- Date posted
- 6y ago
- Date posted
- 6y ago
Fear of forgetting resulting in compulsive list making (mental lists and literal, physical lists).
- Date posted
- 6y ago
Lists of like tasks/action items, random thoughts of some perceived value, future plans, etc.
- Date posted
- 6y ago
what is that?
- Date posted
- 6y ago
That's so interesting! I don't have the compulsion to write lists, but it is a fear of mine that I'll forget certain memories that could be important
- Date posted
- 6y ago
Yeah its a strange subtype. It’s really hard to differentiate btwn legitimate tasks/items worthy of being written down from delusion.
- Date posted
- 6y ago
Hi guys, “memory hoarding” is what I’ve been experiencing for years and years. It’s all about trying to take everything possible in, over-attending to various details to create “full” memories. It gets so irritating when I can’t photographically remember something. It does not even have to be anything important. It usually is not. But if I don’t get it right I get fear that I can’t move on. Or it just feels like something is missing and my life won’t be right until I do it right. It’s just if it gets in my head I can’t get it out and have to go over it again and again.
- Date posted
- 6y ago
Hi RyanO! I’ve tried psychotherapy for years including moderate CBT and ERP with no results. I don’t think neither applies in our case unfortunately. SSRI’s were not of much help either though I must point out that I only tried low dosages and for a rather limited amount of time. The worrying bit is I’m so used to this twisted way of thinking that my brain needs complete rewiring somehow... I’ve come to a conclusion that what causes me great discomfort, i.e. the intrusive “memory” thoughts, is what also feeds my brain with contempt when “missing” info is successfully retrieved. I was offered rTMS that I’ve not yet tried. What about you? As I’m sure you know, there are highs and lows and the feeling of helplessness is sometimes so present :(
- Date posted
- 6y ago
Hi RyanO! I have lately resisted in enrolling to meds as they come with different side effects, some of which I did experience myself. But I may opt in again as their benefits, if any, may still outweigh the cons. You know, the worst thing with my/our type of OCD is that it is non-predictable. You can be thoughts-free for a day/week or longer and then within a millisecond things may change as something may trigger the reminiscence, e.g. walking down the street and come across someone who reminds me of a person I know (personally, on TV, I’ve met sometime in my life). The process of trying to remember who/when etc “destroys” what I’m about to do (work, shopping, meeting). And completely ruins my mood, of course. There is no way I can get that thought out of mind until the information is retrieved. Negative feelings and stress can increase when that same thought may take place alongside something really important when the focus should be with that activity naturally whereas it seems I can cope with it better when I am in the comfort of my home or if I’m alone - in which case I may actually not get involved in the intrusion unless what I’m trying to recollect is of “significance”. Anyways, is there any way the app allows for direct communication between members? I thought that may help us sharing. As is the case with Group therapy (I’ve tried it once, I’m in London) though sometimes other types of OCD may be somehow irrelavant to how they are approached from a treatment perspective.
- Date posted
- 6y ago
Hi RyanO - many thanks for sharing your contact details! I’m on travel for the next couple of days, but I will definitely message you during the week. In the meantime, below is a link I’ve personally found quite helpful in the sense of defining “memory hoarding” in a more scientific/clinical way. They’re also California-based so that might be extra useful for you: https://ocdla.com/memory-hoarding-obsessive-compulsive-disorder-ocd-1964 Let’s keep optimistic!
- Date posted
- 6y ago
And by “written down” i mean typed into phone notes / calendar / task-organizer apps.
- Date posted
- 6y ago
In some way, possibly. I’m constantly setting my phone alarm. This might just be because I’m prone to forgetting some things....
- Date posted
- 6y ago
I do that as well - like an alarm for almost every task of the day...
- Date posted
- 6y ago
Hi Alfie - exactly. Ive been experiencing this for years too. How have you dealt with it? Ive found traditional ERP unhelpful as the boundary btwn legitimate/note-worthy tasks and illegitimate/un-note-worthy tasks is super nuanced and difficult to traverse. Any successes for you?
- Date posted
- 6y ago
Similar story for me. Also considered TMS but unfortunately not covered by my ins. I would 100% do it otherwise since i dont respond well to meds. Ive been on luvox for 5 years and while its helped, its also causes myriad problems for me.
- Date posted
- 6y ago
I dont have skype unfortunately!
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- 6y ago
Any other ideas??
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- 6y ago
Also, which contact info did i originally give u? Cant seem to remember
- Date posted
- 6y ago
Emailed u!
- Date posted
- 6y ago
Hi RyanO - just checking my email reply has reached you successfully?
- Date posted
- 6y ago
My bad, Alfie. Totally overlooked it. Will read/respond soon!
- Date posted
- 6y ago
How are you all doing? I have this exact type of OCD.
- Date posted
- 5y ago
Same here!
- Date posted
- 5y ago
Hi lolobean. Hi jasonm. What is it you’re experiencing? How do you relate to the above? It’d be interesting to know some more details of what seems to be a more rare subtype of ocd.
- Date posted
- 5y ago
I make lists that make no sense - words written over each other...
- Date posted
- 1y ago
Help me.. I have this.. I remember dates
Related posts
- Date posted
- 19w ago
Hey guys! So I struggle with OCD, especially harm, relationship and moral stuff and I am somewhat recovered now. However, my current girlfriend has started showing signs of OCD but it’s abou5 something I don’t know much about so I wanted to see if anyone on here had thoughts about it. She is constantly thinking about food (when to eat it, what is healthy, what is too much, what is too little) and controls the thoughts by giving in and controlling her entire day around food. She don’t really know the feeling of being full. She never starved herself and always eats, but then she feels extremely guilty afterwards. Her thoughts do have to do a lot with her body image and not gaining weight but also not losing any either. Does this sound like ocd or an eating disorder?
- Date posted
- 16w ago
Anyone struggle with this with having ocd?
- Date posted
- 13w ago
It started when I became an adult, and started receiving my mental health diagnosis. I hyper fixated on each and every action I did and how it could be related to my diagnosis’s. It then lead to fixation to my physical health — making appointments and seeing every specialist I can to rule out every possibility. I currently have been suffering with obstructive sleep. I woke up the past few days with severe pain from the lack of sleep whilst believing I was oversleeping. Luckily my fit watch tracks my sleep cycle and it turns out I am not receiving any sleep. I had an extreme panic attack — bursting into tears on the phone with my mom wondering what this case might be. She told me it could be sleep apnea and that a simple sleep study could figure this out. However, knowing my family history I made appointments to every specialist I can to make sure it is nothing serious. The unknown of health can be scary to me. Watching my mother suffer with her physical health chronically since I was a child lead me to be very conscious and aware of how my body is functioning. This morning was one of the worst moments of physical pain. I should just take one step at a time with the sleep doctor instead of taking measures to see every specialist that could pertain with this issue. However, that is very hard to me. I don’t want to ever wake up in the pain I was this morning. Does anyone else suffer with health-related OCD? And if so, how do you find a sense of ease during moments like I expressed?
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