with English, it'd be a lot easier for d/Deaf and blind people. If everything were designed for people in wheelchairs, others could still WALK, but it would be significantly easier to get around. If we accommodated epileptics, autistics, etc. in public spaces, allistics and non-epileptics would be just fine, and it would be significantly easier to go outside. Demarginalizing disabled people and building society around us instead of around ableds would enable many to be a lot happier, and would turn many physical and mental disorders and disabilities into differences only. And we should strive for that, absolutely. But NOT ALL NEURODIVERGENT PEOPLE would be fine with just accommodation. ADHD, OCD, anxiety, depression, dyslexia, dyscalculia, dyspraxia, and many others are differences that can't be "solved" by building things differently. They're just...there. Please tell your sister to do more research, as she's conflating two somewhat related but not interchangable things. And also please tell her that regardless of how much she researches, she's never going to know more about someone else's lived experience than the people who lived it.
- Date posted
- 3y
@excalibre Thank you! This was explained perfectly
- Date posted
- 3y
@excalibre She has adhd and believes that if we built a world designed for neurodivergent people she’d thrive , which I can understand it might help but she’s acting like my suffering only comes from societal opression and not the mental agony that ocd creates
- Date posted
- 3y
@excalibre I also have ADHD and I am telling you she is wrong. There is no way society, even a perfect one, could fix...all this.
- Date posted
- 3y
I would be like - so like my intrusive thoughts to harm an infant baby should be acceptable but it’s not, because of “society”? like wut
- Date posted
- 3y
Yeah it makes no sense lol
- Date posted
- 3y
I'm sorry you had to go through. She had no right to say something like that to you. People like that are tough to deal with. My mom loves me and has good intentions. But she is completely clueless about mental illness. A few weeks back I ended up telling her about my OCD. I didn't want to, but she caught me at a weak moment. She was like "I think everyone is a little OCD" It sent me into a massive spiral and I almost quit treatment because of it. I would much rather have someone day "I don't understand what you are going through. But I'm here for you and I care about you." A friend who struggles with her own mental health once told something that has stuck with me. "The first rule of mental health is learning to differentiate who deserves an explanation, who deserves one answer, and who deserves absolutely nothing"
- Date posted
- 3y
Thank you! I don’t share my ocd with my family anymore for this reason. Their misunderstandings about this condition and the invalidating things they say cause me to spiral. But bc I don’t talk about it, it makes my issues more isolating. The same with my depression they understand it a little better, but still don’t fully grasp how it works or how much pain it causes me.
- Date posted
- 3y
@Isabella I have a history of major depression as well. I had one that lasted 3 years. My mom thinks grief and depression are the same thing. Not even close. She also always used to tell me "You are choosing to feel this way." Who in their right mind would choose to feel that way? I offered her a chance to attend a class to learn more about mental illness and she refused. Fortunately, I have a couple friends I can talk to instead.
- Date posted
- 3y
@Lms526 We went on a family vaction recently and I just couldn’t enjoy anything or get excited because of my depression/ocd acting up. It was so frustrating and my family couldn’t wrap their heads around why I was feeling that way, they just assumed I thought it was boring. I’m sorry your mom told you that you chose to feel this way, your right in saying that nobody would want to feel like this or have these issues and there isn’t an easy fix.
Related posts
- Date posted
- 20w
Listen, I totally get it. It’s hard to hear a loved one obsessing over small, insignificant things. My mom tries to be supportive, but she gets so mad when I tell her what’s on my mind, and she just yells at me and says I’m crazy for thinking like this. So, I just sent her this, and I hope it helps: Mom, I know it’s really hard, but when I’m suffering with OCD thoughts, all I need is sympathy. Getting mad at someone for having OCD is like getting mad at someone for having a head injury. Please understand that I can’t help it, or else I would stop it. I need someone to say, “I’m so sorry that’s bothering you this much. It must be so overwhelming. It must be so hard to cope with this.” You could even ask me questions, like “What does it feel like? How much are you thinking about this? What helps you feel better?” I just need someone to validate my experience and sympathize, not tell me that I’m crazy or say my problems aren’t real. I’m aware these thoughts are crazy — that’s why I feel so alone and sad and scared. When you tell me my thoughts are crazy, it makes me feel even more like a freak. Sometimes, I just need someone to hold my hand and tell me I’m not alone.
- Date posted
- 20w
I had like a really bad argument with my mom basically about her complaining about my “attitude” and “constant arrogance” like okay firstly 😭 yes i do have an attitude and am irritable but im not THAT bad 😭🙏 she was saying that im a “pest” and that “its not enjoyable to live with someone who makes other people miserable” like 😅🧍♀️ oh ☺️ and then i tell her that i know im struggling and that im going to therapy to try to get better and trying to possibly get a diagnosis and she says “your generation just wants something to deal with. You want something to be wrong with you. ‘Trying to get better’ isn’t good enough… would you be able to stand someone like yourself? You’re just choosing this antisocial, narcissistic behaviour and harass everyone… You need to pull yourself together. No matter how much effort we put into you, you will never be happy. You want some medicine? Some diagnosis? Because that will solve everything?” 😭😭😭 and the way she said “some medication”- she sounded so disgusted and appalled and now i feel ashamed… i mean im not officially diagnosed with ocd and it is never my intention to self diagnose- but im sorry its VERY obvious when you have ocd and know of ocd- its so distinct. Everything- the compulsions, reassurance, intrusive thoughts, themes, patterns, perfectionism- but she has me overthinking- what if i dont have ocd 😭 and ive just been lying to myself and everyone maybe its not ocd and im just sick in the head or trying to self sabotage- and especially when my supposed ocd is calm or not as loud i get so anxious “what if i dont have ocd…”
- Date posted
- 16w
My mom will sit and listen to me for quite a while, but she interrupts a lot and gets angry/upset. While I appreciate her passion, it's often stressful. Every time I come to her, if I even *mention* OCD, she gets frustrated and says, "Everyone deals with these issues, you know. It doesn't mean it's OCD." And I repeat, "I'm not saying my issues are unique — I'm saying the way I respond to them is a problem." But she just shakes her head and says, "Okay, I need to get back to my day." Full context, I'm an adult, and I live with my boyfriend, but I'm staying at my mom's for the next month. After living away from home for years, I went back to living with her during the pandemic, and I only recently left to live with him. Honestly, I think living with her for so long in my adulthood really messed with me and made me feel like a teenager all over again. I feel like my mental growth is stunted, and that's part of why my OCD is so bad lately. Not blaming, just noticing. She doesn't seem to understand how relieving the OCD diagnosis has been for me, because it explains so so so many things I've struggled with for years, and it's exciting to have more resources that can help me. But I think she sees it as me finding an excuse to *not* work on myself, which is just untrue. I'm not going to let OCD hold me back or use it as an excuse, but I'm also not going to pretend it's not a problem when I know it is — I was even diagnosed through NOCD. The whole point being to fix it, not use it as a crutch. When I have an issue, it's unbearable. Any issue, big or small, feels just the same. I feel a sinking feeling, my mind races, my heart beats out of my chest. I end up running to my support systems, crying, ruminating for days on end. Then, months later, the same exact issue can feel like nothing anymore, because it's no longer an obsession. I'm sure everyone deals with issues in a similar way, but I *know* there is something specific and debilitating going on with me. This is reassurance seeking, but in the face of being told I'm making a big deal out of nothing, can someone diagnosed with OCD tell me if they relate to the specific intensity of these feelings??
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