- Date posted
- 3y
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- Date posted
- 25w
I feel like I'm up against an insurmountable mountain. I'm not new to OCD; I know I've had symptoms since at least the age of 8 (probably earlier to be honest, I just know things really took off when I was 8). I dealt with things with no outside help until I was 17, at which point I began seeing a therapist and began to take celexa. I stuck with that therapist for a couple more years before going about my life, though I continued to take the the celexa. Fast forward to 2018, age 29 - I once again began to see a therapist and had my meds adjusted once more, this time switching to Luvox. I also wound up switching therapists after a year or so, though not by choice - my therapist had a personal crisis come up that necessitated the switch. I still see the same therapist I switched to in 2019. Early 2020 brought with it a couple more med changes, going off the Luvox and onto Cymbalta and Intuniv due to concerns about previously undiagnosed ADHD. This was how things were for five years. I'm not going to say things were perfect- there were undoubtedly bumps in the road - but things felt doable, and I mostly found enjoyment in life. This came to a screeching halt recently. Again, as I said, there were bumps in the road. At first, I thought this was all that this was. When I spoke to my psychiatrist in early February, I started Ativan as I just wanted something to take the edge off a little bit. I also went off of Intuniv as we thought that might be contributing to things. It was Saturday, February 8th when things really started to go off the rails. My boyfriend and I were going on a short trip across the state. An intrusive thought popped up - What if I sleepwalked at the hotel and hurt or even killed my boyfriend? This fear stuck with me through the entire trip. I heaved a sigh of relief as we drove back. I'd soon be safe back at home and I'd put it all behind me. If only. On the ride home, my worries shifted to concerns that I would sleepwalk and do something to my parents, who I live with. I fretted for the majority of the trip back, already making up plans to research the subject and how unlikely it would be that something like that would happen, and I'd tell my parents for good measure. They, of course, assured me that I'd never sleepwalked in the past so it was unlikely I'd do so now. I should also note that this is not a new fear of mine, but one I experienced as early as elementary school, though it had essentially disappeared up until this point, decades later. If only it stopped there. I stopped taking the Ativan Sunday evening in the middle of the trip, my thought being that the Ativan might have contributed to this. My boyfriend, in fact, had a reaction years ago where Klonopin actually sent him into a panic, so it seemed possible that I might be experiencing some sort of paradoxical reaction. I also remained off of the Intuniv. Monday was the day I began experiencing loss of appetite. Monday was also the day when things really began to take off and my life began to truly feel like a waking nightmare. Another horrific image from my past reared it's ugly head - an image of my grabbing a knife from the kitchen and stabbing my mom. An image that has continued to haunt me since - and now its 2 weeks later. There's still a bit more to the story - The day after this began, I went to a local urgent care. I was now not only experiencing these horrible thoughts, but I could barely eat lunch, and my stomach was hurting. I also told my parents the latest turn in how things were going. From the urgent care, I was given a prescription for Omeprazole and Hydroxyzine. The following day, I went to my ordinary doctor's office, where the doctor suspected my increase in anxiety and the associated intrusive thoughts had to do with going off of the Intuniv I'd been taking for five years without tapering, and advised me to immediately resume the Intuniv. He also endorsed continuing the Hydroxyzine, which I was taking at night before bed at this point. I'd hoped that going back on the Intuniv would 'even things out' and I'd be back to normal in no time. The thoughts continued, unfortunately. I had an appointment with my therapist as well as my psychiatrist, who upped my dosage of Intuniv to 3mg instead of 2mg and advised on other medication options should this not help. Though I would like to see both of them more, it's difficult with my work schedule and their busy schedules to find time. As of right now, I'm seeing my therapist once every two weeks. My next appointment with her is this Wednesday. I've also made follow up appointments with my regular doctor's office. Last Wednesday (2/19), I had an appointment with an NP who advised I take the Hydroxyzine three times a day rather than just at bed time, so I've been doing that. I thought it might be helping the first time I took it in the afternoon, though this doesn't seem to be the case with subsequent dosages, unfortunately. I also see her again on Wednesday. I apologize for the long post, but I wanted to share how I got to this point. Things aren't great. I'm trying to enjoy life where I can - I recently played board games with my parents yesterday and went to a restaurant with my boyfriend the day before and felt almost normal, but even in those instances it felt like there was something lurking just beneath the surface. I'm going through life, but it feels like I'm barely surviving. I'm going to work but only because I think I'd be worse at home with absolutely no distractions. I wish there was a switch I could flip and things would be back to normal, where I didn't feel this way. In fact, more often that not, I want to be laying in bed asleep, because you can't think when you're asleep, and it feels like the only refuge at this point. It's hard because home was always my safe place, and my mom one of my safe people - and now this. Anyway, if you made it through this long post, thanks for reading. <3
