Dealing with OCD sympt. when the worst DOES happen

TW: Discussion of receiving a real physical health diagnosis after worrying about it for years It's been a while since I was on this app. I was diagnosed back in 2020 (since one of my main themes is contamination, you can imagine that that was just PERFECT timing, insert eyeroll here) and I did some ERP way back then to try to start working on managing my symptoms. ERP didn't really seem to work for me back then, but maybe that's because we were going through a pandemic at the time. I've done a lot of other therapy since then that has been effective at treating some underlying trauma and other issues I was dealing with in my life, in addition to helping me figure out that a deep fear of death underlies all of my obsessions (and compulsions). I've still been symptomatic in terms of struggling with contamination and health concern obsessions (and others) for the past few years. Everything got shaken up recently, though, when I got diagnosed with thyroid cancer. It's super treatable, I have a family history, and I/my doctors have known I have thyroid issues for about a year now, but regardless, the diagnosis absolutely shocked me to my core. It felt like everything I'd worried about with my health for my whole life came true in that moment. It felt like that one phonecall from my doctor validated all of my fears in that moment. I know that my treatment plan is proven effective, but I'm left with the constant "What Ifs". I'm sure that most people that get diagnosed with cancer, if not all, struggle with these what ifs, but they feel so much more intensified for me right now because I feel like the thing I was worrying about for my whole life actually came true. TLDR: Does anyone have any tips for managing fears, obsessions, and compulsions when the worst really does happen? How do we help the fear-processing, non-logical parts of the brain cope with the idea that the worry about the thing and the thing itself were not connected? How can I come to believe that I didn't worry this into existence? How do I manage the what ifs (what if after treatment it's not actually gone? What if it comes back or spread somewhere else?) without doing silly compulsions to "make up for it"? I know that was a lot, so any tiny tidbits of advice would be much appreciated, especially if you've gone through similar things yourself (e.g., had health obsessions and then actually developed a health issue). ♡

Jen P.

User type: OCD Conqueror

Date posted: 1y

So I had the same thing happen. I have health ocd and was diagnosed with cancer when pregnant. I really went downhill after and let ocd rule my life. Now 8 years later, I still struggle but it is better. My counselor had me make a list of all the things I thought I had over the years versus what I actually ended up with. It was so helpful for me to see how my ocd convinced me countless times I was sick and I only was once and I beat it. I didn’t die like ocd said I would. I then destroyed the list not to use it for reassurance.

OCDFamily

User type: OCD Conqueror

Date posted: 1y

This is hard to deal with even in non ocd land. But i would suggest every person at some point develops a health issue of some kind. Treat yourself well. This is not your fault

redheadgal

Date posted: 1y

Thank you :) you're definitely right, this would be hard regardless and I didn't wish or worry this into existence

vendel

Date posted: 25w

‼️I beat OCD. here are my best tips‼️

❤️we all just want it to be over already, but do not set a deadline for your recovery (e.g. "i give myself 3 months to get better") and let yourself go at your own pace ❤️accept that healing is a very, very non-linear process with highs and very dark lows.. it's a lifelong process for us those with ocd, when you stop suffering you start learning ! ❤️WITHOUT ruminating on this, identify the root of your obsessive themes. they hurt so much because they go after your deepest wounds. clearing out the fear or pain that stands at the base of your obsessions will help (e.g. my sexual ocd came as an emotional outlet for my inability to accept a new family member in my life) (e.g. my solipsism ocd came from the deep fear of being alone and abandoned) ❤️the truth will always surface. even if you have no hope anymore and not even asking for reassurance helps, put that last bit of your trust in the other people that are in good states of mind and who are trying to help you. remember that you're living by a distorted mind and if you can't trust your own brain, have trust in others. those who love you are your life net when you're down in the slumps. trust me. ❤️ocd can be caused by chemical imbalance. if you feel like you need it, don't be reluctant to try medication. it's important to have the correct dose and the correct meds. it may change a lot before finally being effective, but it can help A LOT. it was lifesaving for me. (I personally took 125 mg sertraline at 14 years old) ❤️cliche, but the exposure part of erp is in you already. we get exposed to relentless obsessions and terrors already by our minds, our part is the response prevention. throw yourself into the depths of uncertainty and fear by refusing to act upon your compulsions. any learned behavior can be unlearned, our brains are changing! 🧠 it does feel like we can't risk because we can't "know for sure" and we better be safe than sorry, right? well, screw this. unlearn these behavior and live life your own way. ❤️connect with other people with ocd. community is our pillar as humans, especially those communities who share our suffering. ❤️we tend to ask for reassurance a lot and other just reassure us because it's rational to them, not being aware thar it only causes us more pain as we have distoerted thinking. teach your loved ones to respond to your reassurance in a way that doesn't feed the cycle. (e.g. reassurance seeking- "hey, are you ABSOLUTELY SURE that I didn't hit an animal on the way back home??" ❌️wrong response- "no, you didn't, I already told you, I don't remember hearing or seeing anything!" ✅️better response- "I can see you are really distressed right now, why don't we go cook something together/watch a movie/paint together/etc.." ❤️keep your faith close to you. there is something bigger around us that surrounds us with love and takes care of us. even if you don't believe in a god, spirituality goes beyond religion. for me, this higher being was the sky, and everytime I saw the giant clouds I'd tell myself that they felt my emotions and they're watching over in my suffering. strangely enough, this pillar i built in the clouds was strong and really did give me a helping hand. who's to tell these connections we make are not real?

