This is long but I’m hurting and need practical advice on what to do. My OCD is convincing me I’m psychotic. It doesn’t help that I was misdiagnosed with bipolar disorder and had an ill informed therapist tell me for 8 months that my intrusive thoughts were hallucinations and delusions. I just quit lithium a week ago after being on it for 4 months after a psychiatric nurse who I no longer am seeing told me it was safe to do so. I don’t exactly trust her though since she accused me of being a liar, impulsive, having a personality disorder, and told me I had to take antipsychotics or she would walk away, when I had legitimate questions about the bipolar diagnosis (hence no longer being in her care). My anxiety and intrusive thoughts are spiking worse than ever. My main theme is harm so I’m terrified of becoming manic and psychotic and believing my intrusive thoughts are correct, even though my non-OCD self is positive I’m not bipolar. I’m starting to doubt I have OCD and am asking myself what if I am actually delusional and in denial about my situation and am actually a danger to myself and others. I got approved for a PHP in the OCD and anxiety disorder program at Rogers but I don’t start for another 3 weeks. Has anyone been through anything like this (misdiagnosis, wrong medication making you worse, lithium withdrawal, questioning if your OCD is actually psychosis, etc) and has some advice with how to deal with this? I’m feeling so hopeless and dejected after being tossed around the mental health field like this only to find out I have OCD and could have started treatment 8 months ago and not gotten to this point if my doctors were more aware of this condition

I’ve recently been struggling a lot with OCD. I have had OCD for a long time I just didn’t realize it until more recently. About seven months ago I developed panic attacks one day randomly at work. I thought I was having a heart attack and went to the hospital where they told me it was just a panic attack and I assumed I would snap out and be better within a few days. However it didn’t. Here’s where it gets scary, I was staying at my then boyfriends house while dealing with blurry vision, anxiety attacks everyday, and more (unsure of what was going on). But at some point I saw my bfs (pew pew 🔫) on his table and it sent me into an anxiety attack after sudden thoughts that I was going to hurt myself with it. I begged him to put it away when I’m not looking so I didn’t know where he put it. He did. These thoughts lasted for about four days but began to go away. (I thought that was it and I would be back to normal). Unfortunately though I ended up moving back in with my family when we couldn’t get my panic attacks under control in time for me to get back to work and pay bills. However, coming home brought up a lot of trauma from when I was kid. My anxiety got worse but I didn’t have those thoughts again. About two and half months ago though, I got sick and went to the hospital where they gave me steroid pills and a steroid shot but sent me into some kind of psychiatric event. Ever since then though, I have been suffering from harm OCD, I have had moments of intense anger that I usually have to completely walk away and go on my own because of how intense they are, and it feels like it’s getting worse. Today I felt fine until about and hour and half ago where I started to dwell on the fact that my suicidal thought was influenced by my OCD and at the moment my OCD is at the worst it’s been. This caused me to get suddenly really depressed and I started crying thinking about how I can’t handle this. I then saw a post talking about how suicide rates are high for people with this form of OCD and it made me question if I am mentally strong enough to pull through this. I fear that at times I’m getting worse. I have good days but I have a lot of bad days. Unfortunately this sent me into such a bad panic attack I went over to my nanas crying about how I can’t deal with this. I took a 0.25 mg Xanax which helped calm down the panic attack portion of it but my brain is still uncomfortably active. I guess I just need hope. I’m so saddened by this. It’s like my life took a total 360 in 10 months and got even worse since the steroid shot. Idk what to do about it. I can’t stop the spiral. I talk to two different therapist weekly and start more next week, making it 5 times a week. I feel no improvements…

