- Date posted
- 1y
My story
I spent the entirety of my childhood trying to figure out what was wrong with my brain. I crossed out multiple personality disorder, schizophrenia, and even autism (anything that could explain that second consciousness that I felt in the back of my head). It wasn’t until I was 16 that my compulsions and obsessive thoughts got so out of hand that it was undeniable that I had OCD. That year I made the self diagnosis of OCD (I know self diagnosing isn’t good but getting answers felt necessary). I’m a first gen kid with immigrant parents so mental health was not talked about or even really believed, sometimes I feel like it was even discredited:(. Because of this and the many other problems my dysfunctional family had I felt like bringing up my mental illnesses would be seen as a plot for attention so I pretended that everything was okay my whole life. I didn’t let anyone see me struggle, not my friends, family or coworkers. I would feel like talking about my issues especially to my mother specifically would just be burdening her with extra stress that I know she didn’t need. Also talking about myself and my problems requires a level of vulnerability that has always made me so uncomfortable (so much so that no other person can attest to seeing me cry in almost 10 years because of how weak and uncomfortable it makes me feel for others to see me hurting) so I would always depend on myself. Cry to myself, struggle completely alone, and hide from anyone else. After a certain point hiding your struggles gets exhausting, mentally draining, and on top of that my OCD does everything in its power to remind me that I am completely alone in this (even though in a way I’ve made it that way). So, when I was 18 I decided I would tell my physician at my physical since this was the first year my mother wasn’t in the room with me. I told my physician some things that were going on and she gave me a loose diagnosis of OCD. That day I went home with a paper saying my diagnosis, more confident because the paper sort of proved that I wasn’t conjuring up these fake problems like my mother assumed, but had an actual medical diagnosis. I told her what the doctor said at my physical and my mother responded with “You don’t look like someone who has OCD.” That comment made me so angry. It took me years to feel like I was ready to tell her and she shot me down so quickly. A big part of me blamed myself though, I had realized that I’d been pretending like everything was okay so well, and for so long that now no one would believe me. This made me feel incredibly alone, like I didn’t have anyone in my life to talk to because they probably wouldn’t believe me. But that’s unfair, being vulnerable and talking about your feelings isn’t easy for everyone especially when your own brain is telling you your pathetic for it. And that’s the thing about OCD, most people are so uneducated or MISeducated about it. They have the idea that OCD just means your super clean and organized and that’s it. And that definitely plays a part in it but it doesn’t define the disorder as a whole. My room is messy most of the time and I’m not super organized (about things most people would notice anyway) but that’s not what OCD is. OCD is the loss of control of your own brain, that “second consciousness” that starts off as dark thoughts when you’re a kid but evolves into a full blown parasite that fights over control for your own brain and for the most part wins. This parasite creates all these rules that don’t really mean anything but forces you to live by them. It also forces you to think about these obsessive thoughts, the most horrible things your brain can conjure up and forces you to think about them so vividly that it starts to feel real. This disorder can be all consuming, it has taken away so many parts of me including my mental health, affects my school and work, my social life, my ability to have relationships and friendships with a lot of people because it makes me terrified of change. Any non-constant or routine in my life scares me beyond belief to the point where I am unhappy with the life I am living because of all the experiences my anxiety/OCD is preventing me from. All these obsessive thoughts lead to compulsions, mine happen to be multiples of 3 aka “3-ruled” most people with OCD have a number or series of numbers that run their compulsions such as even numbers, numbers that end in 5, etc. For me it is 3s and multiples of 3s. The obsession with 3s started when I was about 11. At the time I was obsessed with this show called Once Upon A Time. The show was about how magic was hidden in the real world, and I wished more than anything that the show was more than a fiction. I noticed that the number 3 was very significant in the “magical world” (for example “3 magic wishes” etc.) that running my life by 3s would in some way bring some of that magic into my real world. Now it’s gotten to the point where almost every action I do is in 3s. Light switches, opening bottles, pen clicking, almost everything. If not the 3 rules my OCD creates other compulsions that make me feel at a lack of control of my brain and life on a daily basis. The constant thoughts and worry of anything and everything make it impossible for me to turn my brain off because it feels like it’s not being run by me. This is why I’ve struggled with insomnia since I was a kid. Sleep has always been something that has come difficult to me which is why I value it so much. The second something or someone would wake my brain up the thoughts would awaken also almost like a crying baby. There’s so much more I could ramble on about but I don’t think there’s enough space in the world to explain everything. Now I’m 19, have just started ERP (Exposure and Response Prevention) therapy which I am hoping will give me a glimpse of what a normal life can look like.