I’ve been diagnosed with OCD (strongest HOCD) and have worked on it with a therapist for the past 5 years. It got better, while not completely going away. But now that I have a boyfriend and the stakes seem to be much higher in my mind, my HOCD and ROCD have big time flared up. I went to a psychiatrist to consider options of medication to someone who said he treats OCD. HE HAD NO IDEA WHAT HOCD OR ROCD OR ANYTHING WAS and told me that I may be bi-sexual etc. etc. etc. My therapist told me that this happens so often due to lack of understanding. Has anyone had a similar experience with someone misdiagnosing you and saying your intrusive thoughts might actually be true?

Hello, I unknowingly have lived with ROCD or OCD (not sure what one. I’m new to this). It has ruined so many amazing romantic and platonic relationships and I am so sad that just now I am finding out what the hell is wrong with me. Maybe life would be different if I have known. My OCD and anxiety is at an all time high (ATH) due to some horrible events that have happened in the recent months. I am at the point where paranoia has taken over my life now. I had my first panic attack a few weeks ago where I fainted. My anxiety attacks are so extreme I go thought cognitive distortion that has lasted days. My girlfriend of 3 years is my emotional guardian and she no long has the energy to be that and honestly it’s not her responsibility to be that. She is bi and wanted to have an open relationship and for someone who has OCD this has not been good for me. She also was assaulted in my own home by a good friend of ours when I was out of town but it’s not a clear situation because it sounded consensual at first. I just left my very high paying job. I am financially secure but the job was emotionally abusive and looking back made my OCD worse. I am taking some time off to get my head right…but now, all I have to do during the day is live in my OCD. I’m very happy I finally figured out why I act the way I do but I don’t know if I can get better quick enough to save my relationship. I have never been so worried about myself (M 28 years old). I am a confident young professional and never thought I would be writing on a page like this. Anyway…I hope it gets better.

OCD is so much more than just being 'neat' or 'organized'—it’s relentless, exhausting, and often deeply misunderstood. The intrusive thoughts, the compulsions, the anxiety—it can feel like a never-ending cycle that others just don’t seem to get. Many of us have had experiences where even therapists didn’t fully grasp the depth of our struggles. I myself faced difficulty being misdiagnosed and my talk therapist not understanding the full extent of what I was going through until I found NOCD. So many prior therapists wrote off my symptoms as general anxiety, not realizing it was actually OCD all along. If you could sit down with a therapist who truly wanted to understand, what do you wish they knew about OCD?

Hello! What a journey this ocd thing is! After 17 years with one therapist, I knew I was no longer making progress, so I changed to a new therapist. After just 6 months with her, she suggested I might have ocd and to look into getting diagnosed. She was right and I was diagnosed with ocd last summer. Meds are making a big difference but I still have lots of unlearning and re-learning to do. I’ve been struggling with whether or not to switch to a therapist who specializes in ocd. I have no issues with my current therapist, but she doesn’t specialize in ocd and I sometimes think I need someone who does specialize in it. But of course, I have Pure O, so I can think myself in circles til the cows come home. Can anyone share experience about switching to a therapist who specializes in ocd?