- Date posted
- 23w
Oh my god, where do I start? Trauma related OCD is the worst crap I've ever experienced in my life, hands down. It develops in some people after a traumatic experience. You can have both trauma related OCD and PTSD together or develop it after PTSD. Mine was like a transitionary phase and developed it after PTSD. I had every symptom of PTSD prior to this from witnessing a traumatic event which I will not go into detail about. But I will tell you how I went from PTSD to OCD and what I've experienced with all of this as some guy in their late 20s. So, right after the traumatic event I developed poor concentration, reoccuring nightmares, fear, insomnia, restlessness, irritation, reoccurring thoughts about the event, forgetfulness and a faulty fight or flight response triggered by the thoughts. The freaking insomnia killed me for a year straight. Imagine going to sleep at 3 am and getting up at 7 am with a faulty fight or flight response kicking in right away for that whole entire day now. It felt like my body was boiling and radiating with the hottest energy you can imagine from my legs all the way up to my head. And I also felt weak, drunk and terribly lightheaded every single day. Rinse and repeat all of that for 1 year straight. Thank god that's over now. It was a damn nightmare of nightmares. Most of those PTSD symptoms eventually disappeared but not all of them. I just found the will and mental strength in myself to let most of that PTSD crap go. But you know what happened pretty damn soon after that? It was all eventually replaced with trauma related OCD. It's like the PTSD evolved and didn't want me getting away so easily. For me, it's a mix of handwashing OCD and really bad somatic or sensorimotor OCD but that's not all. I also have distorted senses, bad forgetfulness, terrible concentration abilities, tension headaches and irritation every single day. Here are some examples of what I go through; I'll turn the lights off, but my brain imagines the lights are on still. I'll stand there trying to process that the lights are off while fighting the distorted sense perception from my brain. So, I keep 'checking' to make sure the lights are indeed off. Not a good situation to be in. I have pretty much every somatic OCD symptom of breathing, swallowing, blinking, eye movements and most bodily functions. My brain's like telling me if you don't do it the 'right way' then I have to keep doing it until I feel like I did it the 'right way.' It's a 'feeling' issue, a really bad one I should say. All of this crap causes my fight or flight response to kick in, gives me some loss of sleep, irritation and mental agony. Also, if I 'feel' like I forgot to do something even though deep down I already know I did said thing, I feel compelled to do it again until that feeling subsides. It's like this, "I know I just did that but my brain wants me to feel like I didn't do it. Therefore, let's do it again." The handwashing is bad too. But I normally do it to 'feel good' about something in my head. Hence, the obsessive handwashing. The dfference between this OCD stuff and PTSD is that PTSD has you focused solely on the traumatic event while this OCD has me focused on many, many different compulsions which is much worse. One thing vs many compulsions? The latter is by far worse, trust me. Focusing on the compulsions screws up my ability to focus and think about what I'm doing at hand. If I ignore them, just imagine a tension headache with a really irritated hot spot forming in your head somewhere and coming in hard and fast. Now, I've successfully ignored many urges but... new ones just keep coming and forming. It's a constant battle. Every freaking day is a terrible battle with this stuff. If I slip up and let something become a compulsion and get out of hand, I fight it like fighting to the death and it then takes a while for me to climb back up out the hole I fell into. Once I'm out of the hole, the incessant battle of resisting continues. Here's some more weird things I do for example; basically, if I'm desperate to keep a compulsion away, I have to do other unrelated things a certain way or else I get the urge to go right back to doing said compulsion. And sometimes weird sensations, strain or pain I might feel while doing something throughout the day will alone trigger me to do an earlier compulsion. I also have to get a good night sleep after a battle with a compulsion. If I don't, that compulsion comes right back and I have to fight it the next day. It's a vicious cycle. I know, it's very screwed up. You don't have to tell me. I sometimes repeat myself over and over again out loud to make my brain "click" with what I'm saying. Now, this one started with the PTSD and I'm not sure if it's a cognitive and concentration issue or an OCD issue but it did actually get better over time thankfully. I hated that anyway. This is a glimpse of what I go through on a daily basis. And yeah, I do ERT all the time and it's not like a magic wand you can wave in the air and then everything's gone and back to normal. In my experience, it has worked for some things but other things, not so much. I've taken saffron, NAC, valerian root, passion flower, other supplements and other stuff to see if it would all help in some way. Saffron is touted as an SSRI equivalent but it did nothing for my OCD surprisingly except make me tired. I took it for a couple