Stuck

Hi everyone. First time here. I suffer from Contamination OCD. I have a good support group in friends, family, and my boyfriend, but I have not met anyone else with OCD and I needed to reach out to others to find help. I first got OCD when I was 17 (I am now 33) and was able to go into remission, but COVID brought it back. I was struggling at work (which was outside with the public). I found a therapist and she wrote me a doctor’s note suggesting I be allowed to work from home. My work was not accommodating at all and only offered me FMLA leave, so I took it as my only option and eventually got on Short Term Disability. The whole process took forever and was incredibly stressful. My leave was supposed to be a time of healing and it just made my OCD symptoms worse. My employer basically treated me as though I was trying to get out of work and proved to me that though they talk about the importance of mental health, they don’t take mental health seriously. I ended up having to leave my job “involuntarily due to health reasons” as they would not grant an extension nor let me return with any restrictions/accommodations. My therapist seemed good at first, but it became clear that she wasn’t really helping me. She would often use our sessions to vent about the insurance company and in one session, she basically called me a hopeless case and kept saying “I don’t know. I am concerned. I don’t know how you are going to be able to function” and threw out the word hospitalization, though she did backtrack on that one. I struggle everyday. I am worried that something from outside of the home touched something clean and is now contaminated. I need help working through this. I am constantly looking for reassurance, question if things are clean, wash my hands, use too many disinfectant wipes, and take showers upwards of 50-60 mins. I feel like my mind is being taken over by my OCD, I’m losing time, and it’s straining my relationship. For anyone who is struggling with contamination OCD brought on by COVID - any tips? My therapist never gave me anything specific to work on with this - to help me focus on something else. I am in the process of finding another therapist, but until then - any help would be greatly appreciated. Thank you!

Hey, I'm brand new here. I've been in therapy before for OCD and anxiety however my therapist seemed to get upset with me and my roadblocks. He did not seem to understand "just right" subtype and kept asking me questions to which I had no answers for because it simply did not apply. It was also extremely difficult to do exposure therapy because my OCD is embedded in daily routine and tasks. Having someone dump dirt on my floor was not going to elicit a flare because the interaction had been planned that day. I was blamed for not wanting to get better. I need someone that understands that "my rules" for how I live my life are in place simply because I do not know how to live without them - without I feel out of control and chaos and my brain just gets stuck for reasons I dont even understand but it's extremely discomforting and debilitating. Theres very little fear-base (ie: Im afraid I dont have my 3 cups of coffee, I will fall asleep spontaneously or If I dont check the curtains 3 times, the sun will burn a hole in my floor and set my house on fire) and more so rooted in a "just right" feeling which has ties to moralistic, perfectionistic, and affects relationships. It's more I check the curtains because it just doesnt feel right - or how do I know they are positioned "just right" if I dont? I religiously use my turn signal even when turning in and out of my own driveway because that's RIGHT. Sometimes it's a law that dictates it or moral code and other times for more Neutral things I've set my own "laws" in order to navigate the "gray" areas that I do realize are not normal or needed. However if I do not follow them or am unable to (ie: it's time to vaccum and my vaccum breaks), I shut down/meltdown and intensely feel anxiety and discomfort that's nearly unexplainable. I know logically if my vaccum is broken I can clean my refrigerator out instead or move onto another task but OCD illicits such strong anxiety and discomfort that it send my brain into crash mode. I know it's ridiculous but I cannot move on until the vaccum is fixed and I can continue the ORDER of routine. If it takes along time for the vaccum to be repaired, I might feel as if I have to "start all over again" instead of picking up where I left off...which is again, time consuming loop that causes very little accomplishments and things that do not have to be re-cleaned again to be re-cleaned in the specific order of my routine. I do hang onto items longer than needed and have a fear - based lack of spending I've been trying to work through. I have plans to purge my closets soon of clothing I've hung onto for over 10 years, but it sometimes is to the point where it affects my self care (Ie: I refuse to buy myself underwear because I am afraid to spend money even though my underwear is holey and barely held together. I cannot "afford" to buy food because what if I need the money for a bill?") - this has been easier to identify and work through but I'm still recovering. I also obsess over the past concerning familial childhood relationships have an abandonment root for me. I repeat myself verbally and written word when upset or when communicating with people and they often get annoyed - I believe it's because I never felt understood, valued or heard and I want to make certain they understand me clearly. When everything else falls apart I dive into answers online, medical, self help, history and stories....I look up facts, cases, ect ect and because theres always facts to learn it helps quench the extreme need for "just so" answers. But I tend to get lost and lose track of time. BUT "just so" root type has been extremely difficult to treat and function with. I end up feeling like I'm failing, I hold guilt for not being able to take care of my family and things "normal" people can handle or accomplish. I'm frustrated with myself but I also know my family is frustrated with me. I get irritable and shut down and can accomplish anything when I get roadblocked...its like my brain cannot compute how to navigate without the exact order and routine. My inners feel like a 3 year old is temper tantruming uncontrollably inside of me and its extremely distressing. I want help. I just need to know I'm not alone and I'm in the right place with people who understand the subtypes and MY specific OCD. I cannot go through getting blamed again for not trying hard enough by a therapist when I am fighting with everything I am every day and I am exhausted. I'm here now because my quality of life has been greatly diminished amidst transitions in life right now and change in familial dynamic that's prevented my normal routine and sent me into chaos. It's going on 4 months and I thought I could navigate it with time, but it's not gotten any better and I need help to get my life back on track on way or another. Thank you for getting this far if you have. Advice, comments, thoughts welcome.

