- Date posted
- 1y
health concern stories
can those who struggle with health concern ocd tell me about their stories with it? i dont want to feel alone
can those who struggle with health concern ocd tell me about their stories with it? i dont want to feel alone
Soo I’ve been struggling with this as well, I keep going to the hospital because I think my liver is failing constantly because I rely on alcohol to go to bed, I finally got my liver ultrasound and organs all checked and everything is fine, last night I fell just to get out of work because I felt “dizzy and wasn’t feeling good” I started worrying about mental health and went to the walk in again, I can’t even go to dinner with my gf anymore because of my OCD, last night I went out to have food and I completely lost it I wanted to leave ASAP, now I’m worrying about my brain health and wondering if everything is right in my head, OCD sucks, but I awake everyday but struggle everyday with the same thoughts, I’m right here with you
I’ve had health ocd since I was sexually abused as a child, it has almost always been focused around fear of getting hiv and it really makes life difficult. I’ve made it to my healthiest relationship ever with someone who is great and I have done so many hiv tests to make sure I don’t have it and haven’t passed it to him but i can never be 100% sure about it I always think maybe results are wrong somehow. The last five months have been hell because I had a possible exposure to blood and I’ve been freaking out doing lots of tests googling on a loop having panick attacks that made me have to leave work … it is being really difficult because it just makes me feel like I could hurt someone that is so great so much, that is my biggest fear. With all of the testing I’ve done the only possibility that I could have hiv but all of my tests are negative is that I have last stage cancer and maybe that could false my results in some way and (of course) I now think I may have hiv + last stage cancer. This illness is really debilitating but I believe I will get better and so will you, hope you are doing better ❤️
It started when I became an adult, and started receiving my mental health diagnosis. I hyper fixated on each and every action I did and how it could be related to my diagnosis’s. It then lead to fixation to my physical health — making appointments and seeing every specialist I can to rule out every possibility. I currently have been suffering with obstructive sleep. I woke up the past few days with severe pain from the lack of sleep whilst believing I was oversleeping. Luckily my fit watch tracks my sleep cycle and it turns out I am not receiving any sleep. I had an extreme panic attack — bursting into tears on the phone with my mom wondering what this case might be. She told me it could be sleep apnea and that a simple sleep study could figure this out. However, knowing my family history I made appointments to every specialist I can to make sure it is nothing serious. The unknown of health can be scary to me. Watching my mother suffer with her physical health chronically since I was a child lead me to be very conscious and aware of how my body is functioning. This morning was one of the worst moments of physical pain. I should just take one step at a time with the sleep doctor instead of taking measures to see every specialist that could pertain with this issue. However, that is very hard to me. I don’t want to ever wake up in the pain I was this morning. Does anyone else suffer with health-related OCD? And if so, how do you find a sense of ease during moments like I expressed?
I started dealing with OCD when I became fixated on health issues, particularly the fear of contracting a life-threatening disease. If I experienced any kind of medical symptom, no matter how small, that even remotely hinted at something potentially fatal, it would drive me crazy, and I couldn’t stop obsessing over it. Then one day, I started having intrusive thoughts about accidentally hitting someone with my car, and I would end up driving in circles to check if I had. Eventually, I found myself overwhelmed by a flood of new obsessive thoughts and compulsions. One day, while I was at the park, a squirrel came near me, and for some reason, I felt like it attacked me. I Googled it and learned that squirrels could carry rabies, which spiraled me into a deep fear of rabies. I became consumed with the thought I received a bite from a squirrel, raccoon, or bat any time I’m in areas that trigger me. It started off only being inside then transferred to even being in my own home. This made me obsess over every physical sensation in my body, compulsively checking to make sure nothing was wrong. One compulsion that I hated the most would to be putting rubbing alcohol on me to make sure that I had no open wounds. Every day feels like I’m walking around in a fog of anxiety, constantly worrying that I won’t even make it to old age. Sometimes, it gets so overwhelming that I just want it all to end. It stresses me so bad at times to where my brain feels like I’ve been studying all day.
Hi everyone, I’m Andrea and I am a member of the Intake Team here at NOCD. In junior high, I was known as the “aneurysm girl” because I was convinced any small headache meant I was dying. At just 12 years old, I read something that triggered my OCD, and from that moment on, my brain latched onto catastrophic health fears. Any strange sensation in my body felt like proof that something was seriously wrong. I constantly sought reassurance, avoided being alone, and felt trapped in an endless cycle of fear. Over time, my OCD shifted themes, but health anxiety was always there, lurking in the background. I turned to drinking to numb my mind, trying to escape the fear that never let up. Then, in 2016, everything spiraled. I was sitting at work, feeling completely fine, when suddenly my vision felt strange—something was “off.” My mind convinced me I was having a stroke. I called an ambulance, launching myself into one of the darkest periods of my life. I visited doctors multiple times a week, terrified I was dying, yet every test came back normal. The fear never loosened its grip. For years, I cycled in and out of therapy, desperately trying to find answers, but no one recognized what was really happening. I was always told I had anxiety or depression, but OCD was never mentioned. I was suicidal, believing I would never escape the torment of my mind. It wasn’t until 2022—after years of struggling, hitting rock bottom, and finally seeking specialized OCD treatment—that I got the right diagnosis. ERP therapy at NOCD was the hardest thing I’ve ever done, but it saved my life. Today, I’m 34, sober, and living a life I never thought was possible. Do I still have hard days? Absolutely. But I am no longer a prisoner to my fears. The thoughts still come, but they don’t control me anymore. They don’t dictate my every move. Life isn’t perfect, but it no longer knocks me off my feet. If you’re struggling with health OCD or somatic OCD, I see you. I know how terrifying and isolating it can be. But I also know that it can get better. If you have any questions about health & somatic OCD, ERP, and breaking the OCD cycle, I’d love to tell you what I’ve learned first hand. Drop your questions below, and I’ll answer all of them!
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