This is long but I’m hurting and need practical advice on what to do. My OCD is convincing me I’m psychotic. It doesn’t help that I was misdiagnosed with bipolar disorder and had an ill informed therapist tell me for 8 months that my intrusive thoughts were hallucinations and delusions. I just quit lithium a week ago after being on it for 4 months after a psychiatric nurse who I no longer am seeing told me it was safe to do so. I don’t exactly trust her though since she accused me of being a liar, impulsive, having a personality disorder, and told me I had to take antipsychotics or she would walk away, when I had legitimate questions about the bipolar diagnosis (hence no longer being in her care). My anxiety and intrusive thoughts are spiking worse than ever. My main theme is harm so I’m terrified of becoming manic and psychotic and believing my intrusive thoughts are correct, even though my non-OCD self is positive I’m not bipolar. I’m starting to doubt I have OCD and am asking myself what if I am actually delusional and in denial about my situation and am actually a danger to myself and others. I got approved for a PHP in the OCD and anxiety disorder program at Rogers but I don’t start for another 3 weeks. Has anyone been through anything like this (misdiagnosis, wrong medication making you worse, lithium withdrawal, questioning if your OCD is actually psychosis, etc) and has some advice with how to deal with this? I’m feeling so hopeless and dejected after being tossed around the mental health field like this only to find out I have OCD and could have started treatment 8 months ago and not gotten to this point if my doctors were more aware of this condition

I’ve been diagnosed with OCD (strongest HOCD) and have worked on it with a therapist for the past 5 years. It got better, while not completely going away. But now that I have a boyfriend and the stakes seem to be much higher in my mind, my HOCD and ROCD have big time flared up. I went to a psychiatrist to consider options of medication to someone who said he treats OCD. HE HAD NO IDEA WHAT HOCD OR ROCD OR ANYTHING WAS and told me that I may be bi-sexual etc. etc. etc. My therapist told me that this happens so often due to lack of understanding. Has anyone had a similar experience with someone misdiagnosing you and saying your intrusive thoughts might actually be true?

Hi, this is my first time posting here, though I have been looking at the app for support for a while already. I have pretty bad social anxiety which unfortunately extends to even being in forums online as well, so I have been putting off sharing on here. I am in my early 40s and have struggled with OCD in various forms since I was a child. In my mid-teens it exploded into very tormenting Pure O. It is complicated by some comorbidity with other diagnoses — social and generalized anxiety, depression, and CPTSD. The sad thing is that I’ve actually experienced so much harm over the years at the hands of uneducated mental health professionals who didn’t have a clue about OCD or how to work with it, and i feel like I carry this extra burden of shame and trauma from those bad experiences on top of the grueling daily struggle I have with my mental health diagnoses. I am set up to have an initial consultation appointment soon with a therapist who is a psychologist in private practice. They seem kind and very knowledgeable, and so I am very hopeful that we will be a good fit for working together. But I am still haunted by those past bad experiences, and so the whole process of starting with someone new is nerve wracking. Has anyone else had bad experiences with therapists who didn’t understand OCD or who had only a superficial understanding of it? Thanks for reading!

Hello, I never got formally diagnosed for OCD, they told me I have autism with ocd tendencies but I think I have more than just tendencies. I’ve been reading some of the posts and I’ve never related to something more. These past few weeks especially have been awful. Let me explain. 1. I have a boyfriend and I’m coming to realize I may have ROCD. I love him to death but I can’t get over the thought that maybe I’m just faking for his attention and I don’t actually like him and that he doesn’t actually like me and just feels sorry for me. Now I know none of this is true, but it feels intensely real to me and I’ve started avoiding him because of it. We still hang out and I try to get past these thoughts but its hard. 2. I’m trying to lower the dose of my meds because I miss having emotions but now they may be too low and my depression/anxiety is coming back. The other day it was so bad and the intrusive thoughts were awful and I had the urge to SH. I physically felt like I had to do it. My boyfriend was on the phone with me, I kept trying to hang up so I could go do it, he wouldn’t let me. It was the only thing I could think about. “Luckily”, not really that lucky, he fell asleep so I snuck to the bathroom to do it. I hated myself so much afterwards but also felt relieved that I did it. Then super guilty. Then I started thinking I only did it for attention. It’s so stressful and I feel the urge coming back and I can’t stop thinking about it. There’s many other intrusive thoughts and compulsions I’ve been having but those were just two of the main ones. I don’t know what to do/maybe I could try exposure or therapy but I really don’t want to. Thanks for reading!