Hello. This is my first post and it’s going to be a confession of sorts… I was recently diagnosed with OCD and it has been really clarifying, scary, and confusing to navigate alone. I am also going through a lot of changes in my personal life. I recently graduated college and I am currently healing from a very difficult break up with my partner of 4 years. I don’t handle uncertainty or change very well so this period of my life has been super stressful and uncomfortable. My recent diagnosis and break up have taught me a lot about myself. I first realized I might have OCD because my mental health and— what I now know to be compulsions— became so destructive to my physical and emotional wellbeing that I actually began googling questions about repetitive self mutilation. The first result was something about the link between OCD and self harm. There were some examples of what compulsive self mutilation can look like, and it strongly resembled the things I have struggled with my entire life. For me, self mutilation is the compulsion I struggle with most. At times it has been incredibly debilitating. From there, I became obsessed with reading into OCD (I find this pretty ironic and funny). The more I research about it the more it resembles the things I have struggled with for as long as I can remember. I realized that the overwhelming guilt, shame, and anxiety I feel constantly are not the consequences of being a bad person, but rather the symptoms of OCD. It feels super validating to learn that the inner turmoil I’ve struggled with my entire life is something other people experience and is actually treatable. I started working with a psychiatrist who specializes in OCD and ended up getting formally diagnosed with moderate to severe OCD. Since learning this, I am beginning to understand myself in an entirely new light. It has in no way been easy. I hit rock bottom and— just when I thought it couldn’t possibly get any worse — I hit an even lower rock bottom. I’m not saying this out of self pity or to try to fish for sympathy, I’m just hoping that I can make someone struggling with a recent diagnosis feel less alone. I have felt very alone in this journey even as I learn that many people struggle with similar things. I still have a lot of learning and growing to do, but I am actively seeking treatment and I’m doing what I can to manage my OCD. I’m really grateful for this platform and I am relieved to know that things can actually get better. I think the next step for me is to start ERP therapy, but right now that sounds really scary and exhausting. Even so, I’m quickly warming up to this form of treatment as I research about its effectiveness. Everyday I discover more ways my life has been impacted by OCD. It’s very painful to realize that the overwhelming shame I feel about my obsessions and compulsions has actually been the reason I’ve lived the first 23 years of my life undiagnosed. My diagnosis has also shed new light on my past relationship and has helped me sort through some of my emotions in this healing process. … To anybody who actually read this whole thing: thank you. If nobody read it then at least I got this off my chest. I would really appreciate any advice on navigating a recent diagnosis and seeking treatment.