Some background: I’m a woman in my 30s who’s been struggling to find the right diagnosis for years. Since 2022, I’ve had multiple psych hospital stays, and with each stay came a different diagnosis and different sets of medications: Bipolar II, CPTSD, MDD with psychotic features, “high functioning BPD,” and most recently, Schizoaffective Disorder (depressive type). Before all of that happened, I had been seeing a therapist for CPTSD and AuDHD traits for 2 years, but after they left the practice, I struggled to find someone I trusted again. Most of my breakdowns happened during my last relationship. Looking back, I was in survival mode with them, leaving who *I* am behind. I got to the point where I started doubting my own reality from the abuse. This eventually added up and landed me in my first episode of psychosis. That combined with my attempts is what got me my schizoaffective diagnosis. After finally leaving that relationship 1.5 years ago, I’ve slowly rebuilt my life: new town, new job, new friends. Many of my old symptoms (major ones) haven’t returned, which makes me believe I may have been misdiagnosed due to reliving past childhood trauma and stress responses from the abuse. Through all of this, I’ve felt like nothing ever truly fit. I journal, I reflect, I replay the recordings and I’ve even watched old vlogs –the puzzle pieces still don’t come together. It’s left me feeling like I’ll never really know what’s going on, and I’ve started to fear that my diagnoses will just keep stacking up without ever leading to effective treatment. Recently, I opened up to a friend about this. She mentioned that her neighbor went through something similar not exactly like me but she thought it would give me a starting point—multiple diagnoses that never felt right—until a new doctor finally identified it as OCD. That one diagnosis changed everything for her. It made me realize I really don’t know much about OCD beyond the stereotypes. I didn’t know OCD could involve intrusive thoughts, rumination, or mental compulsions. My friend encouraged me to look into it, especially as I start searching for a new therapist. Facebook and Google lead me here… So now I’m wondering: could OCD be a better explanation for what I’ve been experiencing all these years? Questions for the community: 1. What steps did you take to find out if OCD was what you were dealing with? 2. If you had a long history of misdiagnoses, how did you finally find a clinician who got it right? 3. How did you advocate for yourself when people dismissed your concerns? 4. Is there anything you wish you had done earlier in your OCD journey? Thank you so much if you made it this far. I’m really grateful for this space and just want to start finding answers and the right kind of help.

This is gonna be a long one: So a little over a month and a half ago, my OCD started to spiral again. I’ve had ups and downs with it in the past, my main themes often changing. When I was younger it as afraid I’d run away, in middle school it was germs. But as I got older I started having intrusive thoughts of the meaning of life, suicide, and dying, with those fears being my common themes now I’ve gotten a lot better since it started back up, but lately have been panicking because I’ve had intrusive thoughts that my methods of trying to heal are wrong. I’m 21, and for the last 3 years have lacked ambition and haven’t pursued my dreams or things I want to do. I just sleep, work, eat junk food, and play games or watch YouTube on my time off. Things I still love, but after years of living this way, I’ve hit a breaking point and want to start doing more with my life and the people in it Yet, almost EVERY new thing I’ve been trying to do or start, I’ve been having thoughts that they’re wrong or won’t help. Here’s some examples: I’ve started trying to eat a bit healthier, and my brain is telling me it’s not gonna fix me and I’m just avoiding food I like (junk I know makes me tired and sad). Then the moment I indulge in even one unhealthy food item, it tells me I’m failing at taking better care of myself and that junk food just numbs the feelings Same with video games. I tell myself it’s okay to play them as long as it’s not to avoid anything or they don’t take up my life like they have been. The second I do I feel guilty, say it’s cheap dopamine and hindering me from being productive and that I’m numbing my feelings again Same story for everything. Trying to walk and go outside more. Head tells me I’m avoiding being home because it makes me anxious. Then when I stay home it tells me I’m wasting time I could be spending outside or with people I love I’ll wanna spend time with my family or friends because I’ve been a hermit for years and miss spending time with them. When I try to, head tells me I can’t because then I’m avoiding the issues I have and seeking reassurance, and that I need to learn to tolerate this alone. But then when I stay home too long, I get anxious and sad because it does make me happy being around them even if I’m not seeking reassurance, and they genuinely do help me feel better (for example I saw my grandparents last night and talked about my feelings and desire to actually go out and live life, and they helped me understand uncertainty is part of life and I should do things I want anyways and even helped come up with things I may like to try doing. Now my brain tells me it’s bad to get help or open up about my pain) I’ll have racing thoughts in my head and I’ll be arguing with myself over rather it’s better to face them head on, ignore them, or let them run their course. It feels like no matter what I do, I’m feeling guilty and shame for it. As if any attempt at feeling pleasure or doing something that makes me happy is “avoiding the problem”, like I HAVE to focus on my intrusive thoughts, anxiety, and sadness 24/7 otherwise I’m “avoiding/burying it again” I know not to avoid these things and it’s best to confront them (if they’re real problems I have like relationship issues and insecurities and loneliness) and learn to tolerate the anxiety and uncertainty of life and OCD, but my attempts at “helping myself” are quite literally what I feel is currently keeping me so miserable. They’re sucking whatever joy I have in life out, telling me it’s bad, and that I have to feel this way all the time so I can “learn to tolerate it” I’m just so scared of doing all of this wrong, and I think my OCD I knows that and is currently using that to toy with me. I want to be healthier and happier, but then I feel guilt and fear for not being healthy 24/7 and indulging in not healthy things like video games and the occasional junk food. Anybody else ever felt this way?