- Username
- Anonymous
- Date posted
- 3y ago
Good luck to you and especially to Kane ☺️. I've been in psychotherapy for years ( not ERP TYPE ) I personally think , just myself , that it's very hard to see positive in especially negative experiences but with effort we can find something good and positive out of practically anything . I'm concerned that because you are feeling so overwhelmed ( rightfully so !!!! ) you might not see that anything positive came of your/ your son's therapy but it has ! You and Kane are better informed , you know what doesn't work and maybe more .. please be sure not to identify this experience as " failure " . I say this particularly because I'm concerned Kane might see himself as the " failure " which is completely untrue , right ? I'm a mother too . I have several psych issues and have taken on the role and identity of " the failure " in some situations and now I can see these experiences as just stepping stones to health and progress , to peace ☮️ I'm glad you wrote in and honestly shared too . Sounds so frustrating and I'm thinking about you and how exausted you feel . I have a son ( grown up now , very successful ) who struggled with high functioning autism and depression diagnosed at two years old . I know that frustration , fatigue , the ENDLESS IEP NAVIGATION ! and the guilt I took on personally because I felt like I could not protect/help my child . It was horrible , BUT he is doing good now . If I could offer one thing , one bit of advice in retrospect of my experience ? Take really good care of yourself 💖 Love and nurture you . Good luck with all
Sorry to hear of such a rough time. You guys are trying your absolute best for your son and he is trying his best too! Sounds like you can clearly see this isn't working. I would cease any more meetings, no need for it to continue and only frustrate you all as family any more. Have a chat with a nocd therapist here, it sounds like a great place to have therapy! And it is covered by most insurances 😊 May God direct your sons help and recovery. Pray to God about it too and He will direct the steps 😊
That sounds terrible! If he hasn’t gotten help this far and you’ve given the program multiple weeks, I’d pull him out for sure! (I’m no professional, though) What is your son dealing with? I’d recommending trying NOCD therapy again too. I’m so sorry to hear that you’re dealing with this. I know the disheartening struggle of trial and error. But don’t give up! There IS hope! Keep searching for answers for your son until you find them. He’s so blessed to have a family that cares! 💖
I appreciate this! Sometimes you have to just “call it” when it isn’t working. You lifted my spirits. Thank you!
Thank you! That’s good advice on the language we use. Agree it’s not a total failure in reality. I just feel so dumb giving this program a try when there were so many red flags. You get desperate as a parent. And who knows—what if it were great. I just realize that so much of this journey you have to handle on your own as a family. Nobody is going to save the day here. It’s a long long long journey and the most we can hope for is slight improvement, maybe his whole life. I’m glad your son is doing good now. I am scared to have hope. It’s been so hard.
You’re the first person to listen and care. This response means so much to me. And hearing your input on ending the meetings is helpful. Agree on leaning on God. He will direct the steps. I’ve been awake all night and yiur post might help me fall asleep. I just wanted someone to care. You did that. Thank you. <tears>
Aww wow. Well the God of all comfort, wanted to send you that comfort because He cares so much about you and your family. You've done the absolute best! And one day you will be able to help someone in a similar situation. All the best for the next steps, Prehaps here on Nocd 😊. Rest well, all is being taken care of.
Just as I put my phone down I thought of this song.. So maybe it will help you. This helps in my the pits of distress: https://youtu.be/eyHn_KPm3uk 😊
@ButterflyStar Wow that is so lovely and perfect and simple. Just pray. About everything. Yes.
@ButterflyStar I NEEDED " Your Song " today ...so many days .. sharing this with my loved ones , all. Thank you ❤️ . Everyone needs hope and others and we all need to know there is something much greater than us , or our thought and fears . This song so touches my heart ... again much thanks 💖
@cricketbooboo Aw I'm so glad it was helpful. God wanted to encourage you! 💟
This is long but I’m hurting and need practical advice on what to do. My OCD is convincing me I’m psychotic. It doesn’t help that I was misdiagnosed with bipolar disorder and had an ill informed therapist tell me for 8 months that my intrusive thoughts were hallucinations and delusions. I just quit lithium a week ago after being on it for 4 months after a psychiatric nurse who I no longer am seeing told me it was safe to do so. I don’t exactly trust her though since she accused me of being a liar, impulsive, having a personality disorder, and told me I had to take antipsychotics or she would walk away, when I had legitimate questions about the bipolar diagnosis (hence no longer being in her care). My anxiety and intrusive thoughts are spiking worse than ever. My main theme is harm so I’m terrified of becoming manic and psychotic and believing my intrusive thoughts are correct, even though my non-OCD self is positive I’m not bipolar. I’m starting to doubt I have OCD and am asking myself what if I am actually delusional and in denial about my situation and am actually a danger to myself and others. I got approved for a PHP in the OCD and anxiety disorder program at Rogers but I don’t start for another 3 weeks. Has anyone been through anything like this (misdiagnosis, wrong medication making you worse, lithium withdrawal, questioning if your OCD is actually psychosis, etc) and has some advice with how to deal with this? I’m feeling so hopeless and dejected after being tossed around the mental health field like this only to find out I have OCD and could have started treatment 8 months ago and not gotten to this point if my doctors were more aware of this condition
My first post here. Background: I’m a 29 year old child therapist with autism, anxiety, & OCD. Finally felt brave enough to navigate dating for the 1st time & within 2 weeks developed ROCD. Was getting to know an amazing guy. He’s been nothing but kind, has autism, & is also a Christian like me. I’ve had the most horrible intrusive thoughts about him. In the past week, I’ve had 2 days where I didn’t sleep for over 24 hours. I experienced paranoia & felt so disconnected. Last night, I had a reoccurring intrusive thought that he’s a narcissist or has antisocial personality disorder. I didn’t sleep and cancelled our date and ended things. Such self-sabotage but I literally couldn’t go because I hadn’t slept all night. I’m so sad because I couldn’t last more than 2.5 months. He’s confused and thankfully he’s open to talking but I’m not sure how to let him now about my ROCD. My fear is that he’ll be understanding (and I know he will be which makes me sad) and my OCD will tell me that he’s doing that to manipulate me or do something bad to me. I want to be his friend SO badly but I’m scared. Is being is friend the exposure? Idk what to do??? Any advice or kind words are appreciated ☹️
Hello, My son is 22 and started having intrusive thoughts about hurting himself and us his parents. We have tried outpatient therapy, he has seen a physiatrist and has been in therapy all this year. He started with these thoughts after watching a very violent show/video game and kept picturing himself causing harm to his father, then moved to me, then his sister. The guilt he feels for feeling these things and having these thoughts becomes overwhelming at times to the point he thinks of irrational solutions. Such as cutting his hands off so he dont ever put himself or us in any kind of danger. He did really well for a couple months but now his meds don't seem to work. He's not motivated to do anything. He's never driven, he stays home all the time. Is afraid to socialize. Has gained a lot of weight. As a mother I dont sleep, worried about him. I feel like we walk on eggshells around him. Have had to move anything sharp out of the house. Please tell me he cab get better and that there is light at the end of this dark tunnel. We as a family are desperate. I love my son and there is absolutely nothing I wouldn't do for him. But I feel like he's not motivated to help himself and life is passing him by to the point he feels he has no purpose in this life. Please help.
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