months and just hated the tired and drowsy feeling I got from it. The thing that actually worked somewhat for me is NAC. I took it for several months straight at a high dose and it actually altered my OCD behavior a little bit. I did 2600 MG of it everyday for several months. I stopped after a while because it really got my libido going. Yeah, won't go into that part. Anyway, I felt like I should share my story. As someone who's had the unfortunate pleasure of experiencing both PTSD and trauma related OCD, people truly do underestimate the terrible suffering that OCD can inflict on its victims. I don't believe an SSRI or any cognitive supplement will "fix" your OCD but I believe one can be liberated from it if they do resist the compulsions long enough to where their brain sort of very slowly recalibrates itself to be less OCD about things in the future. But it will take a lot of mental strength, will power and most of all, time. Distracting yourself and focusing on what makes you happy is very beneficial too and is honestly what helped me the most out of anything. Everyone's OCD is unique to themselves. What works for me might not work for you. What you are experiencing may not necessarily be the same as what I'm experiencing. For example, some people have terrible harm OCD where they are afraid of acting out on their thoughts. I cannot relate to that. But if any of you can relate to some degree with what I have, feel free to share. I'll give you some tips that I learned from my experience with all of this that helped me. But just remember, what works for me might not necessarily work for you. - Try to adopt an 'I don't care mentality' for your ocd rituals: Try to treat it as something that you refuse to have define you as a person and as if it's just nonsense that means nothing in the end. - Stop it in the initial stages: If you feel a compulsion coming on, I've found that ignoring it right then and there works the best. Even if you act on the compulsion once when it just starts, you have enough time to stop it right then and there still by ignoring it. My brain thinks that the compulsion was therefore not a compulsion and moves on to find sonething else to focus in on. Just rinse and repeat at that point then. - Distract yourself immediately: This is probably one of the best things I ever did to get control of my OCD. If your brain starts up right then and there about something OCD related, just immediately focus on something you like to do. - My 'leave it behind' method: Move away from the area where the compulsions are occurring and go to a different room. It helped me sort of refresh my mind and brain by going to a different area and I found that a lot of my compulsions no longer 'follow me' to that different room. I can then later return to the same room where it started and be fine again. - Go work out: Another great thing to boost your mental health and possibly rid your mind of OCD is working out whether that be hiking, the gym, jogging or simply taking a walk. It's really great for overall mental well being. It helped me a lot. I never was one to give up. I've been through hell for a while now. My conscience use to be stuck in this blackest of blackness, sort of like nothingness. But eventually it started becoming more clear and I was able to start seeing through and beyond this blackness. It's like pulling a large black curtain away which was obstructing your field of vision completely and seeing something on the other side. That's where I'm at right now. I see something but it's faint. I'm just glad that it's something though. I'm thankful for that. Peace.
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- Date posted
- 20w
Hello everyone, I'm writing this because I've been struggling heavily for the past two months. I went through a breakup that I won't go into vast detail about. However, it was very abrupt with little "closure" or reasoning. It was simply based off of intuition from the other person, which is completely valid - he also said I didn't do anything wrong. This uncertainty already sounds like an OCD nightmare, which is why I'm sharing my story. There was no incompatibility, unshared values, patterns. Probably just no communication on his end towards when he started having this feeling. I thought this person was MY person, and it certainly was heavily reciprocated and initiated by him. He is also my coworker, and someone I went into a relationship with massive intentions, the slow burn and serendipity of it was special to me. This connection was a safe space and I put all my trust into him, he was my rock romantically and when things were good, he really built that trust up with me and I never wanted to let it go. I also thought I was a good partner, and tried my best. Of course I still had my family/friends, school, apartment life, career. I really felt like everything in my life had lined up and this relationship was the cherry on top for a while. Obviously we both made mistakes and there was ups and downs, but I never once questioned my love for him or thought he might suddenly leave. Which is something that can happen to anyone. After our breakup, I felt completely lost, betrayed, blindsided.....and to make matters worse, I blame myself for everything and my OCD immediately went into max gear. The uncertainty of the entire situation was so scary to me, all I could say or think was that I was scared. And I wasn't ready to face the pain that was about to come, not to mention the OCD already creeping up into full panic mode, especially without a person I considered a huge support system. OCD looks for clarity - not just me as a human looking for clarity. It felt like there was layers and layers of