I can't

If you are anything like me (and most of you are, because let’s face it, we are all on this chat), you have OCD. Real OCD, not the organisation, matching colours everyone thinks it is. Real OCD. I’ve always known I was different, known that my brain does some waking things and deep down, I’ve always known I’ve had OCD. But there is just something that changes when you finally get the diagnosis. It makes more sense, you have an explanation for your behaviours. So naturally I told my friends. When they ask why I had to stop and step four times on a tile I said ‘oh, I have OCD’. I finally had a word, a tangible concept that I could explain to people. But nobody warned me about the massive misconceptions about OCD. Instead of support or acceptance, my friends seemed to question the diagnosis saying ‘that’s not ocd, don’t you just like things organised?’. And no matter how much I explain it they don’t seem to get it. And that’s the part that feels so cruel. I go through hell in my head and it can all be reduced to a phrase of ‘oh, aren’t you organised’. So please be careful out there you guys, and if someone try’s to downplay your experience, know that you are valid and that what you are going through is probably something that they could never handle. It’s a lesson that took me time to learn, but it’s important because our experience matters. Our real experience.

I have been in ERP therapy for my OCD for nearly a year now. Before my diagnosis and doing ERP, I really didn't drive a car for five years and rarely left the house. Now I drive to work, coffee and other outings. Most of the people close in my life don’t really know about my OCD. They do see me doing lots of things I haven't done in the past. I don't really know if I should explain about why this progress happened. I hope they don't think I was just being lazy up until then. They will talk about how someone is “so OCD” because they keep their room clean and really enjoy things neat. Anytime I hear this, I just think that if they hear about my diagnosis of OCD and what it entails they will think I’m crazy. I feel very conflicted about how to go about this, so advice is welcome.

Hi! I have just recently been diagnosed with OCD and it’s come as kind of a shocker to me. My friends aren’t that surprised (most of them are psych majors lol) but my parents/family are very skeptical and have been telling me that it’s just anxiety. I was diagnosed with general anxiety disorder and severe depression when I was 14. I’ve had hydroxyzine NPR since then and I’ve tried lexapro and propanalyl (both made me feel like i was going crazy) and then was misdiagnosed as having bipolar 1 (hypomania). I finally have found a therapist that specializes in OCD and we did the assessment and concluded that my anxiety/depression has stemmed from it. Most likely I have experienced my OCD symptoms since I was 11 (when my anxiety first appeared) and I am now 21. I mostly have obsessions, but I do have a few compulsions. Most of them relate to my personal space or social settings. I have a good amount of driving anxiety as well and I have a set route for every single place that I drive to regularly. I have a set morning routine that I am only comfortable with being disturbed when I have had ample time to prepare myself for a change. This new diagnosis and learning what it is and what the different types are has kind of uprooted my social life and drastically decreased my mental health. I guess I’m here to try to find some balance and some people who actually understand what it’s like to feel like there’s something wrong with your brain and no way to “fix” it. I’ve tried talking to my friends/bf/family and none of them truly understand or could even begin to imagine what it’s like inside my head. I’m just trying to find my bearings and feel the ground under my feet, but I don’t exactly know where to start.