How open are you all about your ocd? Do you ever tell anyone? Right now everyone at work thinks I’m perfectly happy and that everything in my world is great. When in reality everything is falling apart and I’m depressed. It’s so hard when someone makes a comment like “you’re so perfect” or “you’ve got your life so together” when they don’t know what you’re going through and what mental battles you have to fight literally every minute of every day. This is why I want to tell the people around me, but I’m also worried they won’t understand. Can anyone relate to this?

Please if someone can reply! I really just need someone to talk to. I don’t even know how to control my OCD. It honestly feels like it’s controlling me. Everyday my mind focuses on every bodily sensation I have and it’s like a broken record player, I have horrible health anxiety and my OCD just makes it worst just thinking about it everyday. It feels like everyone who I explain it to looks at me like I’m stupid/crazy. I use to be much more tame with my OCD, I use to eat things without worry, now I can’t even touch things I use to eat without worrying that I’ll get an allergic reaction (despite eating them BEFORE,,,but my mind tells me otherwise) and omg worrying about heart attacks, pulmonary issues..and I couldn’t even enjoy my own child’s birth because my mind was on high alert thinking I would hemorrhage any second or develop pre-E (complications of postpartum) I was miserable for the first couple of months of my baby’s life and I didn’t know what to do. And now, I’m pregnant with my second (4wks) and all the OCD thoughts and anxiety is coming back at me and I have no one to talk to, I feel lonely. And even if I considered taking a pill, I’d worry about being allergic to it and refusing to take it. I ruin everything for everyone. I remember I ate out one night and I started to think “you’re gonna pass out! You’re gonna pass out! (Without ever passing out before) and I had to leave! I feel like I ruin the mood for everyone when I don’t even try to, and I hate it.

If you are anything like me (and most of you are, because let’s face it, we are all on this chat), you have OCD. Real OCD, not the organisation, matching colours everyone thinks it is. Real OCD. I’ve always known I was different, known that my brain does some waking things and deep down, I’ve always known I’ve had OCD. But there is just something that changes when you finally get the diagnosis. It makes more sense, you have an explanation for your behaviours. So naturally I told my friends. When they ask why I had to stop and step four times on a tile I said ‘oh, I have OCD’. I finally had a word, a tangible concept that I could explain to people. But nobody warned me about the massive misconceptions about OCD. Instead of support or acceptance, my friends seemed to question the diagnosis saying ‘that’s not ocd, don’t you just like things organised?’. And no matter how much I explain it they don’t seem to get it. And that’s the part that feels so cruel. I go through hell in my head and it can all be reduced to a phrase of ‘oh, aren’t you organised’. So please be careful out there you guys, and if someone try’s to downplay your experience, know that you are valid and that what you are going through is probably something that they could never handle. It’s a lesson that took me time to learn, but it’s important because our experience matters. Our real experience.

Sometimes I feel like nobody really gets me. Nobody knows what’s going on in my head. I try to explain in vivid detail, but my ocd immediately reads the other persons face and registers that they don’t get it. It’s a very isolating experience. Anyone else have something like this?