complexity for me that I couldn't face, if that makes sense. Unfortunately, I made a horrible mistake and attempted S. After going through an extremely vulnerable situation at the hospital, I went through inpatient and found it extremely difficult to accept my old life was simply gone, out of thin air. After I came out, I couldn't even be in my own apartment. I didn't feel safe, in a place I worked hard to get and felt "independent" in. Independence was one of my biggest personal values, now I feel anxiously attached. I also didn't feel safe at work, which was once a good distraction for me and something I also worked hard towards, I can't quit. And not to mention, the loss of an important relationship. I sought support from my family, who has been so unbelievably supportive and I also started to try to figure out what I was going to do. It was extremely hard trying to find an Intensive Outpatient Program that would work with my schedule, and also I was set to start my new semester in school again soon. I ended up setting up therapy with NO OCD twice a week. My therapist has been EXTREMELY helpful, and I honestly did not think that finding someone specialized in OCD would be so life changing. Anyway after everything that happened, I'm still struggling with feeling like a BAD person. It's my reoccurring theme. I thought that I was somehow a manipulator because of my attempt. I know I reacted poorly, but I'm also learning to give myself grace for the pure pain anyone would feel and know that it was an isolated incident (never talked about it before, especially not in relationship). I also try to remind myself that my situation is unique and only I know the pain. I also think back again and again, to every little thing I could have done wrong and it hurts me. I think about isolated mistakes or things I said, and think that's the reason why my whole relationship failed. I take the blame for everything. And it all ties back to me being a bad person. It feels like it's never ending. Sometimes I feel good, but it's still really hard to stop the cycle for me. I think about every little thing. I honestly couldn't even slightly comprehend how someone can vastly change their behavior - it felt like he truly died. That person who I got into a relationship, was no longer here. Interpreting his behavior, actions and words has been difficult, not to mention my own - but It's easier for me as I continue to give myself grace knowing that I did what I could within the relationship with the information I had. I also try to remind myself that I took a lot of accountability, and would have listened if things were brought up. The same mistakes I made, were not the same he made - but OCD keeps trying to make me overly reflect on myself only, if that makes sense. Taking OCD away completely - interpreting that is already complex. Adding OCD, it's horrible...my brain keep trying to find certainty in SOMETHING, anything. So little things come to my head, and suddenly I'm a bad person. Suddenly, he's reached happiness and I lost him because....I'm a bad person. Suddenly I was too needy, too much, showed my OCD, and he thought I was a bad person. It's honestly exhausting. I've never hid my OCD, but I did feel like I was actively working on it and also trying to be a good partner, sister, daughter, friend. I was content, and I wasn't expecting this or maybe I would have been more prepared, I've had breakups before with longer relationships. It's hard to know how OCD just came into FULL gear after this hardship, it's hard to know that - although I was working on it - I felt content and wasn't experiencing symptoms regularly. Suddenly, I was in full panic mode all the time. It's made me question my entire reality, I hope this makes sense. I know the levels of this were traumatic, and I am doing A LOT better just two months in. I'm looking forward to more progress and hope that I can accept uncertainty more and more. Regardless of how I felt, he can suddenly leave and without reason. And I'm learning that not everything is my fault, and that I have so many good things in my life I should be grateful for. Although when I came out of the hospital everything was flipped upside down, I still have a job....an apartment and family/friends and school, not to mention the work I need to do on myself and OCD. Maybe one aspect of my life (relationship), is gone - but everything else is still there. It's hard, I've been staying with my mom and this weekend I'm going back to my apartment to face my loneliness. With the help of my therapist, I'm learning to be uncomfortable in my apartment. I think this experience has COMPLETELY broken me as a person, but because of it I was able to face my OCD head on in a way I've NEVER had to do before. I could have probably kept it symptom free for the most part, but this has challenged me in a way I never thought possible - almost as if - I get through this, I might be able to defeat it. And also understand pain on such a deep level, that I can be there for my family, friends, etc in a new way I never thought possible. I probably forgot to include a lot of stuff, but lets just accept that it's extremely complex to explain - and all I know is that I'm not a bad person because OCD says so.....separating the relationship from the attempt. In the relationship, I tried my absolute best and we both made mistakes. In the attempt, I can acknowledge my pain and move forward from it in a non judgmental and graceful way. Even though I delt with extreme guilt for putting my family through something they couldn't understand and guilt for myself and for everyone involved, even though I know it's okay.
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