Anonymous

Date posted: 25w

If You Are Really Struggling, This Might Help! 🧡

Common posts on here are "i had a thought" "why am i thinking this" "what if" and these are all OCDs way of making you doubt yourself while taking you round and round in never ending circles at the same time. Regardless of the theme you are facing, there is no "figuring out" or "making sense" of a thought, because it isn't a real situation - it's a passing word or image or scenario without any meaning attached. You can't control your thoughts and the more you "don't want to have them" the more they will appear. For instance, tell yourself not to think about "apples", it will be the first thing that comes to your mind, because that's just how our minds work. Once you categorise a thought as "bad", every time it comes into your mind, your anxiety level will go up and this makes the thought seem real. Because if it "Feels" this bad, surely it must mean something or must have happened - But none of this is true. All we have to do is naturally notice thoughts as they come up, and rather than try to assess or ruminate over the content, we can almost shrug them off. It's the only way to accept thoughts as simply thoughts and nothing more. Anxiety drives the intense feeling and the more attention you give to thoughts, the more power they have over you. No random thought can change your real intentions. OCD is never ever satisfied, so the only way forward is to accept the uncertainty of never knowing "for sure" and to class the unwanted thought as irrelevant. OCD says "quick..bad thought..feels horrible.. what does it mean.. fix it". But in reality there is nothing bad here or nothing to be fixed, it's a false alarm. Once you learn to respond to a thought calmly by working on anxiety, it gets easier over time. It's your perception of your thoughts that needs to change, you believe they mean something about you, but random things pop into our heads all the time - both things we like and things we don't. OCD also latches onto what we care about most and it always comes with a feared consequence, so think about what yours is, e.g "what happens if my worst fear comes true" you can then practice imaginal exposure which is imagining your worst case scenario over and over until you become desensitised to it and no longer fear it - therapists use this technique in sessions. Everyone in the world has thoughts, the thoughts are not the issue, you just get more of what you focus on, up until the point that you can change your attitude towards the thought. If I asked you if you went upstairs today you would have an answer straight away, however if I asked you a question related to your OCD theme, your anxiety would increase and you would doubt yourself, because that's OCD doing the thinking for you. Once you give it less power it becomes a less significant part of your day. It's so easy to give into compulsions as they feel like a "quick fix".. but as I mentioned, ocd is never happy, which is why it wants us to continue to check and seek reassurance. Once you start reducing and gradually stopping compulsions, whether this is rumination, checking, or a physical action (whatever you falsely believe is "keeping you safe" from your feared consequence) you will see it's not necessary to do them, and that the time consuming little things you have taught yourself to do have no effect on what actually happens in real life. Thoughts prompt feelings and feelings prompt actions - meaning - thoughts cause anxiety and anxiety drives unnecessary actions. As a side note, I overcame contamination ocd (I was in a very very bad way and now the theme doesn't bother me anymore). I still have OCD and it can affect me slightly at times, but i can manage it in a way that it doesn't interfere with my day and without the need to carry out compulsions. Please practice, because I promise it helps, it's super scary at first and extremely difficult but the end result is worth it. ERP therapy is also very helpful.

dee012

Date posted: 13w

back on this app! any advice?

(Long read) hello everyone. i was out of the country for about 3-4 months and traveling. my ocd was not that bad at all and I was able to handle it even if it came up. on my way back home, it immediately started. i have learned how to handle it better, but i am more sad and just “awaiting” for something bad to happen. for example, i have sexual themed ocd. pocd and family related stuff, and also my ocd targeted my pets for about a year and it manifested into compulsions that disturbed me and made me not want to be around my cats. now that i am around my cats, i feel like “what if i harm them or do something bad?” or “what if you do those weird compulsions that happened before?” , when i look back on the compulsions that happened, it doesn’t feel like me and it was clearly driven by ocd, but it makes me worry i am just a sick person. i know myself and i know im not, but i had such a weird childhood and then ocd from 15 years old and up. so when these weird compulsions had happened , whether it was for the pet ocd theme or pocd or the family ocd, it feels like some sort of proof. anyways, i feel a bit for content with myself but i know how real ocd can feel and i just remember feeling so hopeless and suici da l, i just don’t want to go through that again. i take a more spiritual route of life and healing, and i wonder if anyone has some deep spiritual warmups or practices i could do to maybe open up my mind more? maybe to realize this is all in the mind? but also to not fight it… Not fight it meaning not let it take over my life. i racked up so much debt in therapy and i truly think i can get through this alone i just need a bit of help. but i dunno. any advice would help! thanks everyone ☀️

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Dealing with OCD sympt. when the worst DOES happen

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