Hi, I'm new to having an OCD diagnosis. I've experienced symptoms for most of my life, but it was usually written off as me being "particular" or generally anxious.  I have other diagnoses as well and one doctor thought my OCD symptoms were a result of mania because of my bipolar diagnosis. Another practitioner thought it was just an extension of my PTSD. Recently, however, I've been able to talk more about my OCD symptoms in therapy due to some alleviation of my other mental health issues. It's still very difficult to distinguish what symptoms are OCD and what symptoms are something else.  I have a tendency to intellectualize most of the issues I experience with my mental health and it's been frustrating, because my OCD seems very random like a puzzle that's missing pieces and that's in the wrong box altogether. I have these graphic and disturbing intrusive images of harming animals and occasionally people I love and I know that this is not who I am, but I start to feel so guilty and sick when I have these thoughts that I'm going to do something terrible. I sometimes get so lost in these thoughts that I'll have convinced myself it's already happened until I'm able to ground myself. I often dissociate during these times and have occasionally had episodes of derealization where if feels like I'm stuck in some sort of dream or nightmare with this ever-present feeling of dread or guilt that I'm going to do something violent or even sexual. Something weird is that these Obsessions aren't really connected with the compulsions I experience which are more focused on things just being done the "right" way. In the car, I don't let my teeth touch if I'm driving over shadows. I struggle to walk over lines/cracks. When I'm at a desk or table, things have to be arranged a certain way or I become very anxious. Every food I eat has a ritual and I count a lot of things that I do, but the behaviors are subtle and go unnoticed unless someone is paying close attention. Does anyone else have seemingly unconnected subtypes? I deal I have Pure O Harm OCD (with pretty much exclusively mental compulsions) and Perfectionism/Symmetry OCD (with outward compulsions).

Hello, I’m new to this app. I’ve always had an anxious brain, and I’ve had coping mechanisms for as long as I can remember. When I was a kid, from as early as I could spell, until I was probably early teens, I would constantly write words in my head along to the beat of music. It’s such a vivid memory because I never stopped doing it. The word had to perfectly match up to the lyric and I loved that it kept my brain busy. I grew out of that, but felt like good context. My anxiety increased drastically around ages 17-19, and I began therapy. I was diagnosed with generalized anxiety and panic disorder, due to having a panic attack nearly every day at that time. I overcame that as well, and now the panic attacks are every now and then, but the anxiety is constant, and some recent symptoms have led me to believe I might have some form of OCD. Maybe not. I’m trying to understand myself and get better so I joined this app to make sense of things. Lately I’ve been having really intense intrusive thoughts. I’m really embarassed and they make me feel like a bad person. Thoughts pop in my head seemingly out of nowhere. It will be an image of me harming myself or someone else in a really bad way. (Trigger warning) for example the other day I couldn’t shake the image of me putting a knife through my own forehead, although it’s not something I want to do. Or I’ll imagine someone killing me. I imagine my loved ones dying often. The thoughts feel so out of my control it’s insane. I hate them. Another persistent issue that isn’t as new is replaying social scenarios. I’m a hairstylist so this one is difficult since I meet a bunch of new people every day. I obsess over how I act and if people like me. I will impulsively say things all the time and they will haunt me for weeks. I question even my closest friends and family who show their love. I find myself so angry and numb and like I have so much built up emotion and a busy mind always. While doing my job I spiral really badly if any little thing goes wrong and it’s embarassing. I know there’s more but I can’t think of it now. I just want to feel better and like I’m not constantly battling my mind.

