- Date posted
- 5y
- Date posted
- 5y
I have been formally diagnosed with both. I was first diagnosed with ADHD and took stimulants for a year but my performance was nose diving and my stress was unmanageable. My psychiatrist noticed I was picking at my skin and ruminating on thoughts so she wanted to test to see how significant these “ocd tendencies” were. It turns out the form of stimulant I was using for my ADHD was not only ramping up my stress but exacerbating my OCD. When I went to take the evaluation to see how bad the “OCD tendencies” were with my ADHD, we learned I had moderate OCD (with few compulsions and instead it was PURE O) and the ADHD was secondary. I know go to ERP once a week, have switched off stimulants that make OCD worse and instead to a better stimulant that I can manage. I also am on medication for the OCD which has balanced out my mood and side effects. Some people will say it’s impossible to have both. I know I have both (from diagnoses and working in therapy to address how they function differently). In my experience I have found that I have to treat both OCD and ADHD because only working on one makes the other twice as bad.
- Date posted
- 5y
Stimulants don’t even help with my ADHD. The only thing that has helped mine is the non-stimulant Straterra. I too know that I have both. When off of my ADHD medicine I have gotten in car accidents and run red lights etc.
- Date posted
- 5y
There is actually high comorbidity between the two disorders, but at the end of the day, diagnoses only exist to inform treatment plans. Your brain is unique; a certain diagnosis (or diagnoses) might not fit your experience exactly, but it can lead you to a larger and more specific array of treatment options.
- Date posted
- 5y
Thank you. I appreciate that. I started a stimulant. i Read that it can exacerbate ocd symptoms. i Do not find my ocd tendencies are out of control, however I noticed their existence now. My impulsive behavior improved so much that I do not want to stop the stimulant. I do believe my mind is unique. I dont necessarily fit OCD 100% or ADHD%.. But dbt and cbt was so amazing in improving my symptoms.. and the medication.. the incessant thinking is still problematic. Eckhart Tolle books and vids have also been a huge help. Its encouraging to know that maybe I am just unique... thank you.
- Date posted
- 5y
I’ve never heard of not being able to have both simultaneously and don’t understand why that would be the case. In fact, I have them both. In my experience they are two different things that have their own set of difficulties. I can tell when my adhd is at play and when my ocd is at play. They are very distinguishable. That being said there are some similarities and there are some moments where I’m not sure which one is the culprit. But most of the time that’s not the case.
- Date posted
- 5y
My therapists and I are fairly sure I have both, although we’ve never bothered to get me formally diagnosed, because at the point of my life I’m at, the official diagnosis would just be a fun label in my file. The ADHD affects my life less than the OCD does, and the only reason to formally diagnose me with ADHD would be to allow me access to accommodations or resources, but at my current stage of life there aren’t really any accommodations that would be available to me with an ADHD diagnosis that aren’t already available to me with my other diagnoses. The thing is, though, that the exact label(s) you get assigned to you aren’t set in stone, and your diagnosis might not exactly match your symptoms. The point of diagnosing you is to get you the best help possible for you to succeed and thrive, so if you’re getting help that works for you, the exact names you’ve had assigned to you don’t really matter. I know diagnoses are really important to some people, and I think my perspective is influenced based on having been diagnosed and re-diagnosed repeatedly since the age of five, but as far as I’m concerned diagnoses are just tools doctors use to help match patients to treatments.
Related posts
- Date posted
- 24w
Since when do you believe you have OCD? Anyone who would like to share what were the indications/symptoms in childhood?
- Date posted
- 22w
Hi guys, This is my first post on here, as I’ve been scared to be vulnerable in this way. I’ve had a lifelong journey of mental health, diagnosed with a myriad of things, and misdiagnosed with others. When I got diagnosed with OCD, things started to click and treatment has been going well. There’s still a disconnect, things I do that are different than others and aren’t compulsion or obsession related. The reason I’m posting is to ask if anyone has been diagnosed with OCD/Autism and how you navigated that comorbidity. Thank you to anyone who shares
- Date posted
- 19w
Some background: I’m a woman in my 30s who’s been struggling to find the right diagnosis for years. Since 2022, I’ve had multiple psych hospital stays, and with each stay came a different diagnosis and different sets of medications: Bipolar II, CPTSD, MDD with psychotic features, “high functioning BPD,” and most recently, Schizoaffective Disorder (depressive type). Before all of that happened, I had been seeing a therapist for CPTSD and AuDHD traits for 2 years, but after they left the practice, I struggled to find someone I trusted again. Most of my breakdowns happened during my last relationship. Looking back, I was in survival mode with them, leaving who *I* am behind. I got to the point where I started doubting my own reality from the abuse. This eventually added up and landed me in my first episode of psychosis. That combined with my attempts is what got me my schizoaffective diagnosis. After finally leaving that relationship 1.5 years ago, I’ve slowly rebuilt my life: new town, new job, new friends. Many of my old symptoms (major ones) haven’t returned, which makes me believe I may have been misdiagnosed due to reliving past childhood trauma and stress responses from the abuse. Through all of this, I’ve felt like nothing ever truly fit. I journal, I reflect, I replay the recordings and I’ve even watched old vlogs –the puzzle pieces still don’t come together. It’s left me feeling like I’ll never really know what’s going on, and I’ve started to fear that my diagnoses will just keep stacking up without ever leading to effective treatment. Recently, I opened up to a friend about this. She mentioned that her neighbor went through something similar not exactly like me but she thought it would give me a starting point—multiple diagnoses that never felt right—until a new doctor finally identified it as OCD. That one diagnosis changed everything for her. It made me realize I really don’t know much about OCD beyond the stereotypes. I didn’t know OCD could involve intrusive thoughts, rumination, or mental compulsions. My friend encouraged me to look into it, especially as I start searching for a new therapist. Facebook and Google lead me here… So now I’m wondering: could OCD be a better explanation for what I’ve been experiencing all these years? Questions for the community: 1. What steps did you take to find out if OCD was what you were dealing with? 2. If you had a long history of misdiagnoses, how did you finally find a clinician who got it right? 3. How did you advocate for yourself when people dismissed your concerns? 4. Is there anything you wish you had done earlier in your OCD journey? Thank you so much if you made it this far. I’m really grateful for this space and just want to start finding answers and the right kind of help.
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