Hi! It’s pretty difficult for me to get the courage to post this but I’m really struggling to figure out if what I’m experiencing is OCD or Anxiety or neither. I think I have the “pure O” type of OCD where most of my compulsions take the form of ruminating and trying to figure out something all in my head. When I hear this talked about in forums or online the intrusive thoughts don’t really match mine- I worry often about things that seem more “grounded” if that makes sense. A common one for me is my own identity- i will spend long amounts of time stuck in my head trying to figure out my feelings (often sadness or other real emotions I have and patterns I have) and why I feel that way and what in my life caused that and how it’s impacting other things in my life. I also think often about which parts of my personality are the real me and which aren’t. Sometimes this takes the form of strictly ruminating and sometimes I have fake conversations with people I know. It’s intense and I feel I have to figure it out but with no specific intrusive thought that says something like “you have to figure this out or all of your loved ones will die” but it’s very intense. I think also often of all of the decisions I need to make in the future and how they’re going to affect those I love and care about as well as how much I’ll regret them. I imagine all of the ways I think my actions will emotionally hurt others and how to make the least harmful decision, but to me this feels like a valid concern but go over and over and never come to a conclusion. I often just get scared and never make any move because I don’t see an option that doesn’t hurt someone somehow. But again I’m having a hard time identifying the intrusive thought behind it. But I also don’t choose to think about these things most of the time. This is almost all decisions but especially big life decisions. It’s such a struggle because they are things I eventually do have to make decisions about. There is so much more to it that would take too long to explain but in general a lot of my fears revolve around pleasing others/ understanding others emotions to ensure they’re okay, my own identity and personality, and work/school performance. Someone mentioned OCD to me because in my head it feels like I have to solve these things and will go over and over them but I seriously can’t figure out if it’s anxiety, OCD, or none of the above. It’s all very disruptive to my life. I am never not thinking or not trying to figure something out and I feel as if I have no control over it Anyone have any insight?

Some background: I’m a woman in my 30s who’s been struggling to find the right diagnosis for years. Since 2022, I’ve had multiple psych hospital stays, and with each stay came a different diagnosis and different sets of medications: Bipolar II, CPTSD, MDD with psychotic features, “high functioning BPD,” and most recently, Schizoaffective Disorder (depressive type). Before all of that happened, I had been seeing a therapist for CPTSD and AuDHD traits for 2 years, but after they left the practice, I struggled to find someone I trusted again. Most of my breakdowns happened during my last relationship. Looking back, I was in survival mode with them, leaving who *I* am behind. I got to the point where I started doubting my own reality from the abuse. This eventually added up and landed me in my first episode of psychosis. That combined with my attempts is what got me my schizoaffective diagnosis. After finally leaving that relationship 1.5 years ago, I’ve slowly rebuilt my life: new town, new job, new friends. Many of my old symptoms (major ones) haven’t returned, which makes me believe I may have been misdiagnosed due to reliving past childhood trauma and stress responses from the abuse. Through all of this, I’ve felt like nothing ever truly fit. I journal, I reflect, I replay the recordings and I’ve even watched old vlogs –the puzzle pieces still don’t come together. It’s left me feeling like I’ll never really know what’s going on, and I’ve started to fear that my diagnoses will just keep stacking up without ever leading to effective treatment. Recently, I opened up to a friend about this. She mentioned that her neighbor went through something similar not exactly like me but she thought it would give me a starting point—multiple diagnoses that never felt right—until a new doctor finally identified it as OCD. That one diagnosis changed everything for her. It made me realize I really don’t know much about OCD beyond the stereotypes. I didn’t know OCD could involve intrusive thoughts, rumination, or mental compulsions. My friend encouraged me to look into it, especially as I start searching for a new therapist. Facebook and Google lead me here… So now I’m wondering: could OCD be a better explanation for what I’ve been experiencing all these years? Questions for the community: 1. What steps did you take to find out if OCD was what you were dealing with? 2. If you had a long history of misdiagnoses, how did you finally find a clinician who got it right? 3. How did you advocate for yourself when people dismissed your concerns? 4. Is there anything you wish you had done earlier in your OCD journey? Thank you so much if you made it this far. I’m really grateful for this space and just want to start finding answers and the right kind of help.